Bladder ureteral obstruction/stricture

Posted by jimb1950 @jimb1950, Jul 29, 2020

Anyone else have bladder/urethra constrictor problems? Been dealing with this past 7 mo, now have Supra pubic cath in for past 6 weeks, see specialist next week for game plan. I am completely scarred over. Just wondering what sort of procedures others have had to rectify this problem?

I had severe restrictions and was put on Flomax, 400 mg ibuprofen twice a day and AZO uninary tract health maximum strength, which is an over the counter drug. Now no longer have blockage but need to urinate every 1 to 1 1/2 hours. And there is an urgency when I have to urinate so need to be close to a bathroom at all times.

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@wrig1jam

I had severe restrictions and was put on Flomax, 400 mg ibuprofen twice a day and AZO uninary tract health maximum strength, which is an over the counter drug. Now no longer have blockage but need to urinate every 1 to 1 1/2 hours. And there is an urgency when I have to urinate so need to be close to a bathroom at all times.

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Hi, Jim @wrig1jam. I have just entered diagnosis of similar urinary problems, and as soon as I get my situation clarified, I'll be back with you and share what I can. In the past, Flomax was a prescription in connection with benigh prostatic hyperplasia (BPH), which I took far too long awaiting a decision to undergo TURP to cut down the size of my prostate. That was 12 years ago. I'll be visiting with my Urologist next month to see how my bladder, prostate, and urethra are doing now, particularly because of frequent urination in less than total amounts. Hope we can share good news for both of us soon. Martin

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@jakedduck1

@jackpine
My Dad was a Quadriplegic and used indwelling catheters for quite awhile but later switched to condom type.
He developed bladder cancer believed to be a result of chronic irritation from both catheter use and infections.
If I were in your situation I’d avoid long-term use of indwelling catheters considering your age.
Has your urologist addressed the possibility of irritation from catheters and infection. Not that my opinion matters but I don’t believe it’s a question of if but when.
Take care,
Jake

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Leonard, thanks for sharing this story about your dad. I'm with you re: indwelling catheters. The uro who likes them is less than useless; after the staff at this particular hospital failed three times to get me fitted properly with a catheter that didn't leak, I could see it was a losing proposition. I'm back on pads and condoms. Actually am also trying Pelvic Floor Therapy, in a last ditch effort to avoid an AUS.

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@jackpine
I believe your wise trying to avoid surgery and in dwelling catheters. I suppose I’m overly cautious but in your situation primarily because of your age but potentially other issues as well. Environmental factors, co-morbidities, medical procedures which likely will increase with age and may increase risks/outcome. I seem to always be the fly in the ointment.” I don’t like always being so negative but there are two sides to the story and you/we as patients are not receiving full disclosure of all the facts from both sides. I resent how doctors often spout off all the benefits and conceal potential risks regardless of how unlikely or rare they are. Well, this seems to be more of a rant so I better knock it off.
I hope your situation turns out for the best and good luck for now and in the future and don’t fear being devils advocate.
Take care,
Jake

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@jakedduck1

@jackpine
I believe your wise trying to avoid surgery and in dwelling catheters. I suppose I’m overly cautious but in your situation primarily because of your age but potentially other issues as well. Environmental factors, co-morbidities, medical procedures which likely will increase with age and may increase risks/outcome. I seem to always be the fly in the ointment.” I don’t like always being so negative but there are two sides to the story and you/we as patients are not receiving full disclosure of all the facts from both sides. I resent how doctors often spout off all the benefits and conceal potential risks regardless of how unlikely or rare they are. Well, this seems to be more of a rant so I better knock it off.
I hope your situation turns out for the best and good luck for now and in the future and don’t fear being devils advocate.
Take care,
Jake

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@jakedduck1 , @jackpine I am personally glad I have never started indwelling catheters. I use a very stiff catheter made in France, I believe. It is stiff like an O2 tube. My sphincter above the prostate is tougher and stiffer than the miner's boots I used to wear. Takes a good shove to get the cath in, so I bleed a lot. But I prefer that to the indwelling. And I have used them for 10 years, and I am still alive., sometimes up to a 1/8 cup of clots and blood a day. The sphincter is tough because it has been invaded by fibrils from Gelsolin and lost nerve control through LGMD4.

