1. < Breast Cancer

Breast Cancer and complementary or integrative therapies

Posted by nataliehope @nataliehope, Feb 27, 2020

Hi All, I am newly diagnosed Stage 1, IDC, tiny tumor, 42 year old. Does everyone elect to have surgery as step 1, does anyone try to fight the tumor on it's own? I'm E+, P+ Her2-Neg, MMI is 8. My hormones have been out of whack for a while and I neglected to take care of me, very hard menstrual cycles, very high stress, emotional trauma too, but I eat well and exercise. I'm a month from being diagnosed and I've upped my supplements and am eating really healthy, juicing, praying...etc. I need to block my estrogen, what are you guys doing for that? Also, any discussion on natural ways to get rid of a tumor? Anyone hear of Crybolation/Cryotherapy to freeze cancer cells - it's so successful in other countries especially for people with my diagnosis but very hard to find here in USA. I truly believe God gave us everything to heal our bodies and we can heal our cells and our life is in his hands, the conventional cancer path already has took me down dark tunnels that I don't feel are right for me... just looking for something more natural, would love your thoughts if you are like minded thinker and believer. God bless you all! XO

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windyshores | @windyshores | Dec 20, 2022
In reply to @healinhand "These are the facts that I know. Around the end of June, we felt a lump..." + (show)
@healinhand

These are the facts that I know. Around the end of June, we felt a lump at 9oclock on her right breast. We went for a mammogram/ ultrasound. They found a 3cm spiculated mass. I began doing research. I started her on 6 grams day of Turkey tail. At the end of July she had an mri, they were confused as it appeared to have shrank. I didn’t say anything. She had a lumpectomy on 8/11/22. Really good margins, onca dx was 12. Radiation therapy for 5 days. I had a estradiol test run and it showed < 10. A year prior to this it was 60. She’s taking letrozole. 2 months after her first dose, she is still at < 10. Turkey tail is an aromatase inhibitor. And we are satisfied with the results. If I had known about this sooner, we may have gone a different route. Irregardless, her breast looks really good and she is doing well other than some breast, axilla pain.
Please do your own research. She is er, pr +. HER2-. 54 years old.

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Letrozole reduces estrogen to undetectable levels. The tests available to us are limited to <10. It may be that turkey tail gets it under 10 but letrozole gets it closer to 0. I would ask your doctor about this.

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1 reply
healinhand | @healinhand | Dec 20, 2022
In reply to @windyshores "Letrozole reduces estrogen to undetectable levels. The tests available to us are limited to <10. It..." + (show)
@windyshores

Letrozole reduces estrogen to undetectable levels. The tests available to us are limited to <10. It may be that turkey tail gets it under 10 but letrozole gets it closer to 0. I would ask your doctor about this.

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Mayo Clinic actually has a gas chromatograph that can measure down to 0

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1 reply
windyshores | @windyshores | Dec 21, 2022
In reply to @healinhand "Mayo Clinic actually has a gas chromatograph that can measure down to 0" + (show)
@healinhand

Mayo Clinic actually has a gas chromatograph that can measure down to 0

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Interesting. That must be what was used in the studies of the effectiveness of aromatase inhibitors. I always wondered.

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1 reply
healinhand | @healinhand | Dec 22, 2022
In reply to @windyshores "Interesting. That must be what was used in the studies of the effectiveness of aromatase inhibitors...." + (show)
@windyshores

Interesting. That must be what was used in the studies of the effectiveness of aromatase inhibitors. I always wondered.

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Probably so. I would like to find one a little closer, but I’m interested in the actual number, so I may send them a sample

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1 reply
anjalima | @anjalima | Dec 22, 2022
In reply to @healinhand "Probably so. I would like to find one a little closer, but I’m interested in the..." + (show)
@healinhand

Probably so. I would like to find one a little closer, but I’m interested in the actual number, so I may send them a sample

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I would also but I live on the east coast. If you look into this could you report back ( so we don’t inundate) as to how we could get this information from afar. Thank You 🌸

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1 reply
healinhand | @healinhand | Dec 22, 2022
In reply to @anjalima "I would also but I live on the east coast. If you look into this could..." + (show)
@anjalima

I would also but I live on the east coast. If you look into this could you report back ( so we don’t inundate) as to how we could get this information from afar. Thank You 🌸

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This was sent to me from my wife’s oncologist:
Hi guys,

The estradiol test is <10.0 (less than 10) and you are correct that is the bottom limit of the test. The only way to get a more sensitive test would be to send a sample to the Mayo clinic for Mass Spectrometry (https://www.mayocliniclabs.com/test-catalog/overview/81816#Overview) which should be able to detect lower levels of estradiol. However, even if we detect a level on this test, we don't recommend dose adjusting the letrozole.

I think I want to pursue this a little more.

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2 replies
anjalima | @anjalima | Dec 22, 2022
In reply to @healinhand "This was sent to me from my wife’s oncologist: Hi guys, The estradiol test is <10.0..." + (show)
@healinhand

This was sent to me from my wife’s oncologist:
Hi guys,

The estradiol test is <10.0 (less than 10) and you are correct that is the bottom limit of the test. The only way to get a more sensitive test would be to send a sample to the Mayo clinic for Mass Spectrometry (https://www.mayocliniclabs.com/test-catalog/overview/81816#Overview) which should be able to detect lower levels of estradiol. However, even if we detect a level on this test, we don't recommend dose adjusting the letrozole.

I think I want to pursue this a little more.

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Interesting and thank you. Please keep us posted. 🌸

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windyshores | @windyshores | Dec 23, 2022
In reply to @healinhand "This was sent to me from my wife’s oncologist: Hi guys, The estradiol test is <10.0..." + (show)
@healinhand

This was sent to me from my wife’s oncologist:
Hi guys,

The estradiol test is <10.0 (less than 10) and you are correct that is the bottom limit of the test. The only way to get a more sensitive test would be to send a sample to the Mayo clinic for Mass Spectrometry (https://www.mayocliniclabs.com/test-catalog/overview/81816#Overview) which should be able to detect lower levels of estradiol. However, even if we detect a level on this test, we don't recommend dose adjusting the letrozole.

I think I want to pursue this a little more.

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@healin hand what is your goal here? Are you interested in finding out if the aromatase inhibitors are needed, or what dose is effective? Are you trying to avoid side effects or prove the meds aren't needed?

Read the Femara insert, or the drug insert for any AI. For Femara, the insert basically says that in studies, 20% of the suggested dose reduced estradiol below detectable levels.

But I am not sure whether dose matters anyway. If estrogen is effectively suppressed, at any dose level, the side effects would probably be the same, right?

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1 reply
healinhand | @healinhand | Dec 23, 2022
In reply to @windyshores "@healin hand what is your goal here? Are you interested in finding out if the aromatase..." + (show)
@windyshores

@healin hand what is your goal here? Are you interested in finding out if the aromatase inhibitors are needed, or what dose is effective? Are you trying to avoid side effects or prove the meds aren't needed?

Read the Femara insert, or the drug insert for any AI. For Femara, the insert basically says that in studies, 20% of the suggested dose reduced estradiol below detectable levels.

But I am not sure whether dose matters anyway. If estrogen is effectively suppressed, at any dose level, the side effects would probably be the same, right?

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I’m interested in seeing the complete effect of Turkey Tail.

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2 replies
polianad22 | @polianad22 | Dec 23, 2022
In reply to @healinhand "I’m interested in seeing the complete effect of Turkey Tail." + (show)
@healinhand

I’m interested in seeing the complete effect of Turkey Tail.

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Interesting

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