Mayo Clinic Connect
Does anyone know of this. I think its rare but does exist. My neurologist does not know about this. I have compression between my c5 and c6 cervical disk and have had alot of sun damage to my skin.
Is this like notalgia paresthetica?
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Isn't that the lower extremities.
Hi I’m a sufferer who sympathizes completely with this maddening disorder. After pursuing treatment with dermatologists without success I did research on my own and found the cause (I think) for this horrible condition. I was already taking Neurontin for neuropathy. I have Sjrogrens and Mixed Connective Tissue Disorder. Noting it treated a weird skin itch also, I convinced my rheumatologist to order an x-ray which showed cervical spine problems…..long story short, this led to neurologist for MRI…he sent me for a cervical spine epidural. NO symptoms for 2 weeks….then a slow return.. This was in July and I’m due for a second on Oct 18
I’m as I said convinced this awful condition results from cervical spine inflammation. BUT saying that, the sun doesn’t help. I live in FL and try never to be in the sun.
The only treatment beside the epidural that ever helped is a steroid cream mixed with lidocaine. Provided only some relief. Promoxine (sp?) also helped somewhat. Icepacks remain the most effective. Hard to sit in meetings, restaurants, etc with them. This condition is very limiting socially. It’s made me cry, scream and have meltdowns not attractive in an adult!
I agree, it comes from the neck. I was going to tell my Dermatologist, in Maech, but I canceled the appointment. She probably would have thought that I was crazy. Sometimes lotion or cream helps or ice, or sometimes nothing helps!!
Felt compelled to reply… I stumbled to this site looking for new info on BRP (=bracchioradial pruiritis)… as it is making me go mad, mad, mad! I can totally relate to “cry, scream, meltdowns” too. It is so maddening!! For those looking for temporary relief, my go tos, here in Canada, are: Xylocaine 5% (which I think may be Lidocaine in US)… this numbs your arms (but takes an hour to take effect, i find) and Stopain!, which is a strong menthol-type roll-on cream that feels super cold… so cold that it hurts a little (but at least you don’t feel itchy). Hope this helps someone.
As for next steps, for me, I’m booking an appointment at chiropractor. Hopefully he’ll take xrays and see something? Or perhaps an “alignment” of my spine will help? I’m desperate! Keep looking for answers people!!
I have been told, by more than one Dr., that my neck is in the opposite curvature, as normal. They always ask if I had an accident. Not that I know of, although I took plenty of spills skiing. I also was accidentally poisoned, at 9 mo., and took convulsions, for hours.
I am going to consult with a Neurologist.
I am self- diagnosed, but my symptoms are so much like yours. My itching is on my upper arms. It starts with a pinch, that feels like being stabbed, with a needle, then extreme itching starts, that is impossible not to scratch. No rash, ever, but the itching for hours. It does the go to the other arm, just as badly, but not as often.I do have a bad neck, and sleep, on a water pillow. Now, I don't feel like I'm crazy!!
Welcome to Mayo Clinic Connect @sunbird461846 and @scottshere
Scott, what did you learn from your appointment with the neurologist?
Sunbird, is this the first that you've learned about brachioradial pruritus? You mention that you've self-diagnosed. Have you suggested the diagnosis to a doctor?
My wife was diagnosed with BRP bout 10 years ago. She went to a few dermatologists, an allergists and everyone referred her to a Dr in Manhattan NY. We went there and he finally diagnosed her problem as BRP.. It started on her left arm, then spread to the other arm and has slowly spread all over her body. Topical cremes did not help, were only temporary, injectkions of some well known drugs on TV. Light treatments for 2 months, acupuncture and what else. She went to a neurologist and he sent a scathing letter to the Dermatologist practically suggesting that the Dermatologist didn't know what he was talking about. My wife also has the pressure between discs 5 and 6. So we stopped going to the Dermatoloigst after 12 year s or so, sincethere is not cure for this. my wife has found that Capsazion (OTC) and a numbing crème have helped her a lot. Not a cure but gives some relief. The numbng crème we got on Amazon.. I am sure there is more to say.
I plan to, when I'm able, to see my Neuroligist. I have a feeling that nothing will really help, unless I have PT or surgery, on my neck. It is not constant itching all of the time. If I felt this itch all of the time. I'd probably be living in a padded cell!!
I have had this condition for years now and I am just figuring it out now. Self diagnosis through research. This condition for me usually starts late summer and goes through the winter. Usually I get a break in the spring and early summer. Not this year. Worst year ever! That is when I started really trying to figure out what was really causing this. I have had x-rays indicating 4 different problems with my C5 & C6 vertibrae. Previously I have seen dermatologists and had light therapy. Used lots of different creams and steriods and nothing really helped. I recently emailed my doctor about trying Gabapentin after reading that it may help. It is helping a bit, but I'm still suffering. Ice is the only thing that helps, but when you have a break out on both arms in several locations at the same time it makes it hard to ice.
Welcome, @dll0. Has it been suggested that correcting the issues with the C5 and C6 might alleviate or cure the brachioradial pruritus? Have you tried physiotherapy?
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Well my primary (shes fairly new, moved here recently ) said it's simple as a pinched nerve in the neck. I went to many dermatologists for 30 years, all worthless. I have given up. Like everything in my medical history of now 12 diseases and syndromes and 4 rare diseases several I have had to self diagnose. After years of research found this on this website.
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