Any positive stories about Benzo tapering?

Posted by sears @sears, Nov 9, 2019

Would love to hear some positive stories from people whom have tapered off benzos. Positive only please. Give me some hope. No horror stories! I need some encouragement!

I would try to visit with your primary care physician to discuss your plan to taper off medication. If I’m not mistaken Benzodiazepines, like alcohol, can be very dangerous to taper off of. Just maybe something to consider.

REPLY
@jeffbomb

I would try to visit with your primary care physician to discuss your plan to taper off medication. If I’m not mistaken Benzodiazepines, like alcohol, can be very dangerous to taper off of. Just maybe something to consider.

Jump to this post

Thanks @jeffbomb for your input. I read what can happen to you when tapering benzos too fast. You can have a seizure, heart racing, irritable, not able to do things, plus more.

REPLY

I have been tapering off diazepam for months now. This is not my first time trying, but this time I've learned from previous shortcomings. My plan was to try and trick my body to not notice the change. This means slow and steady. So for example, if I was a custom to taking 20mg a day. Week 1 I would go down to 19mg(this can be challenging depending on how easy it is to divide the pills). Every week I removed another mg from my daily regime. It took 5 months! But by reducing the amounts so slowly I think it helped my body and mind adapt without having to deal with withdrawal symptoms. It's really important that you do not cheat and tell yourself that you deserve a bit more because you've had a rough day. Stay strong, focused and proud of yourself for doing the right thing for your health and family. For extra support, I did start incorporating CBD oil and I believe it did help me and I still take it daily.

REPLY
@grandmaj5

Thank you Lisa for your input. Many times I believe the Pharmacists are smarter than doctors concerning what medication to give a patient. I heard (no sure if true) that doctors only take 1 semester of pharmacology. I had a doctor that had to look up a drug in a pharmacy book while I was in the exam room.

Jump to this post

That is so very true about Pharmacists! Learned that 60 years ago from an old anut! Then again when I was in retail and the Pharmacy was one of my departments!
Doctors are idiots concerning medication! It depends upon which Pharmacutical rep came in last or what golf tournament they played in sponsored by a drug company!
Sundance(RB)

REPLY
@serinitynow

I have been tapering off diazepam for months now. This is not my first time trying, but this time I've learned from previous shortcomings. My plan was to try and trick my body to not notice the change. This means slow and steady. So for example, if I was a custom to taking 20mg a day. Week 1 I would go down to 19mg(this can be challenging depending on how easy it is to divide the pills). Every week I removed another mg from my daily regime. It took 5 months! But by reducing the amounts so slowly I think it helped my body and mind adapt without having to deal with withdrawal symptoms. It's really important that you do not cheat and tell yourself that you deserve a bit more because you've had a rough day. Stay strong, focused and proud of yourself for doing the right thing for your health and family. For extra support, I did start incorporating CBD oil and I believe it did help me and I still take it daily.

Jump to this post

Very interesting! How did you make those small cuts?

REPLY
@sundance6

That is so very true about Pharmacists! Learned that 60 years ago from an old anut! Then again when I was in retail and the Pharmacy was one of my departments!
Doctors are idiots concerning medication! It depends upon which Pharmacutical rep came in last or what golf tournament they played in sponsored by a drug company!
Sundance(RB)

Jump to this post

Hi @sundance6, I am glad that another person understands the Pharmacy problem concerning Physicians. They have to be a concerned Physician, who cares about their patients and studies/keeps up with medications, and other new information. I believe there aren't as many Pharmacy Reps now. If you notice, Physicians do not give out free medication samples like they used to (at least in my case and others have told me this). It is hard to find a good doctor. It is like you, yourself, have to do a study, ask others, read reviews, and make sure they are okay with the Medical Board. My daughter went to a Psychiatrist in Minnesota. I looked him up and he had been disciplined at least 3 times for taking his own drugs (2 other states too). Then, he went to Florida and was still practiced in Minnesota via Skype. He was in to Florida to detox. My daughter had an appointment with him over Skype. She assumed he was in Minnesota. There was something about him I didn't trust. When I looked him up, I was shocked. I called the Clinic he worked at in Minnesota and had to report this. There are some Physicians out there that we know nothing about. I used to be a Medical Transcriptionist. I chose my Physicians by transcribing their reports. I could tell how they treated their patients, how detailed their reports were, if I would be able to understand their accent, plus other factors. This actually worked out well, plus working at a hospital, you know more about the Physicians. My previous Physician was so good and he retired. I am no longer working and picked out a horrible new Physician that my husband and I could get into (very long story); we quit going to him after 1 appointment. Everyone should at least check if the Physician has been disciplined.

