Brain not "showing me" my peripheral vision
Everyone is stumped, wanted to post and see if anyone has experienced anything like this before.
M, 33, 6'3, 155 lbs, no other health issues.
November 2021 start noticing my focal point in my vision seems to have shrunk.
Over time this continues to worsen.
I go to eye doctor and he says there is nothing wrong, change glasses. I change glasses, no affect.
Fast forward to today (July 2022), peripheral has worsened to the point that I do not even see my peripheral anymore unless I try to focus on it. There are no black spots, no missing spots, no "shady" areas, my full field of view is there, IF I focus on it and try to see it. Otherwise it is like looking through a gift wrapping tube.
It's hard to describe because it is so wierd.
The best description is as if you were daydreaming, staring off into space. You are still seeing, but you are not really "seeing" until you think about it, or something gets your attention. Then you realize you were staring. This is what my peripheral is like all the time. I have to purposely focus on it to see it. Or something shows up in my peripheral that makes me notice it. Otherwise it seems like my brain is just not showing it to me.
Some people know the feeling of standing up very fast and your vision seems to disappear for a few seconds, this is also a good description of what my peripheral looks like all the time.
My brain still notices the peripheral, and I can tell because if I am approached on the side, or a car beside me approaches in traffic, I suddenly notice it. My brain is basically seeing my full field of view, but I don't notice it unless I focus on it. As if it's not showing it to me.
It does fluctuate and gets better and worse over the coarse of days.
We have tried several eyeglass prescriptions, and several contact lens prescriptions.
An interesting observation, when I switch glasses/contacts, the fluctuations change for a few days. It may stay better or stay worse for a few more days. But other than that it continues to fluctuate, meaning that it does affect it somehow, but never fixes it.
So far, I have seen 9 ophthalmologists, 3 optometrists, 1 retinal surgeon, 2 endocrinologists, and one neuro-Opthalmologist. I have had stacks of papers of blood work, an MRI with and without contrast, several OCT scans of the eye, optic nerve, and all the stuff inside there, several prescriptions of glasses and contacts, and a thyroid ultrasound.
"We don't see anything wrong with you."
Mayo clinic was a big hope for me, since they have a team that is good at tracking down strange things.
Ophthalmology at Mayo called yesterday, "we reviewed your stacks of paperwork, we don't know either, there's nothing we can do for you."
I'm worried that this is eventually going to happen to the focal point of my vision as well if it is not figured out. Since there is nothing wrong with my eyes or optic nerves themselves, I'm beginning to lean more towards something wrong in the brain, even though the MRI came back clear.
The only other thing I might add is that I got the second dose of Pfizer in August.
Would be nice to hear some thoughts from other people that are dealing with eye issues, or maybe somebody that has had similar experiences.