1. < Bladder Cancer

Bladder Cancer: High grade

Posted by barneythe2nd @barneythe2nd, Apr 21, 2018

I have been diagnosed with high grade bladder cancer, with recommended bladder removal. I would like to know whether the odds of survival are high enough without such drastic surgery, which has been defined as quite risky.

Interested in more discussions like this? Go to the Bladder Cancer Support Group.

ronzee50 | @ronzee50 | Jul 3 1:14pm
In reply to @skybolt "Hi, can you tell me how long after chemo did you have your surgery? Our oncologist..." + (show)
@skybolt

Hi, can you tell me how long after chemo did you have your surgery? Our oncologist told us 12-14 weeks recovery and the surgeon told us 4 weeks. Thanks

Jump to this post

My oncologist and my surgeon were agreed that 6 weeks would be enough time between the two.

REPLY
ronzee50 | @ronzee50 | Jul 2 12:02pm
In reply to @jmhope "Thank you so much for the response. It’s all quite over whelming and not sure what..." + (show)
@jmhope

Thank you so much for the response. It’s all quite over whelming and not sure what to expect . I’ll have a journal I write everything down in. Was it long before a treatment plan was made? He’s already had a TURBT. Had an mri Thursday and tomorrow has a PET Scan . So I’m hoping with those being done prior, this we’ll help them .

Jump to this post

My doctors pretty much went for bladder removal from the beginning due to the invasive, high grade nature of my cancer. I only had to wait until I was strong enough after my chemo for the surgery.

REPLY
vax20071 | @vax20071 | Jun 30 2:22pm
In reply to @vax20071 "Adstiladrin is for non invasive" + (show)
@vax20071

Adstiladrin is for non invasive

Jump to this post

c, is a gene therapy used to treat high-risk, Bacillus Calmette-Guérin (BCG)-unresponsive non-muscle invasive bladder cancer (NMIBC) with carcinoma in situ (CIS) with or without papillary tumors

REPLY
vax20071 | @vax20071 | Jun 30 2:21pm
In reply to @vax20071 "How did it go, just been diagnosed with T2 highly invasive muscle cancer and have been..." + (show)
@vax20071

How did it go, just been diagnosed with T2 highly invasive muscle cancer and have been recommended bladder removal, which I’d like to avoid

Jump to this post

Adstiladrin is for non invasive

REPLY
1 reply
jowilliams1 | @jowilliams1 | Jun 30 11:11am
In reply to @skybolt "Hi, can you tell me how long after chemo did you have your surgery? Our oncologist..." + (show)
@skybolt

Hi, can you tell me how long after chemo did you have your surgery? Our oncologist told us 12-14 weeks recovery and the surgeon told us 4 weeks. Thanks

Jump to this post

I had a little over a month between my last chemo treatment and then surgery. The doctors wanted to give me a little time between the two to gain some strength and give my body some time to recover from chemo. That made perfect sense.

REPLY
skybolt | @skybolt | Jun 30 10:33am
In reply to @jowilliams1 "Every location is different on turn around time. Im in the Cincinnati area and did not..." + (show)
@jowilliams1

Every location is different on turn around time. Im in the Cincinnati area and did not receive care at Mayo. Two weeks after my turbt I had a port put in and the following week started chemo. My turn around was very quick thankfully. I hope things go well tomorrow!!

Jump to this post

Hi, can you tell me how long after chemo did you have your surgery? Our oncologist told us 12-14 weeks recovery and the surgeon told us 4 weeks. Thanks

REPLY
2 replies
skybolt | @skybolt | Jun 30 10:28am
In reply to @chucklesg "I am happy to share my personal experiences. Also, I belong to an Ostomy Support Group..." + (show)
@chucklesg

I am happy to share my personal experiences. Also, I belong to an Ostomy Support Group here and there may well be one close to you. Others at these groups also are very helpful.

Jump to this post

Hi Chuck, my husband is almost done with neoadjunct chemotherapy and is now facing surgery for MIBC T2. We are really leaning towards the ileal conduit because it seems less complications and less kidney problems. Can you link me to the ostomy groups? How did you do the early days after surgery? Thank you in advance.

REPLY
jowilliams1 | @jowilliams1 | Jun 29 1:36pm
In reply to @edge41 "I was diagnosed with high grade bladder cancer that is in the muscle wall and close..." + (show)
@edge41

I was diagnosed with high grade bladder cancer that is in the muscle wall and close to the prostate. Both have to be removed along with two lymph nodes.
The cancer is aggressive so I will not chance it.

Jump to this post

Sorry to hear this but I believe you're wise to just move forward and get those organs out of there. I was muscle invasive aggressive as well. I had a RC in November. Things are looking good so far for me. All my best to you!!

REPLY
djr5 | @djr5 | Jun 28 2:48pm
In reply to @deb2024 "Did you have side effects from the Adstiladrin?" + (show)
@deb2024

Did you have side effects from the Adstiladrin?

Jump to this post

Yes, I had fever for several days following each treatment, muscle ache and now become fatigued more easily.

REPLY
edge41 | @edge41 | Jun 28 2:07pm

I was diagnosed with high grade bladder cancer that is in the muscle wall and close to the prostate. Both have to be removed along with two lymph nodes.
The cancer is aggressive so I will not chance it.

REPLY
1 reply
View MoreView Less
Please sign in or register to post a reply.