blood pressure variability

Hi,
I'm sorry about your fluctuating blood pressures. That must be awful. I didn't have Covid but I did have high blood pressure for several years while the doctor tried many medications to get it down to normal without much luck. However, the one medication that really worked the best was Amlodipine. That was the one that got my blood pressure back to normal. I'm 79 and my blood pressure is always in the 120 region. After I first took Amlodipine I could feel the calmness coming back into my body. Everyone's different so it may not work for you. But it might be a good idea to talk to your doctor about it.
PML

Typical Long COVID symptom. Somewhat managed with Blood Pressure meds.

Yes, mine are way up ever since my two battles with civil three years ago. The physian assistants at the clinic that I use doesn't seem to be affected or care about my high BP. One day it was 235 over 180, but I felt fine. Since this all started I bought my very own BPCuff to keep track of my status.
Another funny thing is my body temperature. It's always low now. Usually around 96.7° one night it was 93°. And I felt fine, although I can't stand the outdoor temperature. Summers are way too hot and has bad affects on me. I get sick with dry heaves, dizzy,very tired, need to be under a strong and fast fan to survive.
I'm hoping to get better.
Oh, my upper teeth all cracked off at the gum line with no cavities. My molars just got loose and feel out.
Now I need to get a bunch of roots pulled and save for total upper implant piece.

Snap, caught my first infection of covid 19 over 5 years ago (with 2 further ones and 3 jabs in following 2 years) and first symptoms of high BP and HR have remained, to go on to get tilt table test of ‘postural hypotension, not POTS’ with syncope despite high BP at rest. For about 2 years on 5 simultaneous antihypertensives; the beta blocker removed after TTT showed BP plummeted to 61/40. Currently on 3 hypertensives trying to see if the 4 are in fact counter acting with each other as like you one minute BP monitor at home shows a reading on 165/80, next 95/65…too much variation to feel averaging out 3 or 4 readings gives a representative idea what is happening, yet GP surgery and cardiologist dept. average out the likes 24 hour Holter monitor and seem to be happy to average such stats. to c.130/72 which is acceptable. I’ve tried everything mentioned in Pots/ dysautonomia management sites like compression garments, hydration, even been swimming 50 mins 5x a week over last 25 months, but nothing seems to either lower BP or make it consistently high/ low etc. I self diagnosed ‘labile’ BP myself, and am trying my own ‘experiment’ slowly juggling the antihypertensives, and recording the results! For me the chopping and changing of the BP/HR is the most disabilitating of the remaining Long Covid symptoms ( including exhaustion, all over pain, and no sense of smell) as I can’t stand for very long, and walk more than a few yards….

I am having high diastolic (in upper 80s to mid 90s) with with regular systolic (120s-low 130s). Never was an issue before LC.

Hi Donald,
I'm sorry to hear about all of your problems you have been having with everything or so it seems. I'm surprised that the physicians assistants weren't concerned about your high blood pressure! It's good that you are keeping track with your own blood pressure cuff. Drinking a lot of water and/or Gatorade will help to bring a high blood pressure down. My husband had lung cancer and that worked when his blood pressure was too high.

Your low body temperature is unusual. Maybe you should do some research on the Mayo Clinic about that and about all of your issues.

I don't cope well with hot summers either! Do you have air conditioning? It certainly helps me get through the summer and I live in Washington where hot summers are only in the 80's.

That is too bad about your teeth falling out! How awful for you! I would suggest doing some extensive research before you get the implants. I've read about some rather negative side effects with implants. Have you considered dentures instead? I have had dentures since I was 16 and I'm currently 79. They work great and are very comfortable. They don't cost as much as implants.

Ask God for help with all of your problems. After all, he made you and he can fix you! Just talk to him like he's your best friend and he is! I'll say a prayer for you too.

I wish you the best!
PML

May 11, 2025 -- Yes, in response to the note on labile blood pressure since COVID. Thank you for noting it on this forum. My wonderful internist is driving me crazy having sent me multiple times to a cardiologist who has ruled out heart disease. The cardiologist said it takes 18 months to recover from COVID, and he and his colleagues have been measuring it. My last bout of COVID was January 19, 2024: My usually normal to low blood pressure is jumping all around at rest in the doctor's office -- so this is 16 months and counting. Though I feel better 16 months post-COVID, get plenty of exercise, am well hydrated, sleep well, and eat with nutritional insight, I still have occasional unexplained bouts of fatigue which I sleep off and feel better. My internist sent me for baseline tests on everything to mark improvement from there. Note: A pulmonologist might tell you that you suddenly have asthma or COPD when you never have had before, there is no family history, you aren't obese. For some reason some specialists do not suggest that this is related to post-COVID syndrome. For example, I had to suggest it to the pulmonologist, quoting the cardiologist. At the same time, my internist told ALL his patients to stop drinking any alcohol at all, even his moderate drinkers who drink less than one alcoholic beverage a week. He said the effects are cumulative over a lifetime and negative. (He said specifically that the French idea of it being healthy to drink a glass of wine every day with dinner is WRONG. Period.) Since no one has been through a world-wide pandemic before, feedback to/from our doctors, and shared experiences among ourselves seems crucial to me, plus I love knowing that we are moving science forward as a "post-COVID cohort," discovering more about genomic factors, as we go. Good luck, everyone.

Drs.do seem to get ideas that are totally unfounded re Long Covid: I am over 3 years since last had Covid-19 ( 3rd infection , and 3 jabs) and the high BP/HR and breathlessness has never improved…so long way past the 18 months. I don’t drink…probably had no more than 10 nominal drinks in the 5 years and that includes two weddings of sons, various Xmas and new year celebrations! I even swim laps 50 mins 5x a week and that consistent exercise has not altered readings…..