Autoimmune hepatitis*

Posted by luserm1 @luserm1, Sep 15, 2017

Is it beneficial to use turmeric for cirrhosis caused by autoimmune hepatitis?

@marie69

My daughter is having a liver biopsy to test for autoimmune hepatitis. She was also just diagnosed with Crohn's. How serious is autoimmune hepatitis? Can it be treated? Does it require a liver transplant?

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Hello @marie69, welcome to Connect. There is an active discussion for autoimmune hepatitis where your question will receive more visibility and you can meet other members who share similar symptoms and can share their experience with you. I'm tagging our moderator @ethanmcconkey to see if we can move your post to the following discussion:

> Groups > Autoimmune Diseases > Autoimmune hepatitis*
https://connect.mayoclinic.org/discussion/autoimmune-hepatitis-1/

There is another discussion you might find helpful for your daughter's newly diagnosed Chron's disease.

> Groups > Autoimmune Diseases > Crohn's Disease
https://connect.mayoclinic.org/discussion/crohns-disease-2/

Here is some information on autoimmune hepatitis that may provide some of the answers you are looking for:

Autoimmune hepatitis – Diagnosis & Treatment
https://www.mayoclinic.org/diseases-conditions/autoimmune-hepatitis/diagnosis-treatment/drc-20352158

@marie69 I'm sure this has to be difficult for you not having answers to help your daughter. Are you able to share how your daughter is doing? Have the doctors discussed any treatments or suggestions for your daughter for the Chron's?

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My daughter is having a liver biopsy to test for autoimmune hepatitis. She was also just diagnosed with Crohn's. How serious is autoimmune hepatitis? Can it be treated? Does it require a liver transplant?

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Hi @marie69 you may have noticed I moved your post to this existing discussion on autoimmune hepatitis, per the suggestion of @johnbishop, in order for you to connect and learn from what others have said about this illness. Simply click VIEW & REPLY in your email notification to get to your post.

I would like to tag fellow Connect members @charicen, @jtg8771 and @gering69341 as they have all mentioned autoimmune hepatitis and may be able to offer you support.

When is the liver biopsy taking place?

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@marie69

My daughter is having a liver biopsy to test for autoimmune hepatitis. She was also just diagnosed with Crohn's. How serious is autoimmune hepatitis? Can it be treated? Does it require a liver transplant?

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Sorry to hear about what your daughter is going through. My daughter was diagnosed with autoimmune hepatitis a year ago. This is a life long disease but is treatable. Everyone responds differently to treatment, some are able to come off meds while others stay on meds their entire life and then others require liver transplant. We recently went to a conference geared solely toward autoimmune hepatitis and learned so much. You can find lots of info on the mayo clinic web site but I also suggest looking at the autoimmune hepatitis association web site. We are still very new to the disease and are still learning. Hope you find the answers and your daughter feels better.

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Thanks for answering.I surely will look.It took me a long time to find some one.I felt alone so long

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@jtg8771

Sorry to hear about what your daughter is going through. My daughter was diagnosed with autoimmune hepatitis a year ago. This is a life long disease but is treatable. Everyone responds differently to treatment, some are able to come off meds while others stay on meds their entire life and then others require liver transplant. We recently went to a conference geared solely toward autoimmune hepatitis and learned so much. You can find lots of info on the mayo clinic web site but I also suggest looking at the autoimmune hepatitis association web site. We are still very new to the disease and are still learning. Hope you find the answers and your daughter feels better.

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So far I have had 3 liver biopsies.No comfortable

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@gering69341

So far I have had 3 liver biopsies.No comfortable

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Yeah took us a long time to really find someone to talk to as well. My daughter was hospitalized for 3 days and had a colonoscopy, endoscopy, and liver biopsy. When she went into hospital her liver enzymes were in the 600- 900 range. These are the alt, ast, and alkaline phosphate levels. Multiple other lab test that were confusing the Dr and after basically ruling everything else out and the hepatitis panal finally came back is when they went with the AIH. Long process to diagnose then she has had Labs every 6 weeks for the last year. Three meds later I think we finally found the one that is working for her.

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@marie69

My daughter is having a liver biopsy to test for autoimmune hepatitis. She was also just diagnosed with Crohn's. How serious is autoimmune hepatitis? Can it be treated? Does it require a liver transplant?

