Does your oncologist acknowledge that ET may cause bone pain?

ET is essential thrombocythemia it is a chronic blood cancer, it is not as a result of an accident or fall.....This was a post in Blood Cancer group of MayoClinic
I think a group that addresses orthopedic/neurological might better address your conditions.
BMB is bone marrow biopsy.

I was diagnosis with ET in December but my counts have been increasing for the last three years. I have been experiencing times that I am unable to make change, having difficulties remembering the name of a place or thing and at times are just in a fog. And get frustrated with my husband when he doesn't know what I am trying to describe, like he should be able to read my mind. I brought up my concerns to the oncologist and she doesn't feel that it is the hydrea but has only been happening since starting. Has anyone else experienced?

@andytheman
Hi Andy. I’m so sorry you had the fall. My PCP is a gerontologist and she tells me that as one ages, there is a sensory disconnect between our feet and our perception of their relationship with the floor. That seemed kind of crazy to me, but as I talk to friends and other members, this seems to be a pretty common age related issue.
I wonder if some physical therapy might be helpful for you? You might ask your doctor about it. I hope that your healing will progress. Are you interested in talking to others who are recovering from falls?

@andytheman
Ah! I see that you have found that discussion. Carry on!

Thanks for the information.
Unfortunately I went to sit on my recliner today and I was too far from the foot rest and I landed on the floor exactly where I hit the floor the 1st time as far as location in my body where I hit the floor the first time. Now my spine is disconnected between my disks. I’m in pain so I have a headache that a fractured spine can give you.
My hips, legs, back of my neck is affected and your right about the disconnect with your feet. Happens to me and I just turned 71

Hi, I have neuropathy in both feet and hands, at night time it gets really bad. Really cold feet and hands I have type 2 diabetes, which is also a symptom of. ET triple negative, not much known about that. Do you also have diabetes?

my oncologist does not acknowledge bone pain from ET. I don't have any neuropathy and no diabetes....don't know what ET triple negative is? I have ET Jak2 mutation....

ET triple negative is where you do not have any of the 3 mutations of ET. ie. Jak2 Calr and MPL there is not much information on triple negative.

I have heard of shin pain from others in ET support groups. Seems to have been more prevalent when docs were ordering big initial doses of HU. This stopped when doc's began starting patients on low doses of HU and gradually increasing if necessary.

Not sure how other clinics work this, but at my clinic, if you are taking Besremi or any oral chemo, you get consults with nurse and onco pharmacist. If you are prescribed HU, you get zippo. I got the best info from my plain ol' RiteAid pharmacist. But I had to ask.