1. < Bones, Joints & Muscles

Bone density drugs

Posted by cooper78 @cooper78, Jan 20 9:06pm

Tried actonel, evista and evenity all with side effects serious joint pain and pain in leg bone and jaw with evenity. Really need some help for what to try as bone density has deteriorated. Thank you.

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gravity3 | @gravity3 | Feb 15 6:45am
In reply to @cooper78 "Actually I think HRT is the best way to go, but being 78, my doc says..." + (show)
@cooper78

Actually I think HRT is the best way to go, but being 78, my doc says it is too risky. I had used for many years though. I am considering now prolia.

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Did your doc explain the risks she/he mentioned?

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bgl9463 | @bgl9463 | Feb 16 4:18pm
In reply to @cooper78 "Yes the heart risks!" + (show)
@cooper78

Yes the heart risks!

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I hesitate to reply- everyone is different. But, I am 84, had total hysterectomy at 48, been on HRT against medical advice. Very low dose estradiol. I’ve had several serious falls (with stitches) but no broken bones.
EVERY female on maternal side had osteoporosis- stooped, hip fractures etc. my 70 yr old first cousin diagnosed, on Prolia. I’m still Ostepenia- I have to believe it’s the HRT. Every drug has side effects. Go for it!

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vfleming | @vfleming | Feb 17 4:35pm
In reply to @gravity3 "Make sure you have done your own research before your appt." + (show)
@gravity3

Make sure you have done your own research before your appt.

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Where can you do research? I just see ads, that’s why I came to Mayo Clinic connect? Thank you

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1 reply
gravity3 | @gravity3 | Feb 18 6:27am
In reply to @vfleming "Where can you do research? I just see ads, that’s why I came to Mayo Clinic..." + (show)
@vfleming

Where can you do research? I just see ads, that’s why I came to Mayo Clinic connect? Thank you

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As you go through this site you will see many research citations. A number of those have been very helpful to me as well as those folks who are posting their experiences. Osteoboston is another great group. No money involved just top notch speakers and they make the presentations available on YouTube.

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1 reply
cooper78 | @cooper78 | Feb 18 9:46am
In reply to @gravity3 "As you go through this site you will see many research citations. A number of those..." + (show)
@gravity3

As you go through this site you will see many research citations. A number of those have been very helpful to me as well as those folks who are posting their experiences. Osteoboston is another great group. No money involved just top notch speakers and they make the presentations available on YouTube.

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This forum is excellent! I did not know OsteoBoston for info. Thank you.

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loriesco | @loriesco | Feb 19 8:34am

@cooper78 did you stay on them each for more than 2 months? I was told the side effects magically went away and they did for me! The statins were a problem, which I abandoned, but the bone meds side effects went away. My experience is that sometimes 'because we need them" it ramps up our immune system for a bit. I hope you work with an experienced specialist to guide you.

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1 reply
loriesco | @loriesco | Feb 19 8:38am
In reply to @cooper78 "Actually I think HRT is the best way to go, but being 78, my doc says..." + (show)
@cooper78

Actually I think HRT is the best way to go, but being 78, my doc says it is too risky. I had used for many years though. I am considering now prolia.

Jump to this post

I would suggest getting a different opinion. Reading the research. Its a delicate balance but seems the HRT is the way to go on top of the bone meds. "Risky" is relative, no? having your bones so soft they fracture is "risky," right? Your doctor may not be aware of the new research, which makes HRT not the risk they used to think. And women can restart or start at older ages now.

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1 reply
cooper78 | @cooper78 | Feb 19 11:17am
In reply to @loriesco "I would suggest getting a different opinion. Reading the research. Its a delicate balance but seems..." + (show)
@loriesco

I would suggest getting a different opinion. Reading the research. Its a delicate balance but seems the HRT is the way to go on top of the bone meds. "Risky" is relative, no? having your bones so soft they fracture is "risky," right? Your doctor may not be aware of the new research, which makes HRT not the risk they used to think. And women can restart or start at older ages now.

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Thank you! I have read about low dose patches designed for those with osteoporosis. I will talk to docs about this.

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1 reply
loriesco | @loriesco | Feb 19 11:52am
In reply to @cooper78 "Thank you! I have read about low dose patches designed for those with osteoporosis. I will..." + (show)
@cooper78

Thank you! I have read about low dose patches designed for those with osteoporosis. I will talk to docs about this.

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I didn't like the idea of the patches because the dosages couldn't be compounded. But for convenience it is a good idea!

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