@bluesplashgirl Carolyn – I don't think your dosage is atypical. I was originally on 3X/week with the same doses except 500mg of azith. Then, as my MAC was not responding after a year and my symptoms were not improving, the ID doc increased it to daily for 6 months without reducing dosages. My lungs finally showed improvement, but my body HATED the meds, and the MAC was still in my culture – we decided together in consultation with pulmonology & NJH, to stop and see what happens. I use levalbuterol and 7% saline nebs and airway clearance, we were to check again in 4 months to see how it's going, but Covid…now it's a waiting game as the clinic is closed to all but the most urgent cares, so I shall see him and the pulmonologist in June.
Exercising the utmost caution to stay safe – not only for myself, but my at-risk husband as well.