Any positive stories about Benzo tapering?

Posted by sears @sears, Nov 9, 2019

Would love to hear some positive stories from people whom have tapered off benzos. Positive only please. Give me some hope. No horror stories! I need some encouragement!

On Mayo Clinic Connect
From Harvard:
“Taking Klonopin for three to six months raised the risk of Alzheimer’s by 32%. …. taking it for more than six months boosted the risk by 84%.”
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(How do we get our memory back?
How do we educate doctors?)

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@sears

I live in Kansas City, Missouri. I live two blocks from the Kansas stateline so I have easy access to both states. Kansas is a wealthy state with lots and lots of doctors. It took me months and a lot of mental anguish trying to find a doctor to help me taper after I was abandoned by my Physchiatrist of 25 years when telling him I wanted to taper Xanax. I almost had a complete breakdown. I wound up in the hospital for almost 3 days. Couldn’t sleep , couldn’t eat. I was in shock my doctor dumped me and trying to find another doctor to help was a nightmare. He gave me a 30 day script for the Xanax I had been taking for 25 years and refused to take my calls. Yep! This is what they do to you!

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So Sad to hear! My thoughts and Blessings go out to you!
Since a couple of years ago when my wife had a stroke and Massive infection in a coma for two weeks I have taken the attitude that they work for me. If they don't perform to my expectations, I FIRE them to their face! Then go to the head of the dept.!
I'm just fed up with their BS!!
Sundance(RB)

Liked by sears

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@sears

Can you share a few of his ideas? Pitiful a resident has to come up with a plan but lucky you have him!

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1. Thought I should stay on a slow tapering
2. Report unusual symptoms.
3. Take the Escitalopram that was prescribed
4. See the prescriber earlier than the appointment that was made.
5. Ask about the Manual. Does the doc have a copy?
6. How many patients has he followed through withdrawal and what behaviors would prompt a call or hospital visit.
7. Keep appointment with psychiatrist
8. Pray

Liked by johnhans, sears

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All very good items to follow. Praying it will work out for you. Sometimes calling and letting the doctor know you need to get in quicker and that you are able to come when he has a cancellation, can get you in much quicker.

Liked by Lisa Lucier

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I had been taking Ativan 1mg four times daily for acute distress. Stayed on it for four years. I finally told my Psychiatrist that I wanted to stop taking it. So he began reducing it by 1/4th of a milligram every two weeks. It seemed a bit difficult in the very beginning but i believe that was perhaps due to my fears from others telling me that getting off the Ativan would be a horrible ordeal. After the first three – four tapers, I realized that although I might be slightly anxious with each reduction for about three days, afterwards, it wasn't bad at all. Eventually I found the taper to be so easy that I asked if the Doctor would continue tapering but at a quicker speed, thus began a reduction every Monday – one step down per week. The only annoying symptom I experienced then was mild insomnia, which eventually resolved itself. Coming off benzos – slowly – isn't too bad at all. Felt more energetic, less sleepy and was able to think much more clearly once I was off Ativan. Years later, when diagnosed with Stage 4 breast cancer, I once again took Ativan but didn't fear withdrawing from it when I was ready because I knew I could do it quite easily! So, go slowly, take your time, and I doubt you'll find it difficult!! Remember not to allow your Doctor to reduce it on a more rapid taper, and you'll likely be just fine. Godspeed!

Liked by sears

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@sears

I live in Kansas City, Missouri. I live two blocks from the Kansas stateline so I have easy access to both states. Kansas is a wealthy state with lots and lots of doctors. It took me months and a lot of mental anguish trying to find a doctor to help me taper after I was abandoned by my Physchiatrist of 25 years when telling him I wanted to taper Xanax. I almost had a complete breakdown. I wound up in the hospital for almost 3 days. Couldn’t sleep , couldn’t eat. I was in shock my doctor dumped me and trying to find another doctor to help was a nightmare. He gave me a 30 day script for the Xanax I had been taking for 25 years and refused to take my calls. Yep! This is what they do to you!

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How horrible of your Doctor! And why on earth would he not like you tapering off a benzo? Very bizarre. You deserve a much better Psychiatrist!!! Don't panic. Thirty days is usually more than enough time to find a good, ethical one! I'd just go on Yelp or Google for patients' comments and ratings of each one in your area. Many hospitals will list their participating Doctor's & Specialists and provide patient feedback and ratings of each Doctor. Good luck to you. Certainly you deserve better treatment overall in a Psychiatrist!❤️

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@helenfrances

1. Thought I should stay on a slow tapering
2. Report unusual symptoms.
3. Take the Escitalopram that was prescribed
4. See the prescriber earlier than the appointment that was made.
5. Ask about the Manual. Does the doc have a copy?
6. How many patients has he followed through withdrawal and what behaviors would prompt a call or hospital visit.
7. Keep appointment with psychiatrist
8. Pray

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Thank you for sharing! Number six is especially important!

