Mayo Clinic Connect
I’m wondering how many of the people on the site are using AZ prophylacticly to help prevent recurrent infections. I have been on the medication for 6 months and have had noticably decrease in infections.
Hello @russt. Welcome to Mayo Clinic Connect. Thank you for sharing your experience with the community, it’s the best thing you can do to help fellow members on Connect.
I would like to introduce you to @windwalker, who has discussed the use of prophylactic on connect. While we wait for others to join your topic of conversation, can you tell me more about how you have been coping thus far with your recurrent infections?
I’m so glad to hear that the azithromycin has been working for you and hope it continues.
I’m not on medications – yet…so can’t help w/this one…hope others can!
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oh shoot. Sorry @boomerexpert. I thought I read somewhere that you had posted that. I removed your tag from my post. Enjoy your day!
Welcome russt! I used to be given azithromycin any time I got a lung infection. That was back in the days and years prior to me going to the Mayo clinic. I started seeing my doctor there in 2013 whereupon he said NEVER take azithromycin again! His reason was because it is considered one of the more potent drugs they use to combat our MAC, and he didn’t want me to build up a tolerance for it. He said I may need that BIG GUN some day. In 2013, I was put on a prophylactic of alternating month of Cipromycin and Doxycycline, both on a 10 day course. (no salt treatments) Then I got a positive test for MAC colonies and Pheudomonas bug of some sort in 2016. I was then taken off of the doxy and it got replaced with tobramycin (28 day course) and stayed on cipro(10 day course) on the alternating month. Plus added the salt nebulizing treatment. All coughing ceased in August 2016 and I feel like a normal healthy person despite having very little lung function left. Now, I battle with fatigue. Hope this helped. Terri M.
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