Barrett’s esophagus

Posted by jvanstratten @jvanstratten, Mar 22, 2018

Looking for info and help with Barret’s esophagus. I can’t figure out just how serious this is. I have read way too much online! I don’t really know how strict my diet really has to be. It is really stressful-. Does anyone here have it? And exactly how serious is it?

Wow @cim37343 ! That is amazing! That is a miracle!
@riflemanz64 is correct — you are indeed blessed!

Liked by cim37343

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@riflemanz64

Friday is my 30th day on the healing diet from the book. I'm down to 175#
I donated a pint of blood and my BP was 117/69.
I feel really healthy with 0 acid reflux issues. I see my GI doc on Wednesday for a check up. I'm looking forward to a cup of low acid coffee! This book has given me a lot of great info and recipes.

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@@riflemanz64 What great progress, congratulations on doing such a good job. I wish I could get my BP down, I’m afraid my PCP is going to want to put me on a medication. My BP tends to be somewhat erratic. I went to urgent care a couple of weeks ago and it was 130/75, and then I had an endoscopy for my Barrett’s last week and the systolic was over 170! Not good.
Someone, maybe you, mentioned low acid coffee on here. There are two on Amazon and I’ve tried both. I like the Healthwise more and it comes in a decaf too.
Apparently my Barretts is stable, has not gotten any worse. That was a relief.
JK

Liked by pdilly, riflemanz64

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@cim37343

My BE went away. I don’t think that’s common. I feel very lucky. I’ve had at least two more endoscopes since the one that showed no BE. All are clear.

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@cim37343 @riflemanz64 I just had an endoscopy and in an exchange I had on the portal with the nurse she first said I didn’t have Barretts. I responded with surprise because I thought once the damage was there it was permanent, you could only prevent it from getting worse. She then said I did still have it but it was minor. I am so confused. I’ve let this set a couple of days but I want a better understanding of exactly what the status is, I loved my old gastroenterologist but he moved to Columbia in NYC. I’m actually thinking of seeing him again because my daughter lives in NYC so I could stay with her.
JK

Liked by pdilly

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I have it from GERD so take Nexium and get an endoscopy every three years. Try to stay away from acidic foods. The doc was shocked when he found it, if it is something rare I have it,ugh

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@syl1

I was diagnosed with intestinal metaplasia in June 2018. I had a follow up in February and I'm scheduled for a follow up in 3 years. Can someone help me on how to manage this, I was put on dexilant. My regurgitation flares up sometimes but for most times I'm just bloated.

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I am on Dexilant also, if you follow a diet with non acidic foods you should be fine. Its the acidic foods that are the problem. NO ACIDIC FOODS!!! NO SPICY FOODS!! Does that help lol

Liked by pdilly

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@contentandwell

@@riflemanz64 What great progress, congratulations on doing such a good job. I wish I could get my BP down, I’m afraid my PCP is going to want to put me on a medication. My BP tends to be somewhat erratic. I went to urgent care a couple of weeks ago and it was 130/75, and then I had an endoscopy for my Barrett’s last week and the systolic was over 170! Not good.
Someone, maybe you, mentioned low acid coffee on here. There are two on Amazon and I’ve tried both. I like the Healthwise more and it comes in a decaf too.
Apparently my Barretts is stable, has not gotten any worse. That was a relief.
JK

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Glad to hear it’s not worse.

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I’ve mentioned this before but want to say it again since I’m seeing new people on here. I was diagnosed about 20 years ago with Barrett’s esophagus. Have taken prevacid ever since with dosage gradually increasing — currently 30 mg twice a day.

For about 18 years my BE stayed the same. Then about 2 years ago my BE developed low grade dysplasia. I have had 4 RFA’s (radio frequency ablations) to remove the areas of dysplasia. My surgeon says I’ll need to have 4 or 5 more.

My advice to anyone diagnosed with Barretts is DONT BE LIKE ME! I started out with the restrictive diet. But then I realized that the prevacid eliminated my heartburn and that I could eat things without getting the heartburn pain. So I did. Is that why I have low grade dysplasia now? I think that’s very likely the reason why.

So don’t be like me. Be like @riflemanz64 who I think I should be the poster child for BE!

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@pdilly

I’ve mentioned this before but want to say it again since I’m seeing new people on here. I was diagnosed about 20 years ago with Barrett’s esophagus. Have taken prevacid ever since with dosage gradually increasing — currently 30 mg twice a day.

For about 18 years my BE stayed the same. Then about 2 years ago my BE developed low grade dysplasia. I have had 4 RFA’s (radio frequency ablations) to remove the areas of dysplasia. My surgeon says I’ll need to have 4 or 5 more.

