Being young with Fibromyalgia

No one talks about having it young and to be honest it makes me feel alone

When I developed fibromyalgia, I was in my 20s and back then they never heard of fibromyalgia. The doctor didn’t know and some doctors were very verbally abusive to me saying I was just looking for meds. Fibromyalgia could start at any age. It could start young. It could start old. Do your homework do a diary as to what seems to triggered it what seems to help it that way you’ll be able to control it better.
I’ve had it over 50 years
Wish you the best

I definitely had it but was not diagnosed until 40. I struggled a lot because I didn’t understand why I always have pain and fatigue. I pushed myself too hard and was in a constant cycle of never getting out of it. I thought it was my fault.

Having the diagnosis young is a blessing. It would have been a much better experience had I known why and that it wasn’t my fault. I would have given myself grace and started therapy. I wouldn’t have pushed myself as hard as I did. I ended up at the mayo er in my 40s and it’s taken 3 years to climb out of it and feel somewhat human.

I know it’s hard but you are young enough to work through it and have a full life. Therapy, Pilates, tai chi, yoga helped me tremendously. Hugs!!

@cwatt14 Mine was diagnosed at age 32, back when even most doctors doubted it was a "real thing." I struggled along with it for over 30 years, until chronic pain from fibro and other issues almost made me a "couch potato." I was finally referred to a Pain Rehabilitation Clinic (PRC) to learn to live with it. This is a lifestyle based process, not a drug dispensary - you can read about it here:
https://www.mayoclinic.org/departments-centers/pain-rehabilitation-center/sections/overview/ovc-20481691
I did not go to Mayo, but to a local outpatient PRC in my home city.
Maybe you can find a fibro or PRC clinic near you?

@cwatt14 I'm sorry to hear that you feel alone. Those of us who have lived with fibro for decades might seem unsympathetic since we were told it was all in our heads. Even the doctor who diagnosed me said, "you women. All you need is a vacation." NOT helpful! Now you have better diagnosis and some drugs to ease the symptoms. It still hurts almost all the time.
If you have not joined a support group of young people, seek out the ones on here who can relate to dreams lost and the depression that accompanies the disease. If you can afford a therapist to deal with chronic disease, get one. Ask your local hospital to start one. Be proactive.
You are in pain, but you have skills. Write more posts and you will find answers.