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Bladder Cancer Group: Introduce yourself and connect with others

Posted by Colleen Young, Connect Director @colleenyoung, May 17, 2024

Welcome to the Bladder Cancer support group on Mayo Clinic Connect.

This is a welcoming, safe place where you can meet people living with bladder cancer or caring for someone with bladder cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

Feel free to browse the topics, use the group search to find answers to your questions or start a new discussion.

Pull up a chair. Let’s start with introductions.

What type of bladder cancer were you diagnosed with? What treatments have you had? How are you doing?

Interested in more discussions like this? Go to the Bladder Cancer Support Group.

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dianeoh26 | @dianeoh26 | 1 day ago

Diagnosed with NIMBC.
I had one recurrence of non-invasive bladder cancer within three months of a clean cystoscopy. Could anyone tell me how often this type of cancer returns?

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vlewis | @vlewis | 1 hour ago
In reply to @vlewis "My husband had Muscle Invasive Badder Cancer. He had immunotherapy, chemo and radiation. He has been..." + (show)
Profile picture for vlewis @vlewis

My husband had Muscle Invasive Badder Cancer. He had immunotherapy, chemo and radiation. He has been a year out cancer free, However. He has constant burning to urinate, and even when he isn't urinating. He urinates 14- 20 times a night. at least it is better than when he was going 45 times a night. or every 5 minutes. He has tried all kinds of meds to help with this.

Has anyone else had this problem and found a way to relieve the constant burning pain?

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@vlewis - I have read all that everyone is going through or has gone through, I can really understand, and feel for you... But I didn't see anyone having the issue of the constant burning after the radiation treatment on the bladder. It has been a year and a half since his last radiation treatment. Does anyone have or had this issue? If so did you find anything that helped? Because everything that has been prescribed to him so far has not worked.

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