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Bronchiectasis: Is nebulizing helpful?
Hi guys, hope I am posting this right. I have had bronchiectasis and have been nebulizing for two years now. A friend recently visited and said she has a history of pneumonia seven times and saw bronchiectasis on her scan. However, she does not nebulize. I was pretty surprised. Makes me wonder, is mine worse that hers on an xray? Is her doc remiss in not ordering her to nebulize? Does not everyone nebulize who has bronchiectasis? Any thoughts? Thanks so much.
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NTMir video on importance of airway clearance
Since you're in VA, have you tried the NIH? It's considered one of the national centers for treating MAC.
National Institutes of Health, Bethesda, MD
http://www.nih.gov
Gej, do you know the result of the Scan that you were to have on 09/20? Don (Thumperguy)
Clarification re: NIH. They will only consider you as a clinical patient at their clinical center if you happen to be a fit with a current study. Doesn't look like the currently have any NTM studies in progress. UT Tyler is considered an NTM CoE and has a list of national centers/treatment institutions on their site:
https://www.maclungdisease.org/list-of-treating-institutions/-
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1 ReactionThank you, Sue. Yes, I think as soon as my move is complete ( to our other house) I will start investigating a new pulmonologist and ID doctor who are more pro-active and not just re-active. Thank you for always being there to help us all 11
Does anyone have a pulmonologist in Naples FL that is proactive and doesn’t just put you on the drug program right away.