Brinsupri follow-up
It seems a bunch of us have started Brinsupri. Let's use this thread for discussion. If you are taking Brinsupri have you noticed anything different, including changes to bronchiectasis or side effects? How long have you been on it?
Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.
Connect

Does anyone take the albuterol nebulizer while taking the Brinsupri? Or have you stopped nebulizing ?
@charisscurry
Taking the new drug Brinsupri does not eliminate the need to continue airway clearance.
-
Like -
Helpful -
Hug
4 Reactions@charisscurry still use twice a day
-
Like -
Helpful -
Hug
1 Reaction@lilianna I heard a pulmonologist recently refer to 9% saline but further research shows 7% is the highest concentration routinely available commercially for inhalation.
Hi I'm kinda new here.
I am looking into getting the new drug brinsupri. My pulminologist has ok'd it.
I'm wondering what kind of copay to expect? I have medicare with fed blue.
Im just curious if I should pesue it.
Has anyone been advised to stay away from the sun while taking Brinsupri? The pharmacist mentioned this to me. But I don't see it mentioned anywhere.
I just started, nothing to report yet.
Thanks!
Ling
-
Like -
Helpful -
Hug
2 Reactions@wangling
Great Ling! I do so hope it helps you. I read a post here where someone who had been taking it for 6 weeks stated they feel much better already. Keep us posted on how you do!
As far as stay away from the sun I have not read that anywhere yet. Our "online doctor" 🙂 (Google) did not list it either.
@scoop .9 is the lowest. 10% the highest. My doctor would not prescribe 10% even to try to produce a sputum sample because it’s too strong.
-
Like -
Helpful -
Hug
1 Reaction@cwal, Thanks! So far it seems the results are positive. I hope it works for me too. It was a long-awaited hope.
Ling
-
Like -
Helpful -
Hug
1 Reaction@pfists copays vary based on your plan, from a few bucks to several hundred dollars. The company does have an assistance fund. Good luck.
-
Like -
Helpful -
Hug
1 Reaction