My teenage son and Bicuspid Aortic Valve

Posted by michell @michell, May 21, 2018

My son is now 13 and we have been monitoring this health problem (Bicuspid aortic valve) since about 4 tears of age. We were told by his cardiologist that we would need to start having echo's done every six months when he reached high school, because this is when boys tend to grow quite a bit; however, my son has grown about 4 inches in 6 months. He is growing so rapidly that he now has Osgood Schlatters Disease. Is anyone familiar with these and if so please let me know your experiences please.

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Osgood Schlatter’s Disease is common in young people. With physical activity the tendon from kneecap to tibia rubs over the bone with movement and the top of the tibia becomes painful, inflamed and swollen. It is not a serious condition- it will calm down. Icing and rest helps as well as anti inflammatory medications.

REPLY

Thank you, @astaingegerdm.

Welcome to Connect, @michell,

I'd like to introduce you to a few members who've shared their experiences with bicuspid aortic valve. Please meet @dixitworld @robaz @kkraeger @ch246cf10 @hollyn and @joannenz. You may also wish to view these discussions on Connect:
– AsktheMayoMom about Pediatric Congenital Heart Defects https://connect.mayoclinic.org/webinar/facebook-live-askthemayomom-about-pediatric-congenital-heart-defects/
– Regurgitating Bicuspid Aortic Valve https://connect.mayoclinic.org/discussion/regurgitating-bicuspid-aortic-valve/
– Congestive Heart Failure in young people https://connect.mayoclinic.org/discussion/congestive-heart-failure-in-young-people/

Here is some information from Mayo Clinic about Osgood Schlatter’s Disease: https://www.mayoclinic.org/diseases-conditions/osgood-schlatter-disease/symptoms-causes/syc-20354864

@michell, does your son participate in sports that involve running or jumping? Have you tried any at-home treatments? May I also ask if his cardiologist is concerned with regard to this growth spurt?

REPLY
@kanaazpereira

Thank you, @astaingegerdm.

Welcome to Connect, @michell,

I'd like to introduce you to a few members who've shared their experiences with bicuspid aortic valve. Please meet @dixitworld @robaz @kkraeger @ch246cf10 @hollyn and @joannenz. You may also wish to view these discussions on Connect:
– AsktheMayoMom about Pediatric Congenital Heart Defects https://connect.mayoclinic.org/webinar/facebook-live-askthemayomom-about-pediatric-congenital-heart-defects/
– Regurgitating Bicuspid Aortic Valve https://connect.mayoclinic.org/discussion/regurgitating-bicuspid-aortic-valve/
– Congestive Heart Failure in young people https://connect.mayoclinic.org/discussion/congestive-heart-failure-in-young-people/

Here is some information from Mayo Clinic about Osgood Schlatter’s Disease: https://www.mayoclinic.org/diseases-conditions/osgood-schlatter-disease/symptoms-causes/syc-20354864

@michell, does your son participate in sports that involve running or jumping? Have you tried any at-home treatments? May I also ask if his cardiologist is concerned with regard to this growth spurt?

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The last echo we had done, his cardiologist stated we really need to follow him closely during growth spurts, but when I call to see if he should be seen sooner due to how much he's grown, they said to just wait for next scheduled appt. Mind you, his regular cardiologist has retired. He is also experiencing more chest tightness with activity

REPLY
@kanaazpereira

Thank you, @astaingegerdm.

Welcome to Connect, @michell,

I'd like to introduce you to a few members who've shared their experiences with bicuspid aortic valve. Please meet @dixitworld @robaz @kkraeger @ch246cf10 @hollyn and @joannenz. You may also wish to view these discussions on Connect:
– AsktheMayoMom about Pediatric Congenital Heart Defects https://connect.mayoclinic.org/webinar/facebook-live-askthemayomom-about-pediatric-congenital-heart-defects/
– Regurgitating Bicuspid Aortic Valve https://connect.mayoclinic.org/discussion/regurgitating-bicuspid-aortic-valve/
– Congestive Heart Failure in young people https://connect.mayoclinic.org/discussion/congestive-heart-failure-in-young-people/

Here is some information from Mayo Clinic about Osgood Schlatter’s Disease: https://www.mayoclinic.org/diseases-conditions/osgood-schlatter-disease/symptoms-causes/syc-20354864

@michell, does your son participate in sports that involve running or jumping? Have you tried any at-home treatments? May I also ask if his cardiologist is concerned with regard to this growth spurt?

Jump to this post

He also normally plays baseball every year; however, this year he said he just can't do it because of the pain in his knees (legs) and back.

REPLY
@kanaazpereira

Thank you, @astaingegerdm.

Welcome to Connect, @michell,

I'd like to introduce you to a few members who've shared their experiences with bicuspid aortic valve. Please meet @dixitworld @robaz @kkraeger @ch246cf10 @hollyn and @joannenz. You may also wish to view these discussions on Connect:
– AsktheMayoMom about Pediatric Congenital Heart Defects https://connect.mayoclinic.org/webinar/facebook-live-askthemayomom-about-pediatric-congenital-heart-defects/
– Regurgitating Bicuspid Aortic Valve https://connect.mayoclinic.org/discussion/regurgitating-bicuspid-aortic-valve/
– Congestive Heart Failure in young people https://connect.mayoclinic.org/discussion/congestive-heart-failure-in-young-people/

Here is some information from Mayo Clinic about Osgood Schlatter’s Disease: https://www.mayoclinic.org/diseases-conditions/osgood-schlatter-disease/symptoms-causes/syc-20354864

@michell, does your son participate in sports that involve running or jumping? Have you tried any at-home treatments? May I also ask if his cardiologist is concerned with regard to this growth spurt?

Jump to this post

Are the cardiologists aware that he has more chest tightening now? To me this sounds like a new symptom that should be evaluated sooner than the next appointment.

REPLY
@astaingegerdm

Osgood Schlatter’s Disease is common in young people. With physical activity the tendon from kneecap to tibia rubs over the bone with movement and the top of the tibia becomes painful, inflamed and swollen. It is not a serious condition- it will calm down. Icing and rest helps as well as anti inflammatory medications.

Jump to this post

My son had it during the time of rapid growth when he was in early teens. It passed. Used to be bed rest for a long time, but he did fine treating the symptoms of pain and it pretty much went away.

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