Benign carcinoid tumor in bronchi tube

@jessie1990 Thanks for being sorry. I appreciate it. It has been an incredible learning experience not only physically, but also mentally and emotionally. Hearing that you have cancer changes a person. It is up to the person to choose to make that change for the better.

If you weren't confused, then I would think there might be something wrong with you. It is very confusing. I sense that you, like me, would rather watch the Red Devils destroy City at Old Trafford than learn about some obscure cancer type. But, here we both are. Let's try to simplify things a little. First, like @hopeful33250 suggested, seeing a NET specialist is important. It is a rare cancer that most oncologists know very little about or have forgotten what little they knew. Your treatment is best led by a doctor that lives and breaths it everyday. Second, get the best tests and scans to diagnose NETs. The contrast used in a pet scan is critical. The Gallium-68 is the most used contrast specifically for NETs. The result of the tests and scans are necessary to determine the best treatment possible for you. Third, get treatment. If surgery is the best treatment, get it done. If it is radiation, immunotherapy, chemo, or some other option, get it done. Don't wait like I had to. The bigger the tumor gets and the more places it spreads, the harder it is to treat. At your age, you have youth on your side. I was 56 when I got diagnosed. I just turned 60 this month. My battle is permanent. Try to limit that as much as possibly. Fortunately, you have already met two folks that really helped me when I got started. @hopeful33250 and @californiazebra are a wealth of knowledge and experience. There are others on here as well. I have learned more from them, especially how to approach things in the beginning and moving forward, than any medical professional has taught me. Lean on us. We have been there. We are here for you.

I was a big fan of Man U when Roy or Robbie Keane played for them. My saturday mornings are usually enjoyed watching the Premier League. It will be a tough match tomorrow against Spurs. I will be watching. I also have a been following a women's team. Recognize the kit? I might ask for some suggestions for a visit to Ireland. I hope that is ok?

@californiazebra
A couple typo corrections in my message above. That should have said I have typical carcinoids (not atypical which is worse). And DIPNECH should be only 300 documented cases.

@jessie1990 Thanks for being sorry. I appreciate it. It has been an incredible learning experience not only physically, but also mentally and emotionally. Hearing that you have cancer changes a person. It is up to the person to choose to make that change for the better.

If you weren't confused, then I would think there might be something wrong with you. It is very confusing. I sense that you, like me, would rather watch the Red Devils destroy City at Old Trafford than learn about some obscure cancer type. But, here we both are. Let's try to simplify things a little. First, like @hopeful33250 suggested, seeing a NET specialist is important. It is a rare cancer that most oncologists know very little about or have forgotten what little they knew. Your treatment is best led by a doctor that lives and breaths it everyday. Second, get the best tests and scans to diagnose NETs. The contrast used in a pet scan is critical. The Gallium-68 is the most used contrast specifically for NETs. The result of the tests and scans are necessary to determine the best treatment possible for you. Third, get treatment. If surgery is the best treatment, get it done. If it is radiation, immunotherapy, chemo, or some other option, get it done. Don't wait like I had to. The bigger the tumor gets and the more places it spreads, the harder it is to treat. At your age, you have youth on your side. I was 56 when I got diagnosed. I just turned 60 this month. My battle is permanent. Try to limit that as much as possibly. Fortunately, you have already met two folks that really helped me when I got started. @hopeful33250 and @californiazebra are a wealth of knowledge and experience. There are others on here as well. I have learned more from them, especially how to approach things in the beginning and moving forward, than any medical professional has taught me. Lean on us. We have been there. We are here for you.

I was a big fan of Man U when Roy or Robbie Keane played for them. My saturday mornings are usually enjoyed watching the Premier League. It will be a tough match tomorrow against Spurs. I will be watching. I also have a been following a women's team. Recognize the kit? I might ask for some suggestions for a visit to Ireland. I hope that is ok?

@californiazebra thank you so much for your message ❤️ when I had my first surgery to remove it I asked what size it was my lung specialist said it was a chick pea sized tumor but over where its sitting in my bronchi it's in-between to lobes of my lung so more then likely 2 will have to be removed I got 40% removed on 5th of Sept I'm still waiting on more surgery lung doctor said he can't give me a time or date so anxiously waiting for this to happen 😢

@californiazebra also do I need to worry about typical carcinoid turning atypical

@jessie1990
That’s unfortunate that tiny tumor is impacting two lobes. I’ve read about partial lobe removal so I wonder if they can just take part of each lobe preserving as much healthy lung tissue as possible? I also read that in time the remaining lobes can expand into the vacant area.

The waiting and anticipation is always so hard. Praying for you.

@jessie1990
That’s a good question for the NET specialist. No one has suggested to me that that could happen so I’m guessing if it can it’s not common. Again, these are generally so slow growing that should be a comfort. It took a dozen years for my small typical carcinoids to double in size. After decades most of mine are around 1 cm give or take. We destroyed the only large one the size of a walnut and it has not come back in the 4.5 years since. I also just read there is only a 4% chance of recurrence for typical lung carcinoids. That should all be encouraging to you. You’ll be around to watch your kids grow up. 😊

@tomrennie yes it is mentally draining I suffer 3 anxiety disorders also social.. heath..and generalised anxiety disorders and been told I've to have surgery to remove a tumor is maken this worse for me..I've 3 kids also that need me been a tough few weeks yes I loved when all the top men played at old Trafford we went abit off course last few years but we beat Liverpool last week so I'm super happy with that 😀 as me and my Liverpool friends don't get on 🤣 yes Denise o sullivan is a super good player she actually use live my me before she moved to abroad I still need to visit old Trafford also I've a 17 year old son that really likes to go.. of course you can I've load really nice places for you to visit here 😊

@jessie1990 Seems like you have a lot going on. Now that you had a day or so to process things from what others said here, what are your top three concerns? How are you feeling?

Marissa Sheva is a family friend. She is #14. One of my brothers has been to Old Trafford for a game against City. He said that it was an amazing experience.

@tomrennie my top 3 concerns are surgery recovery and my kids ive xmas coming up I've my sons birthday I've my daughters confirmation I've my other daughters birthday I'm afraid anxious really... yes I really want to go hopefully when my surgery is over and all going well I will get to go how are you doing