Jump to this post

@marie69, I want to encourage you to read the information that @johnbishop has shared with you about autoimmune hepatitis. You will read that the goal fo treatment is to slow or stop the progression of the disease. Organ transplant is condisered only when all other interventions have failed.
-Here is information about Crohn's Disease.
https://www.mayoclinic.org/diseases-conditions/crohns-disease/symptoms-causes/syc-20353304
– Both of these diseases are autoimmune in nature, and it is not unusual for them to appear together.

Marie, I was once suspected to have AIH, and have had my share of liver biopsies. I did need a transplant for another liver disease. It is important that your daughter is getting care from a qualified specialist. My PCP sent me to a GI (gastroenterologist) who was very knowledgeable about liver issues.
How old is your daughter? Do you have a GI (gastroenterologist)?

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@rosemarya

@marie69, I want to encourage you to read the information that @johnbishop has shared with you about autoimmune hepatitis. You will read that the goal fo treatment is to slow or stop the progression of the disease. Organ transplant is condisered only when all other interventions have failed.
-Here is information about Crohn's Disease.
https://www.mayoclinic.org/diseases-conditions/crohns-disease/symptoms-causes/syc-20353304
– Both of these diseases are autoimmune in nature, and it is not unusual for them to appear together.

Marie, I was once suspected to have AIH, and have had my share of liver biopsies. I did need a transplant for another liver disease. It is important that your daughter is getting care from a qualified specialist. My PCP sent me to a GI (gastroenterologist) who was very knowledgeable about liver issues.
How old is your daughter? Do you have a GI (gastroenterologist)?

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I am on the list as they call it.Its a very painful disease.Me .When my water weight came.When I used to be around 190. Turned to 260.1 different water pills prednisone loads of potassium and that awful lactalose.These meds helped me at least to get some good days back.It is scary to know you have it and how you go from day to day and not know if that sick and cold feeling is going to be there.That your going to be the 1st one germs attack.You can't let it beat you.Your scared cause you want to live.So you learn as much about it as you possibly can.Medicine has made huge research on us.I have 4 grown children.And if I have to leave because of this I'll take the test.It might be hereditary.Maybe I can help them or someone.

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@jtg8771

Yeah took us a long time to really find someone to talk to as well. My daughter was hospitalized for 3 days and had a colonoscopy, endoscopy, and liver biopsy. When she went into hospital her liver enzymes were in the 600- 900 range. These are the alt, ast, and alkaline phosphate levels. Multiple other lab test that were confusing the Dr and after basically ruling everything else out and the hepatitis panal finally came back is when they went with the AIH. Long process to diagnose then she has had Labs every 6 weeks for the last year. Three meds later I think we finally found the one that is working for her.

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@jtg8771, I am well acquainted with the regular routine labs. I began to feel like a pin cushion along my liver journey..
It sounds promising that your daughter might be on a medicine that is helping her.
I was once thought to have AIH (autoimmune hepatitis) by my GI. But he was not certain that was my problem and he sent me to a liver specialist for a 2nd opinion. I share this because I want you to know that if she is not having satisfactory results, that might be something to consider.
Does your daughter have any symptoms like fatigue or nausea?

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@gering69341

I am on the list as they call it.Its a very painful disease.Me .When my water weight came.When I used to be around 190. Turned to 260.1 different water pills prednisone loads of potassium and that awful lactalose.These meds helped me at least to get some good days back.It is scary to know you have it and how you go from day to day and not know if that sick and cold feeling is going to be there.That your going to be the 1st one germs attack.You can't let it beat you.Your scared cause you want to live.So you learn as much about it as you possibly can.Medicine has made huge research on us.I have 4 grown children.And if I have to leave because of this I'll take the test.It might be hereditary.Maybe I can help them or someone.

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@gering69341, Waiting for a transplant can be a painful and lonely time. I am a transplant recipient (Liver and Kidney 2009), I want to invite you to join me in the Transplant Group. You are welcome to join into any of the discussions by reading, and/or posting a comment or question.
My recommendation for a good beginning for you is "Liver pre-transplant question". I am confident that is you make a posted message, that you will be greeted by new friends who have experienced what you are now experiencing. You do not have to be alone. https://connect.mayoclinic.org/discussion/liver-pre-transplant-question/
I look forward to meeting you there.

