1. < Hypertrophic Cardiomyopathy (HCM)
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Breathlessness

Posted by teeuk1 @teeuk1, Apr 5 2:16pm

I was diagnosed with HCM a few years ago and have had medication that has been fine.A few months ago I had 2 stents inserted as one artery was 70% blocked the other artery is slightly furred.i have been breathless but only on walks if I go up an incline.Since the stents were fitted I am extremely breathless even on a flat walk and have had to use an invalid chair whilst getting around Disney land .I have had every test done since complaining to my doctor about this ie stress test ultra sound etc I was even sent to a lung specialist who did a bunch of tests which all came back fine.I was told to stop my Bisoprolol to see if that could stop the breathlessness which it hasn’t.The last result is an MRI scan to see if that shows anything but I am reluctant as I have been told my heart is working fine as well as my lungs. I am desperate to know what is causing this breathlessness as I am slightly over weight but feel worse after the stents and I had another angiogram to check stents were in place and was told everything’s fine

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mike223 | @mike223 | May 21 10:03am

Non-obstructive HCM — About 1/3 of cases have no blockage, yet symptoms like shortness of breath still occur due to the stiff muscle and inefficient pumping under stress.

Lungs tests (e.g., chest X-ray, spirometry) are often clear because the issue isn't primary lung disease or classic congestive heart failure with fluid backup at rest. Symptoms are often exertional only.

This is common in HCM but get personalized evaluation—don't ignore worsening symptoms, as they can signal need for treatment to improve quality of life and reduce risks. If breathlessness is sudden/severe or with chest pain/fainting, seek urgent care.

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teeuk1 | @teeuk1 | May 21 12:29pm

I get breathless at any time and also occasionally light headed I have had 2 stents fitted 5 months ago and the breathlessness seems worst

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Linda, Volunteer Mentor | @walkinggirl | May 22 1:29pm
In reply to @teeuk1 "I get breathless at any time and also occasionally light headed I have had 2 stents..." + (show)
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I get breathless at any time and also occasionally light headed I have had 2 stents fitted 5 months ago and the breathlessness seems worst

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@teeuk1 I think this is your first posting to Connect. Welcome! I am sorry to read that the stents did not work as you hoped they would. You do want to feel better, of course! May I suggest another opinion? Have you been diagnosed with HCM? If so, is your doctor well-versed in HCM? Are you receiving care at a COE (Center of Excellence)?

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