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Burning mouth syndrome – anyone else have this?

Posted by londonex @londonex, Jan 1 8:39pm

I was diagnosed with burning mouth syndrome (BMS) in 2019 after going to my GP and gastroenterologist with complaints of heartburn and throat soreness. An endoscopy proved no GERD issues and an oral pathologist ended up diagnosing me with BMS. It has been described to me as a neuropathy of the fifth cranial nerve, and the second cranial nerve which, in my case, affects the back of my throat, top of my mouth and occasionally up through my sinuses to cause a raging headache. It comes on with high stress and anxiety, sometimes with hot or cold or spicy foods, and lasts anywhere from one hour to one week.
Really doesn’t respond to any medication. Stress reduction and yoga do help a bit (placebo?) when I put my mind to it but for the most part, BMS is a bothersome undercurrent in my daily life. Just wondering if others are suffering with this as well.
Thank you!

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diannesmcneill | @diannesmcneill | 23 hours ago
In reply to @colleenyoung "I've included this discussion in the Skin Health support group. At Mayo Clinic, specialists in dermatology..." + (show)
@colleenyoung

I've included this discussion in the Skin Health support group. At Mayo Clinic, specialists in dermatology treat burning mouth syndrome. Depending on your needs, specialists in ear, nose and throat (ENT), dentistry, pain medicine and other areas work together as a multispecialty team to evaluate and treat this condition.

Burning mouth syndrome is the medical term for ongoing or recurring burning in the mouth without an obvious cause. You may feel this burning on your tongue, gums, lips, inside of your cheeks, roof of your mouth or large areas of your whole mouth. The feeling of burning can be severe, as if you injured your mouth with a very hot drink.

Burning mouth syndrome usually comes on suddenly, but it can develop slowly over time. Often the specific cause can't be found. Although that makes treatment more challenging, working closely with your health care team can help you reduce symptoms. Read more here: https://www.mayoclinic.org/diseases-conditions/burning-mouth-syndrome/symptoms-causes/syc-20350911

Here is a list of discussions in the Skin Health group related to burning mouth syndrome:
https://connect.mayoclinic.org/search/discussions/?search=Burning%20mouth

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Thank you! I suffered so much burning and had several specialist and dentists over 3.5 years. I hope my experience helps someone else. Treatment with acid reducers and sucralfate liquid is not quick but I could see a difference after 2 weeks with much more relief at 30 days and much more at 60. 4 months in an every month is better. Burning mouth and tongue and tooth is hard!

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