balance issues with post frontal meningioma surgery

Posted by 1myhope @1myhope, Jan 15, 2023

Does anyone have this issue and how you tried or did resolve it.

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@takingeachday

Thank you
Im more concerned with the emotional day to day of how to deal with the unknown
Not knowing it will or wont grow and the treatment if it does-craniotomy scares the hell out of me
I’d imagine most if not all
Have extreme anxiety and
Sleepless nights-
Just trying to cope and deal with the diagnosis

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Yes. Yes. Yes. To all you said. It's really a jolt when you are given the news. I empathize. It's really very much to process. You identified the key thoughts + feelings. It's a heavy load.
I will encourage you with the knowledge that you do begin to absorb it and get a better controlled perspective with a little time and information. Feels less turbulent and less out of control then.
It's my view that asking your Dr for low dose short term anti- anxiety medication is OK. This is a major emotional and life crisis for you. You might also ask about a short low dose course of steroids if it would help your symptoms temporarily as you navigate your medical journey.
No one knows the future. There's a justified place for hopeful expectations and optimism within the unknown and scary. Always remember that in the storm.
And remember that you are still the one making the decisions as to treatment. You have time. You have options. Take a deep breath now and then and let the earthquake underway quiet down a little. If you have a faith, go to that well. You are not alone. Your future is still unwritten. Hold steady in today. And keep in touch.

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@1myhope

5 cm large right frontal area.

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This is not medical advice. Only something from my own experience. You might ask your Dr if a little bit of steroids would eleviate some symptoms while you explore your course of action. I hope you pursue 2nd opinions and get information about this type of tumor. Mayo Clinic and other highly skilled+ experienced medical centers sometimes review your MRI 'S by telemed.
Meanwhile, make sure you take measures so that you don't have a fall bc of balance issues. No throw rugs. Get grab bars. Solid support shoes. A cane or tripod perhaps. No pets underfoot. And just remember when reaching, etc, that you can't be impulsive bc your balance is unreliable.
As for memory, we use posted notes at home
+carried notes, and digital reminders. We keep everything in the same place all the time! Use a timer when cooking. Know you're still the same person you always were; just a little more wobbly+ forgetful. You're still OK.
Wishing you the best.
Keep reaching out for information and medical opinions.
See you here again.

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@rsfcowgirl

Yes. Yes. Yes. To all you said. It's really a jolt when you are given the news. I empathize. It's really very much to process. You identified the key thoughts + feelings. It's a heavy load.
I will encourage you with the knowledge that you do begin to absorb it and get a better controlled perspective with a little time and information. Feels less turbulent and less out of control then.
It's my view that asking your Dr for low dose short term anti- anxiety medication is OK. This is a major emotional and life crisis for you. You might also ask about a short low dose course of steroids if it would help your symptoms temporarily as you navigate your medical journey.
No one knows the future. There's a justified place for hopeful expectations and optimism within the unknown and scary. Always remember that in the storm.
And remember that you are still the one making the decisions as to treatment. You have time. You have options. Take a deep breath now and then and let the earthquake underway quiet down a little. If you have a faith, go to that well. You are not alone. Your future is still unwritten. Hold steady in today. And keep in touch.

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Thank you so much for your thoughtful answer!
Well said…I have time and it may never cause an issue. I am 65 and its growing slowly. Its that
Knowing that you may have and endate if it grows to big; but Im optimistic and there are different treatments.
It is shocking - they were looking at one that had stopped growing 7 years ago so I was caught off
Guard. A bit of losing control. It helps to know Im not alone and others are dealing with the same
Emotional turmoil.
Overall I do think I will be ok
🙏 Thank you❤️

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