Bladder Cancer Group: Introduce yourself and connect with others
Welcome to the Bladder Cancer support group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with bladder cancer or caring for someone with bladder cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.
Feel free to browse the topics, use the group search to find answers to your questions or start a new discussion.
Pull up a chair. Let’s start with introductions.
What type of bladder cancer were you diagnosed with? What treatments have you had? How are you doing?
Interested in more discussions like this? Go to the Bladder Cancer Support Group.
You've been in my thoughts since you posted. Any updates on treatment options?
Hi @crtrucker, sounds like and @scott232 may both be on a similar timeline with a very recent diagnosis.
Crtucker, I can imagine you're worried. This is all so new. Have you learned more about the grade and stage of your cancer? Have you discussed the treatment plan yet with your cancer doctors? How are you doing?
I was diagnosed with bladder cancer about 4 years ago and tried to beat it with multiple Turbt, chemo and BCG but couldn't get rid of it. Never had muscle involvement but decided I needed to have the bladder removed. I was under the care of Mayo and I decided I wanted a neo bladder procedure. Best decision I ever made. Two years post surgery and everything is good.
Anyone thinking about a neo bladder, please reach out.
just diagnost with invasive bladder cancer in the muscles of the bladder really worried thanks
Thank you.
Hi Scott, that's exactly what the doctors did to me when I was diagnosed in '21.
Thanks much
Mayo just scheduled me for a 2nd turbt to determine how far the tumor has penetrated and identify if there is any invasion in the muscle layer, since it was had to tell when debulking a large tumor the first time. From what I have read this is recommended often to differentiate NMIBC from MIBC.
Is it usual to have 2nd Turbt 4 weeks1st turbt surgery
Hi I’m Scott. Diagnosed with cancer several weeks ago. Had 1st surgery where tumor removed from top of bladder. Cancer was more aggressive type. Chemo done in recovery
2nd staging set for mid June to see if cancer has progressed in wall or muscle.