Big 3 Daily? What’s your dosage?

Posted by BlueSplashGirl/ Carolyn @bluesplashgirl, Apr 18 6:48am

Hi Everyone,
I have seen dosage posts about 3x a week, etc. I am on a high dosage daily. Ethambutol 1000mg, rifampin 600mg, azithromycin 250mg. Any comments, questions, concerns regarding this? If I Google the meds I get the typical scary Google stuff. Thank you and I hope everyone is staying home, safe and well.

@bluesplashgirl The dosage of ethambutol is based on weight. Rifampin 600 is typical. The azithromycin dose is usually 500, but since you said “daily” I am guessing your doctor decided on 250 based on risks and benefits. I was told by one of my UMass doctors that the ethambutol dose depends also on severity of the disease . When we lived in Tennessee I was always on 15/kg of body weight. Now I am on 25/kg of body weight. I hope that answers at least one question for you. irene5

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@bluesplashgirl Carolyn – I don't think your dosage is atypical. I was originally on 3X/week with the same doses except 500mg of azith. Then, as my MAC was not responding after a year and my symptoms were not improving, the ID doc increased it to daily for 6 months without reducing dosages. My lungs finally showed improvement, but my body HATED the meds, and the MAC was still in my culture – we decided together in consultation with pulmonology & NJH, to stop and see what happens. I use levalbuterol and 7% saline nebs and airway clearance, we were to check again in 4 months to see how it's going, but Covid…now it's a waiting game as the clinic is closed to all but the most urgent cares, so I shall see him and the pulmonologist in June.
Exercising the utmost caution to stay safe – not only for myself, but my at-risk husband as well.
Sue

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@sueinmn

@bluesplashgirl Carolyn – I don't think your dosage is atypical. I was originally on 3X/week with the same doses except 500mg of azith. Then, as my MAC was not responding after a year and my symptoms were not improving, the ID doc increased it to daily for 6 months without reducing dosages. My lungs finally showed improvement, but my body HATED the meds, and the MAC was still in my culture – we decided together in consultation with pulmonology & NJH, to stop and see what happens. I use levalbuterol and 7% saline nebs and airway clearance, we were to check again in 4 months to see how it's going, but Covid…now it's a waiting game as the clinic is closed to all but the most urgent cares, so I shall see him and the pulmonologist in June.
Exercising the utmost caution to stay safe – not only for myself, but my at-risk husband as well.
Sue

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thanks for the info. I also neb 7% twice a day. I hope if I just bare with it I wi get rid of it sooner than 18 months. Best to all and stay safe.

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