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Burning mouth syndrome – anyone else have this?
I was diagnosed with burning mouth syndrome (BMS) in 2019 after going to my GP and gastroenterologist with complaints of heartburn and throat soreness. An endoscopy proved no GERD issues and an oral pathologist ended up diagnosing me with BMS. It has been described to me as a neuropathy of the fifth cranial nerve, and the second cranial nerve which, in my case, affects the back of my throat, top of my mouth and occasionally up through my sinuses to cause a raging headache. It comes on with high stress and anxiety, sometimes with hot or cold or spicy foods, and lasts anywhere from one hour to one week.
Really doesn’t respond to any medication. Stress reduction and yoga do help a bit (placebo?) when I put my mind to it but for the most part, BMS is a bothersome undercurrent in my daily life. Just wondering if others are suffering with this as well.
Thank you!
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Have you been diagnosed with Barrett’s. The PPI you are taking is suppose to be the safest PPI. I tried taking it two different times and each time had swollen ankles and feet. The sucralfate liquid helps with the burning mouth also.
The past timelines and details are getting fuzzy. I usually get an upper scope when I’m already out for a colonoscopy but have had a separate scope before. Have colonoscopies every 3-5 years due to polyp history and genetics. It has been 5.5 years for both but coming soon. I go to a GI specialist but just have my PCP order the protonix now. No Barrett’s so far. My brother had it but didn’t know till dx with stage III cancer. The cancer was only discovered because he had a massive heart attack and was put on blood thinners after heart surgery. The previously unknown esophageal tumor started hemorrhaging. Scary to know you can be so far along with no symptoms. He passed away 2 years after diagnosis.
I’m so hesitant to try new meds because I usually react. If protonix is causing any of my issues I haven’t made the connection. Sorry you weren’t able to take it. Best of luck to you.
4 of my doctors asked me if I had reflux and I said no. I was shocked to find out not only did I have reflux but it had advanced to Barrett’s esophagus. It took almost 4 weeks for reflux medications to help calm the burning mouth. In hindsight the reflux and Barrett’s esophagus were screaming symptoms at me as a burning mouth, tongue, and tooth! I hope my experience helps other doctors and patients!
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1 ReactionI;ve included this discussion in the Skin Health support group. At Mayo Clinic, specialists in dermatology treat burning mouth syndrome. Depending on your needs, specialists in ear, nose and throat (ENT), dentistry, pain medicine and other areas work together as a multispecialty team to evaluate and treat this condition.
Burning mouth syndrome is the medical term for ongoing or recurring burning in the mouth without an obvious cause. You may feel this burning on your tongue, gums, lips, inside of your cheeks, roof of your mouth or large areas of your whole mouth. The feeling of burning can be severe, as if you injured your mouth with a very hot drink.
Burning mouth syndrome usually comes on suddenly, but it can develop slowly over time. Often the specific cause can't be found. Although that makes treatment more challenging, working closely with your health care team can help you reduce symptoms. Read more here: https://www.mayoclinic.org/diseases-conditions/burning-mouth-syndrome/symptoms-causes/syc-20350911
Here is a list of discussions in the Skin Health group related to burning mouth syndrome:
https://connect.mayoclinic.org/search/discussions/?search=Burning%20mouth
It sounds like what I experience with food allergies.