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@oldkarl

@jakedduck1 , @jackpine I am personally glad I have never started indwelling catheters. I use a very stiff catheter made in France, I believe. It is stiff like an O2 tube. My sphincter above the prostate is tougher and stiffer than the miner's boots I used to wear. Takes a good shove to get the cath in, so I bleed a lot. But I prefer that to the indwelling. And I have used them for 10 years, and I am still alive., sometimes up to a 1/8 cup of clots and blood a day. The sphincter is tough because it has been invaded by fibrils from Gelsolin and lost nerve control through LGMD4.

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Thanks for the info. Please tell me more about this French catheter. But it sounds like you're describing an indwelling. That's a lot of blood.

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@jakedduck1

@jackpine
I believe your wise trying to avoid surgery and in dwelling catheters. I suppose I’m overly cautious but in your situation primarily because of your age but potentially other issues as well. Environmental factors, co-morbidities, medical procedures which likely will increase with age and may increase risks/outcome. I seem to always be the fly in the ointment.” I don’t like always being so negative but there are two sides to the story and you/we as patients are not receiving full disclosure of all the facts from both sides. I resent how doctors often spout off all the benefits and conceal potential risks regardless of how unlikely or rare they are. Well, this seems to be more of a rant so I better knock it off.
I hope your situation turns out for the best and good luck for now and in the future and don’t fear being devils advocate.
Take care,
Jake

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Yes and there could have been ways to possibly head off the TUR surgery which created this severe incontinence. That's why I'm looking at Mayo and Hopkins.

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@jackpine , The cath I use is made by Convatec Limited. The first address I have is First Avenue, Deeside Industrial Park, Deeside, Flintshire, CH5, 2NU, UK, I guess. I also have an address as Unomedical, A/S` Aaholmvej 1-3, Osted, 4320 LEJRE DENFARK. So I guess they may be Danish. Manufactured for Convatec Inc, Greensboro NC 27409 USA. The cath is called the "GC-Glide Hydrophilic Intermittent Urinary Catheter. I get mine from 180 Medical.com. As I said, I use about 6-7 per day, around 200/month. The 180 people are very regular and accurate. There are 30 in a box, and I use the Male CH14. Yes, it is a lot of blood, but I also use North Shore large pads because they handle both the fecal leakage and penile bleeding. And I use an extra disposable pad under me at night. I get that at Walmart or Amazon. "GC" is a trade mark of Unomedical a/s. My trouble is that all my internals are infested with protein fibrils from Gelsolin, plus Fukutin Limb Girdle Muscular Dystrophy Type 4. But when I have to spend time in the hospital or similar, I have to take my own catheters with me because the hospital only provides the indwelling stuff that I do not want to start. I don't have much longer to go, anyway, so I might as well be as comfortable as I can. And all we have around here are first-aid stations within 100 miles.

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@oldkarl

@jackpine , The cath I use is made by Convatec Limited. The first address I have is First Avenue, Deeside Industrial Park, Deeside, Flintshire, CH5, 2NU, UK, I guess. I also have an address as Unomedical, A/S` Aaholmvej 1-3, Osted, 4320 LEJRE DENFARK. So I guess they may be Danish. Manufactured for Convatec Inc, Greensboro NC 27409 USA. The cath is called the "GC-Glide Hydrophilic Intermittent Urinary Catheter. I get mine from 180 Medical.com. As I said, I use about 6-7 per day, around 200/month. The 180 people are very regular and accurate. There are 30 in a box, and I use the Male CH14. Yes, it is a lot of blood, but I also use North Shore large pads because they handle both the fecal leakage and penile bleeding. And I use an extra disposable pad under me at night. I get that at Walmart or Amazon. "GC" is a trade mark of Unomedical a/s. My trouble is that all my internals are infested with protein fibrils from Gelsolin, plus Fukutin Limb Girdle Muscular Dystrophy Type 4. But when I have to spend time in the hospital or similar, I have to take my own catheters with me because the hospital only provides the indwelling stuff that I do not want to start. I don't have much longer to go, anyway, so I might as well be as comfortable as I can. And all we have around here are first-aid stations within 100 miles.

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Thanks for the info, I'll look into it. And good health to you!

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