Awaiting 2nd MRI for Meningioma: What are possible effects of surgery?

Posted by bonjimhome @bonjimhome, Apr 2 9:57pm

Meningioma in right lower quadrant. If it has grown, what are possible side effects of surgery?

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Profile picture for vernicek @vernicek

I have a second MRI scheduled for the last week of July. My skull-based left side meningioma, diagnosed in February, is near the optic nerve. Good luck to everyone on this site.

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@vernicek I had an MRI of inner ear canals and brain for tinnitus. Ear canals were fine but brain has 3 meningiomas (incidental findings that put me over the edge. Had to get a Rx for Xanax I was so anxious.) One is sitting on the optic nerve. Waiting for a call from a neuro- ophthalmologist to make an appointment to further evaluate. My thought is I’ll move forward with gamma knife, but need the neuro-ophthalmologist evaluation first. I’m just preparing myself mentally. Feeling much better about all of it related to a wonderful support system and a PCP who calmed me down.!

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Profile picture for kkellyjones1954 @kkellyjones1954

@vernicek I had an MRI of inner ear canals and brain for tinnitus. Ear canals were fine but brain has 3 meningiomas (incidental findings that put me over the edge. Had to get a Rx for Xanax I was so anxious.) One is sitting on the optic nerve. Waiting for a call from a neuro- ophthalmologist to make an appointment to further evaluate. My thought is I’ll move forward with gamma knife, but need the neuro-ophthalmologist evaluation first. I’m just preparing myself mentally. Feeling much better about all of it related to a wonderful support system and a PCP who calmed me down.!

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@kkellyjones1954 A neighbor of mine had your same tinnitus symptoms, received a meningioma diagnosis and had gamma knife treatment three years ago. He gets yearly MRI’s and there is no sign of the meningioma growing. My meningioma is tiny but very close to the left optic nerve. Unfortunately, gamma knife treatment is too powerful for that sensitive area. If my July MRI shows growth, small doses of radiation is my only option. I have an excellent neuro surgeon and opthamologist who work together which has given me peace of mind. I might need a Xanax prescription in July if there is tumor growth! Thanks for
sharing your story.

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Profile picture for kkellyjones1954 @kkellyjones1954

@vernicek I had an MRI of inner ear canals and brain for tinnitus. Ear canals were fine but brain has 3 meningiomas (incidental findings that put me over the edge. Had to get a Rx for Xanax I was so anxious.) One is sitting on the optic nerve. Waiting for a call from a neuro- ophthalmologist to make an appointment to further evaluate. My thought is I’ll move forward with gamma knife, but need the neuro-ophthalmologist evaluation first. I’m just preparing myself mentally. Feeling much better about all of it related to a wonderful support system and a PCP who calmed me down.!

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@kkellyjones1954: Is the meningioma literally sitting on your optic nerve? I ask because I had a 2.7 centimeter meningioma that was located 1/16th of an inch from my optic nerve and I was able to have it removed. It's been 2 years and both my follow up MRIs show no regrowth.

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Per the neurosurgeon, it is touching the optic nerve. It is 9mm x 8mm.

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Profile picture for Maryann @mkoch

@kkellyjones1954: Is the meningioma literally sitting on your optic nerve? I ask because I had a 2.7 centimeter meningioma that was located 1/16th of an inch from my optic nerve and I was able to have it removed. It's been 2 years and both my follow up MRIs show no regrowth.

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@mkoch 1. Below is my February MRI report. My neurosurgeon said the meningioma is too close to the optic nerve for any surgery other than a craniotomy. He doesn’t want to do that because I’m 75 and sedation would be 5+ hours. I have a second MRI, neuro opthamology, and neurosurgeon appointment in July. If the Meningioma has grown, we will discuss small doses of radiation.

“There is evidence of an avidly enhancing dural-based mass lesion, measuring approximately 1.5 x 0.5 x 1.4 cm in size, which courses along the left middle cranial fossa along the sphenoid body, and along the left clinoid process as well (series 10 image 25, series 10 image 23). 2. There is also extension along the left anterior cranial fossa, with areas notable involvement of the left prechiasmatic optic nerves (series 10 image 24). Dural thickening/tail also extends posteriorly along the left cavernous sinus, though without obvious invasion. This is best seen on series 10 image 19. Additional regional involvement, also abutting the left internal carotid artery, as discussed above. This is most compatible with a meningioma.”

How was your meningioma removed?

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Profile picture for vernicek @vernicek

@mkoch 1. Below is my February MRI report. My neurosurgeon said the meningioma is too close to the optic nerve for any surgery other than a craniotomy. He doesn’t want to do that because I’m 75 and sedation would be 5+ hours. I have a second MRI, neuro opthamology, and neurosurgeon appointment in July. If the Meningioma has grown, we will discuss small doses of radiation.

