Breast Cancer and complementary or integrative therapies

Posted by nataliehope @nataliehope, Feb 27, 2020

Hi All, I am newly diagnosed Stage 1, IDC, tiny tumor, 42 year old. Does everyone elect to have surgery as step 1, does anyone try to fight the tumor on it's own? I'm E+, P+ Her2-Neg, MMI is 8. My hormones have been out of whack for a while and I neglected to take care of me, very hard menstrual cycles, very high stress, emotional trauma too, but I eat well and exercise. I'm a month from being diagnosed and I've upped my supplements and am eating really healthy, juicing, praying...etc. I need to block my estrogen, what are you guys doing for that? Also, any discussion on natural ways to get rid of a tumor? Anyone hear of Crybolation/Cryotherapy to freeze cancer cells - it's so successful in other countries especially for people with my diagnosis but very hard to find here in USA. I truly believe God gave us everything to heal our bodies and we can heal our cells and our life is in his hands, the conventional cancer path already has took me down dark tunnels that I don't feel are right for me... just looking for something more natural, would love your thoughts if you are like minded thinker and believer. God bless you all! XO

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@anjalima

Thank you for the information you have provided.

Just wondering if your wife is also on an aromatase inhibitor? I seem to remember that she was and her oncologist also approved of the Turkey Tail IN ADDITION TO but I cannot find that earlier post. Could you refresh my memory?

I’m taking Anastrozole. In my 9th month and thankfully tolerating it very well.

Also, you are a very compassionate and caring partner which will also play a huge part of her healing. 🌸

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Yes, she takes letrozole. I spent an enormous amount of time researching the fillers used in the medication, and speaking with patients about their tolerance. The one that seemed to be the most palatable was the Accord brand. Here is the article:
https://www.drcarolhaddad.com/blog/supplemental-mushrooms

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He also takes it. I don’t know the reason, but it made me take it also.

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@healinhand

Yes, she takes letrozole. I spent an enormous amount of time researching the fillers used in the medication, and speaking with patients about their tolerance. The one that seemed to be the most palatable was the Accord brand. Here is the article:
https://www.drcarolhaddad.com/blog/supplemental-mushrooms

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I ordered the Host Defense Turkey Tail.

I have read that wonderful article . It cautions about hormone issues… that’s what concerned me… would it interfere with the AI or compliment it. I’m definitely tolerating Anastrozole well ( and I don’t usually tolerate meds).

I live on the east coast NYC area and looking for a new oncologist… is your oncologist in my area?

Thank you for taking the time to respond to me so quickly; much appreciated.🌸

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@anjalima

I ordered the Host Defense Turkey Tail.

I have read that wonderful article . It cautions about hormone issues… that’s what concerned me… would it interfere with the AI or compliment it. I’m definitely tolerating Anastrozole well ( and I don’t usually tolerate meds).

I live on the east coast NYC area and looking for a new oncologist… is your oncologist in my area?

Thank you for taking the time to respond to me so quickly; much appreciated.🌸

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I’m sorry, I’m on the west coast, in Spokane, Wa. Her oncologist told me that plant based hormones are not a problem, and he’s recommended black cohosh and soy to help with hot flashes. I also keep her vitamin d level on the high side… above 60. There’s an excellent YouTube video concerning this. I’ll attach it for you. I don’t think that there is a be all, end all drug available at this time. She has also had a depression issue for many years, and I give her St. John’s wort for that… it seems to work very well. Anytime I have a question, or want to try something new, I send him a question through the portal. He tells why/why not and gives me links to research, as he knows I spend countless hours reading. To me this is about my partner, and I wouldn’t let her down. I’ve attended all of the procedures. Except actually being in the surgery, but all mammograms, mri’s, biopsies, radiation therapy, etc. When the biopsy was performed the Dr told me I had to wait outside, I told my wife to get dressed. Then she got me a chair to sit in while she did the procedure.
I seem to have conflicts with most doctors, because I do a lot of research , but like I said, this is my wife.
I hope this helps…
And I pray you will be healed. This is a tough journey.