My advice to anyone diagnosed with Barretts is DONT BE LIKE ME! I started out with the restrictive diet. But then I realized that the prevacid eliminated my heartburn and that I could eat things without getting the heartburn pain. So I did. Is that why I have low grade dysplasia now? I think that’s very likely the reason why.

So don’t be like me. Be like @riflemanz64 who I think I should be the poster child for BE!

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Now that's funny!

Liked by pdilly

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It can be really serious, my brother has/had it and he lost so much blood that he had to have four (4) pints transfusion he probably waited too long. Then you have to make sure the patient do not have cancer or development cancer

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Yes @barb2025 you’re right! BE is a very serious thing. If I had treated it more seriously over the last 20 or so years, I probably wouldn’t have developed this low grade dysplasia and wouldn’t be having all of these ablations.

Fortunately only a very small percentage of people with Barrett’s develop cancer. I hope your brother is doing better.

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Although I have never suffered from heartburn or indigestion, I was having problems swallowing. My Gastroenterologist performed an endoscopy and said I have Barrett's. He put me on omeprazole 20mgs for the rest of my life. Concerned about the side effects. I had my gall bladder removed over 30 years ago and wondering if my problem is bile reflux not acid reflux. There is some research suggesting PPI's are not effective in treating bile reflux and may actually make the damage it does to the esophagus worse by removing the acid. Anyone have any knowledge or experience with the use of PPI's for bile reflux? .

Liked by pdilly

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@eileenmaud What does your Dr. say about your research findings? It might just be me but he would be my choice before changing changing my meds. Also, what did your research find re an alternate treatment to Barretts if you stop the PPI's?

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@eileenmaud

Although I have never suffered from heartburn or indigestion, I was having problems swallowing. My Gastroenterologist performed an endoscopy and said I have Barrett's. He put me on omeprazole 20mgs for the rest of my life. Concerned about the side effects. I had my gall bladder removed over 30 years ago and wondering if my problem is bile reflux not acid reflux. There is some research suggesting PPI's are not effective in treating bile reflux and may actually make the damage it does to the esophagus worse by removing the acid. Anyone have any knowledge or experience with the use of PPI's for bile reflux? .

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from what i have read the PPI's do not have any effect on bile reflux. when your GI doctor performed and endo on you if you had bile in the stomach he would have seen this and put you on questran ( orange flavored resin powder , which is just awful to taste) to help clear up the bile in the stomach. if he hasn't told you that there is bile then you probably don't have it. have you had an esophagael manometry test? this will measure the strength of your esophagus muscles. i too have probablems swallowing, after fundoplication and later gall bladder removal. my last esophagael manometry test showed a parameter that measured 378 ( range is 500 -5000). prior to fundo i had measured 517. I have very weak esopagus muscles that can't push the food more effectively thru the stomach. thus longer residence time of ffod in my stomach gives me the sensation of heartburn, which is really esophagus sensation like burn. i have no barrett's because of the fundoplication. i was on antacis for 18 years and had no signs of all these bad things the doctors say about the antacids. take your omeprazole as he says and live your life as normal as possible. avoid caffeine, chocolates, carbonation , and cigarettes……best wishes … kozlo52

Liked by dandl48 Dave, pdilly

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Thanks so much for the responses to my questions. I do have an appointment with my Dr. in a few weeks. Will discuss the information I have found, but am not optimistic since he insists that all patients with BE take omeprazole for the rest of their lives. It troubles me that he did not warn me about the dangers of heart problems that can occur from magnesium deficiency brought on by long term use of omeprazole. This resulted in an FDA alert warning doctors to test patent magnesium levels before putting them on this medication long term and perform ongoing monitoring. It was my cardiologist's PA who told me about this when I started experiencing problems. There is also increasing evidence that the incidence of cancer of the esophagus has increased dramatically since the widespread use of PPI's as treatment for BE and over the counter for heartburn. My ex-husband died of esophageal cancer two years ago. He had been taking OTC PPI's for years. I am hoping when I speak with the doctor, I can get some answers and feel comfortable with his recommended course of treatment.

Liked by pdilly

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Sorry to hear about your husband passing from cancer. I saw my GI Doc yesterday and everything was great. No issues. I take 40mg pantaprozole 1x a day before supper. I was told i'll get my next EGD Sept. 20 to check for dysplasia. I follow a strict diet with no cheating. May i ask if your husband was following a acid free diet? I hope your Dr. visit goes good!

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