Brinsupri experience after 3+ months

@sweethighland I've been on 25mg for almost 4 months and it is helping (less coughing ), but I still have the same mucus you described - sticky with balls. I had to up my hydration and take electrolyte pills since I've had a few dehydration episodes. My progress seems to go up and down depending on environmental challenges like pollen, ozone and humidity variations.

@mimmzy how long have you been inhaling collistomethate? . How long have you had psuedanoma? Any side effects. Have you tried tobi. I go on cefipime IV picc when my psuedanoma aerigenosa attacks me. I had one severe attack this past jan/ feb. Bilateral lobe pnuemonia. Had been on 4 different antibiotics starting with cipro. Cefdiner, doxycycline. The psuedanoma got so bad that I wasn't sure even if cefipime would pull me out of this. Not on any inhaled yet

I have been on Colistimethate now for 6 months. Will see my Infectious Disease Dr next month to evaluate. I had been battling pseudomonas for about 3 years. Each flare up came back within 2-3 months.. Have not had any flare ups with it since starting Brinsupri in October.

@mimmzy im glad to here you are not having any flare ups lately. How did your doctors push back the psuedanoma. ? Which antibiotic? I have side effects on so many medications. My doctors mentioned tobi. But im not sure id make it through the side effects. So far ive been off any antibiotic since the cefipime . Just doing neb of ipratropium bromide and 7% sodium chloride. 2x daily. I use the percussion vest daily . Try to exercise use the aeribeka and pickle to get up mucus.

Before Brinsupri I was on daily Azithromycin. Usually Levofloxacin and Z pack for flare ups. The Brinsupri and Colistimethate seems to work well. I also nebulizer 2X a day and use a flutter valve. I also exercise twice a week at Pulmonary Rehab. Mucinex and NAC to thin out mucus. A netty bottle to help with nasal mucus.