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@healinhand

I’m sorry, I’m on the west coast, in Spokane, Wa. Her oncologist told me that plant based hormones are not a problem, and he’s recommended black cohosh and soy to help with hot flashes. I also keep her vitamin d level on the high side… above 60. There’s an excellent YouTube video concerning this. I’ll attach it for you. I don’t think that there is a be all, end all drug available at this time. She has also had a depression issue for many years, and I give her St. John’s wort for that… it seems to work very well. Anytime I have a question, or want to try something new, I send him a question through the portal. He tells why/why not and gives me links to research, as he knows I spend countless hours reading. To me this is about my partner, and I wouldn’t let her down. I’ve attended all of the procedures. Except actually being in the surgery, but all mammograms, mri’s, biopsies, radiation therapy, etc. When the biopsy was performed the Dr told me I had to wait outside, I told my wife to get dressed. Then she got me a chair to sit in while she did the procedure.
I seem to have conflicts with most doctors, because I do a lot of research , but like I said, this is my wife.
I hope this helps…
And I pray you will be healed. This is a tough journey.

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Thank you Healing Hands. I also do endless research. I am likely going to attend the BC symposium in San Antonio next December. You can access the abstracts online from 2022. Very interesting stuff in the works.

I’m still researching the soy aspect. It’s controversial but the more I research the more it appears to be OK. My original oncologist ( who I was so happy to be working with) who is in transition to a new location , gave it the ok but an endocrinologist said only tofu! ???

Well thank you for your research findings as well as your generosity in sharing.

Hope you wife is doing well. Yes, it’s a rather traumatic journey we are on.

Blessings on the path 🌸

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@anjalima

Thank you Healing Hands. I also do endless research. I am likely going to attend the BC symposium in San Antonio next December. You can access the abstracts online from 2022. Very interesting stuff in the works.

I’m still researching the soy aspect. It’s controversial but the more I research the more it appears to be OK. My original oncologist ( who I was so happy to be working with) who is in transition to a new location , gave it the ok but an endocrinologist said only tofu! ???

Well thank you for your research findings as well as your generosity in sharing.

Hope you wife is doing well. Yes, it’s a rather traumatic journey we are on.

Blessings on the path 🌸

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You are very welcome, I’ll certainly check into the symposium. That sounds very interesting please don’t hesitate to ask, I’ll try to help.
Good luck and keep untouch

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@healinhand

I’m sorry, I’m on the west coast, in Spokane, Wa. Her oncologist told me that plant based hormones are not a problem, and he’s recommended black cohosh and soy to help with hot flashes. I also keep her vitamin d level on the high side… above 60. There’s an excellent YouTube video concerning this. I’ll attach it for you. I don’t think that there is a be all, end all drug available at this time. She has also had a depression issue for many years, and I give her St. John’s wort for that… it seems to work very well. Anytime I have a question, or want to try something new, I send him a question through the portal. He tells why/why not and gives me links to research, as he knows I spend countless hours reading. To me this is about my partner, and I wouldn’t let her down. I’ve attended all of the procedures. Except actually being in the surgery, but all mammograms, mri’s, biopsies, radiation therapy, etc. When the biopsy was performed the Dr told me I had to wait outside, I told my wife to get dressed. Then she got me a chair to sit in while she did the procedure.
I seem to have conflicts with most doctors, because I do a lot of research , but like I said, this is my wife.
I hope this helps…
And I pray you will be healed. This is a tough journey.

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@healinhand I get that you are a caring husband. Do you have an invoked proxy or release so doctors can speak to you? I am surprised that you are allowed to be so involved. Even with a mother with dementia, I had to get a legal form so I could act for her.

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@windyshores

@healinhand I get that you are a caring husband. Do you have an invoked proxy or release so doctors can speak to you? I am surprised that you are allowed to be so involved. Even with a mother with dementia, I had to get a legal form so I could act for her.

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Of course I do….

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@healinhand

Of course I do….

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I truly appreciate that you bring so much information! Grateful!

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@polianad22

I truly appreciate that you bring so much information! Grateful!

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Thank you!!!! I try to do my part. This has been a very difficult journey for us, and hers was not that “bad” apparently…. If I can help 1 person make a better, or more informed choice, I will do my best! I can’t even imagine how our legislators can mobilize the pharmaceutical companies to come up with a vaccine for Covid in such a short time, but here we are suffering at this magnitude from a disease such as this.

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