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BlueSplashGirl/ Carolyn (@bluesplashgirl)

Big 3 Daily? What’s your dosage?

MAC & Bronchiectasis | Last Active: 1 day ago | Replies (8)

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@sueinmn

@bluesplashgirl Carolyn – I don't think your dosage is atypical. I was originally on 3X/week with the same doses except 500mg of azith. Then, as my MAC was not responding after a year and my symptoms were not improving, the ID doc increased it to daily for 6 months without reducing dosages. My lungs finally showed improvement, but my body HATED the meds, and the MAC was still in my culture – we decided together in consultation with pulmonology & NJH, to stop and see what happens. I use levalbuterol and 7% saline nebs and airway clearance, we were to check again in 4 months to see how it's going, but Covid…now it's a waiting game as the clinic is closed to all but the most urgent cares, so I shall see him and the pulmonologist in June.
Exercising the utmost caution to stay safe – not only for myself, but my at-risk husband as well.
Sue

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Replies to "@bluesplashgirl Carolyn - I don't think your dosage is atypical. I was originally on 3X/week with..."

thanks for the info. I also neb 7% twice a day. I hope if I just bare with it I wi get rid of it sooner than 18 months. Best to all and stay safe.

Hi Sue, What were your results after the 4 month check in? I am waiting for a negative sputum but if it isn't then I need to change course.
Thank you!
Carolyn

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