“There is evidence of an avidly enhancing dural-based mass lesion, measuring approximately 1.5 x 0.5 x 1.4 cm in size, which courses along the left middle cranial fossa along the sphenoid body, and along the left clinoid process as well (series 10 image 25, series 10 image 23). 2. There is also extension along the left anterior cranial fossa, with areas notable involvement of the left prechiasmatic optic nerves (series 10 image 24). Dural thickening/tail also extends posteriorly along the left cavernous sinus, though without obvious invasion. This is best seen on series 10 image 19. Additional regional involvement, also abutting the left internal carotid artery, as discussed above. This is most compatible with a meningioma.”

How was your meningioma removed?

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@vernicek
Praying for you

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Profile picture for vernicek @vernicek

@mkoch 1. Below is my February MRI report. My neurosurgeon said the meningioma is too close to the optic nerve for any surgery other than a craniotomy. He doesn’t want to do that because I’m 75 and sedation would be 5+ hours. I have a second MRI, neuro opthamology, and neurosurgeon appointment in July. If the Meningioma has grown, we will discuss small doses of radiation.

“There is evidence of an avidly enhancing dural-based mass lesion, measuring approximately 1.5 x 0.5 x 1.4 cm in size, which courses along the left middle cranial fossa along the sphenoid body, and along the left clinoid process as well (series 10 image 25, series 10 image 23). 2. There is also extension along the left anterior cranial fossa, with areas notable involvement of the left prechiasmatic optic nerves (series 10 image 24). Dural thickening/tail also extends posteriorly along the left cavernous sinus, though without obvious invasion. This is best seen on series 10 image 19. Additional regional involvement, also abutting the left internal carotid artery, as discussed above. This is most compatible with a meningioma.”

How was your meningioma removed?

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@vernicek
Mine is, thankfully, very small.
Also, I am 80. So we are watching and waiting. Hopefully I’ll drop dead with something else before I have to have brain surgery!

Good luck with yours.

Dolly

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Profile picture for Dolly Jane @dollyjaneprenzel

@vernicek
Mine is, thankfully, very small.
Also, I am 80. So we are watching and waiting. Hopefully I’ll drop dead with something else before I have to have brain surgery!

Good luck with yours.

Dolly

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@dollyjaneprenzel: I was dismayed to learn after my craniotomy 2 years ago that I also have 6 and 8 millimeter meningiomas in my falx cerebri. (The membrane that divides the two sections of one's brain.) Given that meningiomas typically only grow 1 mm. a year, the neurosurgeon is suggesting the watch-and-wait protocol. I'm 74 and I think his rationale is that by the time one of them grows large enough to press on something that causes symptoms that probably something else will get me by then. 😊

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Profile picture for vernicek @vernicek

@mkoch 1. Below is my February MRI report. My neurosurgeon said the meningioma is too close to the optic nerve for any surgery other than a craniotomy. He doesn’t want to do that because I’m 75 and sedation would be 5+ hours. I have a second MRI, neuro opthamology, and neurosurgeon appointment in July. If the Meningioma has grown, we will discuss small doses of radiation.

“There is evidence of an avidly enhancing dural-based mass lesion, measuring approximately 1.5 x 0.5 x 1.4 cm in size, which courses along the left middle cranial fossa along the sphenoid body, and along the left clinoid process as well (series 10 image 25, series 10 image 23). 2. There is also extension along the left anterior cranial fossa, with areas notable involvement of the left prechiasmatic optic nerves (series 10 image 24). Dural thickening/tail also extends posteriorly along the left cavernous sinus, though without obvious invasion. This is best seen on series 10 image 19. Additional regional involvement, also abutting the left internal carotid artery, as discussed above. This is most compatible with a meningioma.”

How was your meningioma removed?

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@vernicek: In response to your question of how my meningioma was removed: I had a craniotomy 2 years ago when I was 72. The meningioma was in my sphenoid sinus 1/16th of an inch from my optic nerve. The neurologist I first consulted said there was no way any neurosurgeon would operate in that location. He referred me to a radiation oncologist in San Jose. The radiation oncologist said he would do radiation Mon.-Fri. for 5 weeks. But then he said he was a little concerned about doing radiation so close to my optic nerve and would consult with the neurosurgery department at UCSF. My daughter insisted I go directly to UCSF myself for a 3rd opinion. The neurosurgeon I saw there said it is always best to remove meningiomas if possible and that was his recommendation. I felt nervous about telling him that 2 other neuro docs had suggested that no one would operate in that location. His response was, "I do one or two a week." Then I brought up the fact of my age, 72. He said, "I have operated on 80 year olds." I will add that I have had 3 other major surgeries during my life, two in my 40s and one in my 60s. Waking up from the anesthesia after my craniotomy was the first time I wasn't sick afterward.

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Profile picture for Maryann @mkoch

@dollyjaneprenzel: I was dismayed to learn after my craniotomy 2 years ago that I also have 6 and 8 millimeter meningiomas in my falx cerebri. (The membrane that divides the two sections of one's brain.) Given that meningiomas typically only grow 1 mm. a year, the neurosurgeon is suggesting the watch-and-wait protocol. I'm 74 and I think his rationale is that by the time one of them grows large enough to press on something that causes symptoms that probably something else will get me by then. 😊

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@mkoch
Ha! Works for both of us!
Dolly

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