Mayo Clinic Connect
Could one of the moderators put in a suggestion to a GI doc to put together a Barrett’s esophagus friendly diet we could download or print off this site? It sure would be nice! Thanks
Liked by pdilly, JK, Volunteer Mentor, graceandpeace
I’m going to tell my GI doc that he should recommend this to his patients instead of just saying look on the internet.
Liked by graceandpeace
Hi @maxsproudmom! I am sorry that I wasn't able to reply sooner, but things have been busy over here! Anyhow, I'm sorry to hear about your anxiety over BE; you did the right thing in trying to connect with others like ourselves, so that hopefully together we can help one another in different little ways. Plus, it's so important that you not feel like you are alone in this because you are not. I shared before that my BE is not really a problem for me ever since I started the IC Diet (you can find it if you Google ICN Food List) off of the IC Network. It's basically a Low/No Acid diet with 3 different categories of food that say "Foods to Avoid", "Foods that are Worth Trying" and "Foods that Are Friendly". Because of the extreme restrictions, especially in regards to fruits, I am also taking a special Low Acid Multivitamin that I also purchase from the IC Network. This diet restriction alone, I believe, has knocked out most (if not all) of my acid issues with BE. I also have been diagnosed with IBS (both C and D), so I am also on the Low FODMAP diet. You were asking before about safe foods with carbs – I don't know if you have other health issues or not, but I pretty much live off of Mrs Baird's White bread toast in the mornings with a little bit of Land o Lakes tub butter With Canola Oil, and sometimes sprinkle Organic Cinnamon on it, and maybe a pinch of Swerve (a healthier sugar replacement that's also safe for my IBS). Then I sometimes have a sandwich with a bit of mayo, Deli Ham that does not contain HFS and is Gluten Free, and one slice of White American Cheese (also fresh from the deli) with either 2 cups of popcorn (Homemade, or Oville Redenbaucher's Natural Lightly Salted, No butter), or a small amount of plain potato chips or corn chips, and then for dinner I have a baked potato with a few safe cooked veggies, or I'll have fish and homemade rice, or chicken and homemade rice. For dessert I have 2 small squares of dark chocolate. I do this just about every day. So, pretty much everything I eat is carbs. My dr wanted me to either gain weight too or not lose anymore. I weighed 92 pounds, but now weigh 95. Also, you mentioned watermelon making you throw up; I wonder if it has anything to do with the high amount of fructose that it contains? But, if so, maybe your body cannot process/digest high amounts of fructose – I don't know. And, one last thing I was going to mention to you about the acid, is you can always try the 28-day book that I mentioned earlier in this thread to @riflemanz64. I know the hoarseness can definitely be caused by BE, however, I think maybe it was you that also mentioned the possibility of allergies. Also, that can be thyroid related as well; have you had your thyroid checked? Sorry, I know this was a lot; maybe more than you cared to know, but I hope it can be helpful even if in a very small way.
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I appreciate the information. I was tested for so many things back when I started losing even more weight. One of them was my thyroid. My anxiety may have played a part but no matter what I ate I kept losing. Now I think I am maintaining but our scale broke a couple of weeks ago. I was also having issues with other things so I had a CT of most of my major organs and they just found kidney stones. I also had some kind of test where they checked my bladder with a scope because I kept dehydrating.
Liked by JK, Volunteer Mentor, graceandpeace
Yes, if you are hyperthyroid then there should normally be weight loss. I was diagnosed with thyroid cancer 6 years ago, and that's when I first found out that one of the symptoms was hoarseness and sore throats. But, since obviously there can be so many different causes of both those symptoms, not to mention how common they are, I always thought it was allergies as well. (I suffer from them year-round). When was the last time you had your thyroid checked; not just with a physical examination, but with a lab draw?
Liked by JK, Volunteer Mentor
Oh, and also, do you know if it was a cystoscopy that they did on your bladder, and was it done by a Urologist or a Urogynocologist? Did the scope find anything?
I think that's a wonderful idea and a very wise plan! I think I will do the same with my GI – good thinking!
Hi,@graceandpeace, I am relatively new to all of this. I have been prescribed Prilosec. I am not a very good patient in the sense that I hate taking pills when I think there might be side effects.
I keep hearing that Prilosec should be taken in certain circumstances, to prevent BE. And then I see where people are struggling to get off Prilosec.
So, I am on the fence. I would be interested in hearing all of your experiences. I would like to take of of your situations into consideration.
I will read with anticipation all of the posts regarding this.
@mamacita I have been on omeprazole (Prilosec) for a number of years now, maybe 7. Yep, I would like to get off of it too but the biggest problem I have heard is that it increases the chance of having Alzheimer's, which is a pretty big problem of course, one of my greatest fears frankly. Other studies dispute that though.
If you have BE and it is not kept under control with a PPI such as omeprazole it can advance to esophageal cancer. I have an appointment with my endocrinologist next month and before that I plan to do a little research to see if some of the other PPIs do not have any problems associated with them, but lets' face it, most pharmaceuticals do. It's like the drug commercials say, "your doctor has prescribed this because he thinks the risks of not taking it outweigh the risks of taking it" (not an exact quote of course).
I do not have any short term problems with it though. Initially, I did get an upset stomach from it but that went away after a short while.
Someone asked about table sugar and it should be cut out of your diet. Cut regular salt out too and buy Celtic salt which is safe for our disease.
Is honey allowed as a sweetener ?
Honey has a ph below 5 so it’s only allowed if it has been neutralized by nut butters. It’s not recommended during the healing phase of this diet.
I’ve lost track of which diet this is and for what condition(s). This thread has gone afar from the original question about BE.
This is from the acid watchers diet book. Gerd and BE.
I’m starting my 28 day healing diet tomorrow. I don’t have any reflux issues at all. Water only for the next 28 days!
That's wonderful news! Keep us posted along the way. My mom is almost done with her's and has no reflux issues now either!
@riflemanz64 WHAT? You do not mean no food, just water, do you?
I can eat foods from the book but I meant to say no coffee just water all day.
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