Blood Clots from Chemo?

Ok. I’m supposed to be getting SBRT radiation this week. My last treatment was in October. I’m also looking at histotripsy and meeting with a dr about it. I like the fact that if you get a lesion or tumor in nearly the same area that you can zap it again with histotripsy. I see pulmonologist today to see if I’m a candidate for Naliri. I switched oncologists and am back with my Hoag oncologist who has a patient who developed interstitial lung disease due to Naliri. She said it’s not discussed much amongst the medical community, but it can happen if you have a history anyways of interstitial lung disease (ILD) which I somehow developed a few years ago. I’ll post more about histotripsy after visiting the dr who does this procedure.

@dalegantous
I am on Naliri now if I can answer any questions. Of course, each of us is unique so my side effects could be different than yours.
So far, it is knocking my numbers down in a big way.

Oh that's good to hear @gamaryanne! I hope it continues to do so for you. I'm assuming the side effects will be worse than Gemcitabene/abraxane?

I had a very easy time with gem/abraxane. Perhaps because they took of the abraxane early(?)
Naliri side effects do linger longer. Mostly fatigue, loose bowels, and strange taste in my mouth. It also seems to create phlegm. Days4-6 are usually crash days so I do plan around them. I have taken Claritin a few times since the phlegm acts like an allergy. Some do take Imodium I haven’t needed to resort to that. Just finished 5th round.

My husband is on round 4 of Gem/Cap chemo regime . He has had two separate blood clots in his for arms -both superficial . He was already on Elequis ( for a long standing hx if DVTs to his legs ) . This cancer chemo journey has many twists and turns

It sure does! How will they get rid of your husband's clots? Maybe they need to switch meds?

Well it seems that his low platelets make additional treatment difficult as well. The body is such a connected machine really . So the answer was to hold the chemo and repeat the doppler (the Ultra sound they measure the area with ). which shows it is now smaller . He also sees it is much less read or sore. Now back to chemo - round 4 with fingers crossed once again. Who knows what this round will bring .