Bronchiolitis obliterans aka Popcorn Lung

Posted by tonya1980 @tonya1980, Jan 1 6:32pm

Hello I am new. I was diagnosed with Bronchiolitis obliterans Aug 2018.
Its 2020 and I have to start some treatment. I didn’t realize how serious this was. I had a breakdown and now I am ready to deal with it. My breathing is getting worse. Wheezing and woke up last night couldnt breathe. I just told my mom and brother a few days ago. I am only 39. I am scared.

Anyone else out there with breathing problems?
I am in midwest. Is it better to go down south for winter? I was looking for places to get treatment. Not alot of info. There is a stem cell place in Tampa. I just dont know what to do.

Good morning @tonya1980 I am so sorry to hear that you are having such problems but you’ve come to the right place. We’re a community that shares support, information, and experiences of our health journeys. I’m going to ask our moderator to move your posting to the lung health group that is already talking about bronchiolitis obliterans.
Have you seen a doctor since your initial diagnosis? What did the doctor say? What happened that made you suddenly feel that you had a serious condition?

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@becsbuddy

Good morning @tonya1980 I am so sorry to hear that you are having such problems but you’ve come to the right place. We’re a community that shares support, information, and experiences of our health journeys. I’m going to ask our moderator to move your posting to the lung health group that is already talking about bronchiolitis obliterans.
Have you seen a doctor since your initial diagnosis? What did the doctor say? What happened that made you suddenly feel that you had a serious condition?

Jump to this post

Need to see a doctor. May have been an anxiety attack which makes it very difficult to breathe.

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@tonya1980 I am glad you have reached out. I only have my impression, but I think you feel panic and are not thinking calmly and clearly. Yes, I believe this is a potentially dangerous condition, but I also believe that there are many treatments available to ease both your daily living and your anxiety. Please see a pulmonologist (lung doctor) as soon as possible. You might need to go through your primary physician for a referral, but I believe the sooner, the better for you

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I have a lug issue as well. Diagnosed with IPF a year ago, I can understand how scary it is to hear the diagnosis for the first time. IPF is incurable. The folks at MAYO were helpful but, were only able to confirm what my regular provider said. After receiving the news, I went on line to see what the rest of the world had to say. I think you will have to take some time to come to terms with your condition. Like me, you have some options available and should take advantage of any resources you can find. I have found research is being done in all sorts of places, and some with promising results. Regardless, I had to come to terms with the current state of things. I hope you do well in your journey.

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