Autonomic Dysfunction

Posted by Tuckerdoodle @tuckerdoodle, Jul 15, 2017

I am curious about this topic, which was mentioned during a recent doctor’s appointment. I have been sick for 15 months with vague but debilitating symptoms. The short version is I had sinus surgery 02/2016, developed Shingles & mono 4 months later that was the result of an undetected sinus infection. Treatment with antibiotics and steriods for a month cleared the infection, but I have been left with other problems. I have heart palpitations, GI problems, fainting, dizziness, extreme fatigue, weakness, body temperature problems and with tingling sensations in my legs and lung pain. I have been scanned, stress tested, tilt table test, endoscopy, colonoscopy, EMG, ECG, heart ultrsound, blood work and now have a loop recorder for the heart. I get a swelling sensation in my chest on the left side that causes dizziness, belching, pain and fatigue. I do have a hiatel hernia and gastritis. I am gluten free, dairy free, red meat free and have been to 15 doctors. I went to running 3 miles a day, lifting 50 pound bags of grain and hay, working full time and taking care of my family. I presently can do small amounts of housework. The last doctor mentioned Autonomic Dysfunction and told me to research…google is vague and cannot find a doctor to who treats this disorder. Any suggestions wil be helpful…running out of options.

@elizabej

Thank you @lisalucier for connecting all of us and hi to @tuckerdoodle @foggy and everyone else facing the challenges associated with autonomic dysfunction – you are not alone!! I was diagnosed in 2017, after 3 years of undergoing tests to rule out everything obvious and trying to convince specialists that the symptoms were connected. So now there's a name to it, but because it's idiopathic the best we can do is treat the symptoms, which for me right now means seeing a pulmonologist for shortness of breath, physical therapist for balance and gait, and urogynecologist for bladder dysfunction. The neurologist is so overloaded my next doublebooked appointment is June 2019… The latest challenge is getting approved for short-term disability from work to be able to keep up with all the appointments and treatments. What stage are other people in?

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@elizabej
What is this you are talking about and what are the symptoms

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See a Dr with DO after name instead of MD, same thing. Doctor of osteopathic medicine. Probably meant to say instead of automatic, somatic dysfunction. Its a term they use when these doctors do gentle manipulations of arms and legs to release the muscles. This is not what chiropractors do, stay away from them, but the DO studies the body differently than an MD. They don't believe that medicine is always needed but by doing these manipulations, make sure you get gentle ones, they can diagnose issues of spine,pelvic, cervical areas. Saved my back, they are doctors, only see them so somatic is a term they use.

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