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Burning mouth syndrome – anyone else have this?
I was diagnosed with burning mouth syndrome (BMS) in 2019 after going to my GP and gastroenterologist with complaints of heartburn and throat soreness. An endoscopy proved no GERD issues and an oral pathologist ended up diagnosing me with BMS. It has been described to me as a neuropathy of the fifth cranial nerve, and the second cranial nerve which, in my case, affects the back of my throat, top of my mouth and occasionally up through my sinuses to cause a raging headache. It comes on with high stress and anxiety, sometimes with hot or cold or spicy foods, and lasts anywhere from one hour to one week.
Really doesn’t respond to any medication. Stress reduction and yoga do help a bit (placebo?) when I put my mind to it but for the most part, BMS is a bothersome undercurrent in my daily life. Just wondering if others are suffering with this as well.
Thank you!
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Thank you! I suffered so much burning and had several specialist and dentists over 3.5 years. I hope my experience helps someone else. Treatment with acid reducers and sucralfate liquid is not quick but I could see a difference after 2 weeks with much more relief at 30 days and much more at 60. 4 months in an every month is better. Burning mouth and tongue and tooth is hard!
Burning “Up thru your sinuses” is a common symptom of silent reflux. There are two different types of reflux and one is higher. I am very happy that a smart PA at hospital emergency room recommended an esophagus scope for me. The specialist, prior to esophagus scope, had little faith that my burning had anything to do with my burning. He was surprised at my diagnosis of reflux and Barrett’s. My family Dr. told me the treatment for reflux the specialist put me on was not going to help my burning. The specialist told me I would just have to take the medication to see what effect the medication would have on my burning. It was a good month of treatment before I noticed my burning improving. At that point I was able to does down and then stop all the other medications I had been taking for burning mouth, tongue, and tooth. I can’t stress enough that relief was not instant. It might have been if I had been taking pepsid AC at beginning of my treatment as Pepsid AC works faster on burning than a PPI works on burning. Talk to your doctor …..read about silent acid reflux and the nostril burning….tell your doctor…take him the article about reflux and nostril burning. Do you elevate the head of your bed which helps reflux. Good luck.