Liked by johnhans

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@djanthony

I had been taking Ativan 1mg four times daily for acute distress. Stayed on it for four years. I finally told my Psychiatrist that I wanted to stop taking it. So he began reducing it by 1/4th of a milligram every two weeks. It seemed a bit difficult in the very beginning but i believe that was perhaps due to my fears from others telling me that getting off the Ativan would be a horrible ordeal. After the first three – four tapers, I realized that although I might be slightly anxious with each reduction for about three days, afterwards, it wasn't bad at all. Eventually I found the taper to be so easy that I asked if the Doctor would continue tapering but at a quicker speed, thus began a reduction every Monday – one step down per week. The only annoying symptom I experienced then was mild insomnia, which eventually resolved itself. Coming off benzos – slowly – isn't too bad at all. Felt more energetic, less sleepy and was able to think much more clearly once I was off Ativan. Years later, when diagnosed with Stage 4 breast cancer, I once again took Ativan but didn't fear withdrawing from it when I was ready because I knew I could do it quite easily! So, go slowly, take your time, and I doubt you'll find it difficult!! Remember not to allow your Doctor to reduce it on a more rapid taper, and you'll likely be just fine. Godspeed!

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Thank you for your reply. Happy to hear your taper went well. Hope your doing well with your breast cancer. God bless you!

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@djanthony

How horrible of your Doctor! And why on earth would he not like you tapering off a benzo? Very bizarre. You deserve a much better Psychiatrist!!! Don't panic. Thirty days is usually more than enough time to find a good, ethical one! I'd just go on Yelp or Google for patients' comments and ratings of each one in your area. Many hospitals will list their participating Doctor's & Specialists and provide patient feedback and ratings of each Doctor. Good luck to you. Certainly you deserve better treatment overall in a Psychiatrist!❤️

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Thank you. I did find one. I was shocked at how many didn’t want to get involved with a taper, didn’t take those over 65 years, and were booked out months in advance. I finally found one who agreed to open his office on Saturday and we’ve been going from there. God bless this doctor!

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@helenfrances

The Medical profession has the AMA.
We need an Association. Name?
Any ideas?
There is power in numbers.
Is anyone an attorney?

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Yes we do. I just don’t have a clue as to how to get this started.

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@helenfrances

We should start a support group.
There are groups for many medical conditions..
Do we have anyone who has leadership skills to organize? There is power in numbers.

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Hi again @helenfrances In referral to searching for help concerning the benzo tapering problem. My husband and I are having a friend over the day after Thanksgiving (2nd Thanksgiving). He graduated from college with a Political Degree. He knows many Politicians and is very interested in talking with them and asking questions. He knows them by first name. I went with him to a meeting held by a politician and we brought up the "Workplace Bully Law". Even though, I didn't get far, I did get the word out. With that law, each state has to pass this bill separately. I would think the benzo tapering would be "extremely" important. I also have the email of the President of Aurora Health Group. I am going to write an email to him and very nicely explain everything. I am also going to suggest the Ashton Manual. Since he is charge of all Auroras in Wisconsin, it could help, depending how he takes it. There is also another Health Organization in Wisconsin that is actually owned by Nuns. I could find out who to email for this too. I know this is only Wisconsin. I can ask my "Political" friend if he knows what to do to help this problem, go further or higher up. He also attends many political meetings and events. It could help if someone is close to or related to a lawyer or someone in a position to help. Maybe all of us plus others could "Tweet" President Trump!!!

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@sears

Very interesting! How did you make those small cuts?

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Great question! I ordered one of those magnifying glass stands that comes with a light for around 50 bucks. This and a good pill cutter should get the job done. Mind you that my diazepams came in 10mg and could easily be snapped into 4. I then cut each 2.5 piece in half. They didn't always come out even but it was close enough. Let me know if you have any other questions 🙂

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@grandmaj5

Hi again @helenfrances In referral to searching for help concerning the benzo tapering problem. My husband and I are having a friend over the day after Thanksgiving (2nd Thanksgiving). He graduated from college with a Political Degree. He knows many Politicians and is very interested in talking with them and asking questions. He knows them by first name. I went with him to a meeting held by a politician and we brought up the "Workplace Bully Law". Even though, I didn't get far, I did get the word out. With that law, each state has to pass this bill separately. I would think the benzo tapering would be "extremely" important. I also have the email of the President of Aurora Health Group. I am going to write an email to him and very nicely explain everything. I am also going to suggest the Ashton Manual. Since he is charge of all Auroras in Wisconsin, it could help, depending how he takes it. There is also another Health Organization in Wisconsin that is actually owned by Nuns. I could find out who to email for this too. I know this is only Wisconsin. I can ask my "Political" friend if he knows what to do to help this problem, go further or higher up. He also attends many political meetings and events. It could help if someone is close to or related to a lawyer or someone in a position to help. Maybe all of us plus others could "Tweet" President Trump!!!

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This sounds like a great start. The government sure managed to get the opioid crisis under control. A little too much control for me though.

Liked by grandmaj5

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@helenfrances

Did they give you a copy of “the national guidelines”?

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@helenfrances Hi, I somehow missed your question. They dd not give me "The National Guidelines". I was actually on the phone when I was told this. I told her that I would look it up. I tried to look up "National Guidelines" and I didn't see anything called that. There were other things that were somewhat similar, but different names. Today, I did find something, but can't remember the name. I am going to re-look that one up and share it.

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@helenfrances

Did they give you a copy of “the national guidelines”?

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@helenfrances I found this site https://www.benzoinfo.com. It is a site called Benzodiazepine Information Collation. There is a lot of information. Not sure if anyone else already posted this site. It looks interesting. I just skimmed over it, but I'm going to check it out.

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