Bronchiectasis and now diagnosed with Idiopathic Pulmonary Fibrosis
Have any of you had a CT & diagnosed with Bronchiectasis & told it was not terminal and 2 yrs later have another CT just to find it’s doubled in those 2 yrs and now it’s Idiopathic Pulmonary Fibrosis which they say is terminal?? I fused with my dr. For 2 yrs telling her I was getting worse but she never did anything different like ordering a CT after one year to ck on it. I was never told it could go in to IPF. My big sister got it 30 yrs after she had mega doses of Chemo to save her life. They warned her it could happen, but she had 37 yrs of good life. I’m concerned b/c I just had to turn up my oxygen to 8 & still my oxygen levels drop in to the 70’s when I just get up to go to bathroom or kitchen. It’s a horrible feeling when you can’t get enough oxygen. Any good ideas of how any of you handle it?? Thinking of second opinion & if I’d qualify for lung transplants.