Brinsupri follow-up

Posted by scoop @scoop, Sep 29 12:21pm

It seems a bunch of us have started Brinsupri. Let's use this thread for discussion. If you are taking Brinsupri have you noticed anything different, including changes to bronchiectasis or side effects? How long have you been on it?

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

Does anyone take the albuterol nebulizer while taking the Brinsupri? Or have you stopped nebulizing ?

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Profile picture for charisscurry @charisscurry

Does anyone take the albuterol nebulizer while taking the Brinsupri? Or have you stopped nebulizing ?

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@charisscurry
Taking the new drug Brinsupri does not eliminate the need to continue airway clearance.

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Profile picture for charisscurry @charisscurry

Does anyone take the albuterol nebulizer while taking the Brinsupri? Or have you stopped nebulizing ?

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@charisscurry still use twice a day

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Profile picture for lilianna @lilianna

@scoop 7% my normal. Is there 9%? At NJH they used 10 % to try get a sputum sample- harsh on throat but I spit something.

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@lilianna I heard a pulmonologist recently refer to 9% saline but further research shows 7% is the highest concentration routinely available commercially for inhalation.

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Hi I'm kinda new here.
I am looking into getting the new drug brinsupri. My pulminologist has ok'd it.
I'm wondering what kind of copay to expect? I have medicare with fed blue.
Im just curious if I should pesue it.

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Has anyone been advised to stay away from the sun while taking Brinsupri? The pharmacist mentioned this to me. But I don't see it mentioned anywhere.
I just started, nothing to report yet.

Thanks!
Ling

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Profile picture for @ling @wangling

Has anyone been advised to stay away from the sun while taking Brinsupri? The pharmacist mentioned this to me. But I don't see it mentioned anywhere.
I just started, nothing to report yet.

Thanks!
Ling

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@wangling
Great Ling! I do so hope it helps you. I read a post here where someone who had been taking it for 6 weeks stated they feel much better already. Keep us posted on how you do!
As far as stay away from the sun I have not read that anywhere yet. Our "online doctor" 🙂 (Google) did not list it either.

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Profile picture for scoop @scoop

@lilianna I heard a pulmonologist recently refer to 9% saline but further research shows 7% is the highest concentration routinely available commercially for inhalation.

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@scoop .9 is the lowest. 10% the highest. My doctor would not prescribe 10% even to try to produce a sputum sample because it’s too strong.

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Profile picture for cwal @cwal

@wangling
Great Ling! I do so hope it helps you. I read a post here where someone who had been taking it for 6 weeks stated they feel much better already. Keep us posted on how you do!
As far as stay away from the sun I have not read that anywhere yet. Our "online doctor" 🙂 (Google) did not list it either.

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@cwal, Thanks! So far it seems the results are positive. I hope it works for me too. It was a long-awaited hope.

Ling

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Profile picture for pfists @pfists

Hi I'm kinda new here.
I am looking into getting the new drug brinsupri. My pulminologist has ok'd it.
I'm wondering what kind of copay to expect? I have medicare with fed blue.
Im just curious if I should pesue it.

Jump to this post

@pfists copays vary based on your plan, from a few bucks to several hundred dollars. The company does have an assistance fund. Good luck.

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