Benign carcinoid tumor in bronchi tube

@tomrennie
Thank you for your input. Typical (grade 1) and atypical (grade 2) classifications are specific to lung NETs. Typical is the slowest growing and what I have. My Ki-67 is only 2%! That’s really slow growing. Typical carcinoids are less likely to spread than atypical. The Ki-67 for atypical is higher (usually over 5%). There is also a mitotic count used. Both Ki-67 and mitotic rate are methods of determining how many cancer cells are dividing but the two measurements are not equal. The lower the better on both.

I was thrilled to hear 2% since the Ki-67 for my very aggressive breast cancer tumor was 50%. I’m telling you this to give some perspective on how slow growing typical lung carcinoids are. The Ki-67 percentage of carcinoids doesn’t generally go as high as some other cancers. Keep in mind that all cancers are not created equal. Typical carcinoids are very treatable. I’m doing very well on octreotide injections even though both lungs are filled with carcinoids. I’m even doing very well with my recurrent breast cancer. Medical advances are happening all the time. I know the unknown is scary, but please try to assume the best because I believe it will all turn out better than you think.

@jessie1990 My net tumors were never classified as typical or atypical. The growth rate of my pnets are measured on a ki-67 grading scale. I am unaware of any instances where the growth rate changes. Lymph node involvement usually begins near the primary tumor. I agree with your logic that if a nearby lymph node was benign, then anything further away should be the same. This is an example of why a specialist is really important. Please keep trying. We are fortunate to have the input of @californiazebra. She will help you ask more specific questions about lung carcinoids during your next appointment.

@tomrennie
Thank you for your input. Typical (grade 1) and atypical (grade 2) classifications are specific to lung NETs. Typical is the slowest growing and what I have. My Ki-67 is only 2%! That’s really slow growing. Typical carcinoids are less likely to spread than atypical. The Ki-67 for atypical is higher (usually over 5%). There is also a mitotic count used. Both Ki-67 and mitotic rate are methods of determining how many cancer cells are dividing but the two measurements are not equal. The lower the better on both.

I was thrilled to hear 2% since the Ki-67 for my very aggressive breast cancer tumor was 50%. I’m telling you this to give some perspective on how slow growing typical lung carcinoids are. The Ki-67 percentage of carcinoids doesn’t generally go as high as some other cancers. Keep in mind that all cancers are not created equal. Typical carcinoids are very treatable. I’m doing very well on octreotide injections even though both lungs are filled with carcinoids. I’m even doing very well with my recurrent breast cancer. Medical advances are happening all the time. I know the unknown is scary, but please try to assume the best because I believe it will all turn out better than you think.

@tomrennie hi lung nurse rang me today said it will be around middle of Dec I'm looking at for surgery as surgeon is away for awhile and it's very unlikely the part that is left is going to atypical because the portion the removed was quite big that came back as typical make sure I keep up walking and stuff before surgery it will help me wit recovery

@californiazebra Thank you for the education. So my 8% ki-67 score would be considered atypical? I agree with the typical being very treatable. That is actually great news for @jessie1990 .

Oh, he said he knew all about this type of cancer. And he went into great detail in explaining it to me. I also saw a pulmonary specialist first. It is the "slight" deception I am having with.

@jessie1990 I am glad that they responded. Did they give you a referral for the NET specialist? You have a little time before the surgeon is available in December. A second opinion in your case can only help ease your concerns. Walking is a great idea. I have been coached many times by my docs to never stop moving. I go for walks every day.

@californiazebra thank you I'm really hoping so just super scared

@nannybb But is he a NET specialist? Also, what do you mean by "slight deception "?

@nannybb yes I'm so confused I really don't no what's going on ive asked my surgeon that will be removing my tumor is it benign he said yes it's benign I've had 2 biopys from 2 different hospitals both benign my pet scan came back clear it's just so confusing