Autoimmune hepatitis.

Posted by chopin002 @chopin002, 1 day ago

Diagnosed with autoimmune hepatitis .
Already have PMR , GCA, and Graves’ disease.
Taking a pass on treatment. The drugs sound worse than the condition and I am 71 years old. I believe 5-10 good years better than 10-20 poor, sickly years. Any try AZA without side effects. Already taken prednisone for 7 years and finally down to one mg. Staying there.

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

I was diagnosed with Autoimmune hepatitis in the beginning of 2024 and by Aug 2024, was started on Azathioprine & Budesonide because I declined Prednisone, I didn't want to gain more weight. After 2 weeks I couldn't stand the pain it was causing me, then they tried me on each medication seperately and a month later same thing happened. Then I was tried on Mercaptopurine and I had the same issue. I suffer from Fibromyalgia and have Hashimoto's and Hypothyroidism. At the moment I am on Cellcept and it seems to be working only issue is it's causing me water retention and have to take Furosemide.

REPLY
@mydiamondsx8

I was diagnosed with Autoimmune hepatitis in the beginning of 2024 and by Aug 2024, was started on Azathioprine & Budesonide because I declined Prednisone, I didn't want to gain more weight. After 2 weeks I couldn't stand the pain it was causing me, then they tried me on each medication seperately and a month later same thing happened. Then I was tried on Mercaptopurine and I had the same issue. I suffer from Fibromyalgia and have Hashimoto's and Hypothyroidism. At the moment I am on Cellcept and it seems to be working only issue is it's causing me water retention and have to take Furosemide.

Jump to this post

OMG, so sorry.
I think the cure is worse than the disease sometimes. Dr google says a person can live 10-15 years without treatment. Even with cirrhosis 5-10. I’ll take a pass on those drugs. Thanks for the info.

REPLY
Please sign in or register to post a reply.