Benign fasciculation syndrome (BFS)

I appreciate the comments on this thread as it has helped me put into perspective what I've been going through.
Compared to many on this site, my symptoms are fairly mild but they are enough to sometimes disrupt my sleep and are generally an annoyance during the day. My research into the condition has led me to the following conclusions: the chances that fasciculations are an indication of a serious neurological condition such as ALS is extremely small, so small that it is not worth worrying about. There seems to be an almost infinite number of causes for it. I am exploring some of the possible causes relating to diet, vaccines, physical conditions such as sciatica (which I have had and can apparently affect nerves throughout the body, not just the legs and back), a thyroid imbalance, and a number of others. If I figure out what the cause of my fasciculations is I will be sure to post it here as it may help somebody. But I am also prepared for what many on this site have found: that there is no clear cause for the condition and you just have to do the best you can to live with it.

I've had BFS with cramps for almost four years. Saw primary doc, endocrinologist, and neurologist for two and half years. Finally got referred to a neurologist that specializes in neuromuscular disorders. They tested me for ALS because I had a lot of symptoms. He confirmed it was not ALS and diagnosed me with BFS. I take Kepra, gabapentin, and baclofen. Almost maxed out on all of them before I finally started getting some relief. Most nights are good with no severe cramps. But, I do still have nights when I can't sleep at all because as soon as I relax, I cramp. You should insist on seeing a specialist in neuromuscular. The symptoms of BFS are the same as ALS. You need to ensure you don't have ALS.

I’ve had continuous muscle nerve twitches for the last 4 1/2 years…. Walk 4 miles a day and do resistance training 3 times a week… they started randomly all over usually only one twitch and done but sometimes will twitch for a few seconds…. Never when I start moving always when I’m stationary sitting or laying down…. Never interferes with sleep but is constant and annoying…. Had mri etc…. Absolutely no muscle weakness or cramps…. Just nerve wracking twitches that people say just forget about it…. I’m glad there are people out there that are experiencing the same thing and understand the impact that it had

Recently been diagnosed with BFS and struggling with it .Every weak there seems to be another issue with it as the twitching as become worse and now getting muscle pain , is this the norm ? Just looking for answers as it is now getting me down and this only aggravates it , any info would be appreciated many thanks

I know how you feel

I’ve had bfs for well over 4 years….. I’ve read its symptoms can manifest in different ways…. As long as you don’t have muscle weakness or wasting or spasticity what you’re experiencing is normal for your BFS