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@rosemarya

@marie69, I want to encourage you to read the information that @johnbishop has shared with you about autoimmune hepatitis. You will read that the goal fo treatment is to slow or stop the progression of the disease. Organ transplant is condisered only when all other interventions have failed.
-Here is information about Crohn's Disease.
https://www.mayoclinic.org/diseases-conditions/crohns-disease/symptoms-causes/syc-20353304
– Both of these diseases are autoimmune in nature, and it is not unusual for them to appear together.

Marie, I was once suspected to have AIH, and have had my share of liver biopsies. I did need a transplant for another liver disease. It is important that your daughter is getting care from a qualified specialist. My PCP sent me to a GI (gastroenterologist) who was very knowledgeable about liver issues.
How old is your daughter? Do you have a GI (gastroenterologist)?

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She is 37 and yes, she has a gastroenterologist. The liver biopsy should be in about 2 weeks. She just received the Crohn's diagnosis last week.

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@johnbishop

Hello @luserm1 – Welcome to Mayo Connect. We are glad you found us. Connect is a good place to share your health concerns, ask questions and learn what others are doing for similar health concerns. I have no medical training or background but I do have an autoimmune disease – polymyalgia rheumatica (PMR). I take turmeric supplements to help with the inflammation and think it helps some. When I’m trying to find as much out as I can about a supplement, drug or treatment I will use Google Scholar (https://scholar.google.com/) which is great for finding research information. I did a search on your question – Is it beneficial to use turmeric for cirrhosis caused by autoimmune hepatitis? and it returned quite a few links that may be of interest to you.
https://scholar.google.com/scholar?hl=en&q=Is+it+beneficial+to+use+turmeric+for+cirrhosis+caused+by+autoimmune+hepatitis&btnG=&as_sdt=1%2C24&as_sdtp=
Can you share a little information about yourself and what you are doing for treatment now? It might be helpful for other Connect members with similar health concerns.

John

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This is Sanai and I am in 3rd stage of auto immune liver disease, my Numbers are in 8.0 and Ive been on Ursodiol 500mg three time a day for 25 years now , I just went through a lot of testing the last two months and second option from Liver specialist Barnes Univ. Hospital as well as In Belvidere IL , the results are as follow : my numbers have gone down by 2 , for which ever reason ., everything is stable right now but still in third stage. My medication have not changed , and not ready for a transplant do for. I read I can not take turmeric due to my medication interference, but I Aldo suffer with the fibromyalgia, it’s better when I follow my diet with veg/fruit , very low sugar intake, low salt, and keeping my stress down.
As a suggestion, read your meds and any herbs combo before you start taking anything, you don’t want any Interference.
Please give me any feed back on your liver condition , where as I’m open for good suggestions.
Thanks

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@marie69

She is 37 and yes, she has a gastroenterologist. The liver biopsy should be in about 2 weeks. She just received the Crohn's diagnosis last week.

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@marie69, I am going to quess that this is her 1st liver biopsy. I have read about a range of different experiences that patients have had with the procedure. I have had experience at several different clinics. Each hospital or clinic was handled in a slightly different manner, but they all involved a numbing shot, and a punch needle to obtain 3 samples. My experience was more worrisome to me the procedure. It is quick, so any discomfort quickly gone. The assistant talked to me the whole time to distract me. Afterward, I had to lie flat while my vital signs were monitored to be sure there was no bleeding. I think that was the hardest part for me – lying there and waiting to be discharged. I remember that I took some tylenol for minor discomfort afterward.
Keep in touch.

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@punky1973

I just found out I have this. Can anyone give me some helpful insight on how they are coping with this disease

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Hello @punky1973, Welcome to Connect. There is another active discussion on autoimmune hepatitis where your post will receive more visibility and you can meet others and learn how they are coping with the disease. I'm tagging our moderator @ethanmcconkey to see if we can move your post here:

> Groups > Autoimmune Diseases > Autoimmune hepatitis*
https://connect.mayoclinic.org/discussion/autoimmune-hepatitis-1/

Did your doctor offer any suggestions or treatments to help with your symptoms?

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