REPLY
@sears

Do NOT try to do this in 3 weeks. Can you find another doctor? My doctor will be using the Ashton Method of tapering. Please google this and show it to your doctor. It can take months or years to safely taper a benzo. I’m still very nervous and anxious about tapering even though my new doctor says he’ll work with me as long as it takes.

Jump to this post

My prescribing physician NEVER mentioned the Ashton Manual… he told me to decrease the pills from [4 a day to 2 tablets a day… to one a day ..[2 halves].referred me to a neurologist who referred me to a psychiatrist who cannot see me for months!

REPLY
@johnhans

@grandmaj5 I thought the same thing myself, but then someone on Connect sent me an article that informed me it was a suggestion. There are no government orders to get off of benzos. It is up to the discretion of the doctor what to do, but the government has informed doctor's that studies have shown benzos may cause physical problems in the elderly.

Jump to this post

Hi Ellen, When I called to make my appointment, they said you cannot see the NP Psychiatrist unless you taper off your clonazepam. I told her I would think about it and call back. I waited and called back, because there was no one else to see at the clinic. This NP Psychiatrist can't see me until May 2020 (I already mentioned that somewhere else). I called the clinic today (they never called me yesterday) to complain about all of the miscommunication. Yesterday and today I asked for the manager. Today, they put me through to the supervisor, but they didn't tell me it was the supervisor. I told her about the quick taper; that I got very sick from doing this. No one ever called me back after I called when I wasn't doing well. I told her about the Ashton Method of Tapering. The person that answered the phone yesterday, made me feel like a liar, when I told her about the 3-week tapering. I had it written down, as it was told to me by a nurse. She asked who the nurse was; I didn't know. She said no one would have given me a 3-week taper. After that, I found the nurse's name, so today, when I spoke the supervisor, I told her the name. I explained everything to the supervisor. I told her I don't feel like I am being taken care of. I said that I am a customer too. She said for the tapering, they follow the suggestions of the National Guidelines. I told her I am going to look it up. I cannot believe that when a patient calls (I'm sure not everyone) they get fluffed off. They make you feel like you did something wrong. They also don't have any empathy, instead, it is like an argument. I told her that if she felt like I did during the 3-week taper for just 1 minute, she would understand. I have such a hard time when I come across situations like this. It is a waste of time and nobody cares (some do). I would never treat a person like that. I would listen and speak in an understanding voice, and take care of the patient's complaint. I also told her that I was her, I would go above and beyond to help. I am just tapering myself because I got so sick.

REPLY

So True! You're right, in order to save $$ the drug companies have let most of their reps go.
We should all research and check our doctors. Our Wonderful world of computers allow us to do research.
It's our fault if we don't.
Sundance(RB)

REPLY

Hi Sears, I just wanted to tell you that I am sorry about publishing so many negative things about benzos. I should have read the title closer of the subject. I guess the problem was that I had no positives about the benzos. Next time, I will stick to the subject. The only good thing that came out of this was that we found out that there are more negatives than positives and that it needs so bad to be looked in to.

REPLY

An interesting read of the day is a Connect member spotlight on one of the members of this discussion on benzo tapering, @johnhans https://connect.mayoclinic.org/page/about-connect/newsfeed-post/encouraging-others-by-letting-them-know-ive-made-it-meet-johnhans/. Hope you enjoy the reading and getting to know what brought him to Connect, what energizes him and what his favorite food is. Please share it on your social media accounts, if you'd like.

REPLY
@helenfrances

My prescribing physician NEVER mentioned the Ashton Manual… he told me to decrease the pills from [4 a day to 2 tablets a day… to one a day ..[2 halves].referred me to a neurologist who referred me to a psychiatrist who cannot see me for months!

Jump to this post

Then ask him if he would be willing to take a look at it and help you follow her protocol. It’s a very successful method of tapering.

REPLY
Please sign in or register to post a reply.