Surgery”blue light” biopsy on April 24. Good news: I get a two-fer. They will do some TURP work which is needed (again!) as well as cancer cell hunting. Best case: the dye lights up cells in situ, we do some more chemo. Worst case: they find nothing, yet bad cells still show up in urine and they determine I am a Martian.
Immune therapy did not work at all, been thru two years chemo, and that left me clear for only a year. Dye biopsy surgery will reveal if it’s still in situ, as it has always been thus far.
Hi @cairo20, I'm tagging @kathrynmc@sandielegal@pameladstone, who are women with experience with bladder cancer. I'm not sure if any of them had neobladder surgery or if they have experience with incontinence to share.
I'm sorry that you're still dealing with significant incontinence. Daytime incontinence can take 6-12 months to improve. Were pelvic floor exercises suggested for you?
Lest I sound to negative, I have few symptoms, otherwise good health, met a lot of terrific people in the cancer fight, and have not been unable to do things. I am not running the high hurdles, but then I never did😮
Yes
Started them immediately after catheter was removed. Seeing a 2nd Physical Therapist who specializes in Pelvic Floor exercises.
I’m still hopeful but it’s been 6 months and it doesn’t seem to make any difference 😞
Immune therapy did not work at all, been thru two years chemo, and that left me clear for only a year. Dye biopsy surgery will reveal if it’s still in situ, as it has always been thus far.
Hi @cairo20, I'm tagging @kathrynmc@sandielegal@pameladstone, who are women with experience with bladder cancer. I'm not sure if any of them had neobladder surgery or if they have experience with incontinence to share.
I'm sorry that you're still dealing with significant incontinence. Daytime incontinence can take 6-12 months to improve. Were pelvic floor exercises suggested for you?
Yes
Started them immediately after catheter was removed. Seeing a 2nd Physical Therapist who specializes in Pelvic Floor exercises.
I’m still hopeful but it’s been 6 months and it doesn’t seem to make any difference 😞
@bruceb, as you alluded to, your treatment options will depend on several factor like if it is in situ or not, treatments you've already had, the grade of the cancer, when it comes back, your preferences, etc.
The good news is that there are a number of options available from surgery to immunotherapy and more. You may find this article helpful to prepare for your upcoming conference with your cancer team:
- Treatments for recurrent bladder cancer https://cancer.ca/en/cancer-information/cancer-types/bladder/treatment/recurrent
What diagnostic tests have you had or will be having?
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Surgery”blue light” biopsy on April 24. Good news: I get a two-fer. They will do some TURP work which is needed (again!) as well as cancer cell hunting. Best case: the dye lights up cells in situ, we do some more chemo. Worst case: they find nothing, yet bad cells still show up in urine and they determine I am a Martian.
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2 Reactions@bruceb, any update from the biopsy? How are you doing?
I did not have bladder cancer personally, my sister did.
Lest I sound to negative, I have few symptoms, otherwise good health, met a lot of terrific people in the cancer fight, and have not been unable to do things. I am not running the high hurdles, but then I never did😮
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1 ReactionCancer is a journey; mine is in the 7th year.
6 years ago, blood in urine led to my discovery
Immune therapy did not work at all, been thru two years chemo, and that left me clear for only a year. Dye biopsy surgery will reveal if it’s still in situ, as it has always been thus far.
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1 ReactionYes
Started them immediately after catheter was removed. Seeing a 2nd Physical Therapist who specializes in Pelvic Floor exercises.
I’m still hopeful but it’s been 6 months and it doesn’t seem to make any difference 😞
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Hug
1 ReactionHow were the cancer cells detected?
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1 Reaction@bruceb, as you alluded to, your treatment options will depend on several factor like if it is in situ or not, treatments you've already had, the grade of the cancer, when it comes back, your preferences, etc.
The good news is that there are a number of options available from surgery to immunotherapy and more. You may find this article helpful to prepare for your upcoming conference with your cancer team:
- Treatments for recurrent bladder cancer https://cancer.ca/en/cancer-information/cancer-types/bladder/treatment/recurrent
What diagnostic tests have you had or will be having?
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Like -
Helpful -
Hug
1 Reaction