Blood clot following pacemaker insertion?

Posted by kathyhg @kathyhg, Dec 17, 2020

Hi, I am new to this forum but a regular on another forum which has been so helpful with information and so I thought I’d see if anyone can relate to my experience.

I got a pacemaker in December 2011 and a blood clot in my subclavien artery approximately 14 months later – which was manifested by a swollen left arm. At the time, my physician said that the blood clot originated in the artery because of the hardware and it was slow growing, which is why it took 14 months to cause the symptoms in my left arm. I was on warfarin for 6 months to dissolve the clot and have been on ASS 81 mg since then.

I wonder if anyone else has had this experience? I’ve recently seen a hematologist who was not familiar with this kind of situation so I’m second guessing myself. At the time that i got the blood clot, i recall reading that it isn’t uncommon for someone to get a blood clot after pacemaker insertion because of the hardware (foreign object in the artery). I’m wondering if I should see an electrophysiologist? A regular cardiologist?

I appreciate that no one can really give advice here but it would be helpful to know if this has happened to others and what was the treatment/care plan.

Thanks in advance,

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@kathyhg Hi, Kathy I don't have anything to add post earlier but wanted to just say Hi. I had a pacemaker for about 10 years prior to my transplant and didn't have a clot for that reason but did have clots for the transplant and they only did aspirin, which I still am on, and the clots per an ultrasound did resolve about 6 months or so later.

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