Autoimmune hepatitis*

Posted by luserm1 @luserm1, Sep 15, 2017

Is it beneficial to use turmeric for cirrhosis caused by autoimmune hepatitis?

@gabrella

Am 22 years old newly diagnosed with autoimmune hepatitis i am considering if can i take doxycycline for acne while am using Prednisolone and azathioprine ? And does anyone use Prednisolone and azathioprine before ? because i am afraid from their sides effect

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@gabrella Gabrella, It is good to hear that you are seeing a GI because they have the specialized training to monitor your AIH.

I understand your disappointment, and perhaps fear, at the diagnosis – especially at your young age. However, I have learned from my experience and 68 years of living, that learning about your disease from reliable sources (Mayo is the best) and being proactively involved with your doctor in your treatment is the best thing you can do.

Since, I did not have AIH, I have no experience of my own to share with you. Instead I want to share the link that will take you to Mayo Clinic’s Patient Care and Health Information. By clicking on this link, you will go directly to the autoimmune hepatitis section. Here you will find accurate information about AIH plus questions to ask your doctor.
https://www.mayoclinic.org/diseases-conditions/autoimmune-hepatitis/symptoms-causes/syc-20352153
I look forward to hearing from you.
Let me know if this helps.
Rosemary

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Hi @gabriella,

Here’s some information from Mayo Clinic, about doxycycline and possible drug interactions, which you may also wish to view:
https://www.mayoclinic.org/drugs-supplements/doxycycline-oral-route/before-using/drg-20068229

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@luserm1, I want to wish you well on your check-up in December. I hope that you are feeling well. Have you received the results of your liver tissue biopsy yet?
Rosemary

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@gabrella, I hope you found the information on AIH to be helpful.

One thing that all liver diseases have in common is that they put stress on our liver and make it work harder. So we, the patients, can help it by making healthy lifestyle choices like physical exercise, healthy eating, limiting or avoiding alcohol use. Another thing is to consult with your GI before taking any about any prescription or over the counter medications. Some herbal supplements are also harmful to the liver. I realize that at the wonderful age of 22 this might seem overwhelming. Your GI should be able to give you direction for your own situation.

I was sent to GI by my PCP after abnormal liver function numbers on repeated routine labs. After a series of blood tests ruled out other liver conditions, my GI suspected AIH because I do have some history of autoimmune conditions in my family, plus I have vitiligo. Unfortunately for me, it did not stop there, and I needed to be referred to Liver specialist for different condition.

Gabrella, May I ask you, what led you to the GI for diagnosis of AIH?
Rosemary

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@johnbishop

Hello @luserm1 – Welcome to Mayo Connect. We are glad you found us. Connect is a good place to share your health concerns, ask questions and learn what others are doing for similar health concerns. I have no medical training or background but I do have an autoimmune disease – polymyalgia rheumatica (PMR). I take turmeric supplements to help with the inflammation and think it helps some. When I’m trying to find as much out as I can about a supplement, drug or treatment I will use Google Scholar (https://scholar.google.com/) which is great for finding research information. I did a search on your question – Is it beneficial to use turmeric for cirrhosis caused by autoimmune hepatitis? and it returned quite a few links that may be of interest to you.
https://scholar.google.com/scholar?hl=en&q=Is+it+beneficial+to+use+turmeric+for+cirrhosis+caused+by+autoimmune+hepatitis&btnG=&as_sdt=1%2C24&as_sdtp=
Can you share a little information about yourself and what you are doing for treatment now? It might be helpful for other Connect members with similar health concerns.

John

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@johnbishop John what is the normal levels for ana? Because the last time was taken was 11.3 I was just always doctors that it was high. And are they suppose to be checked often? And as I see that was the last test results.

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@johnbishop

Hello @luserm1 – Welcome to Mayo Connect. We are glad you found us. Connect is a good place to share your health concerns, ask questions and learn what others are doing for similar health concerns. I have no medical training or background but I do have an autoimmune disease – polymyalgia rheumatica (PMR). I take turmeric supplements to help with the inflammation and think it helps some. When I’m trying to find as much out as I can about a supplement, drug or treatment I will use Google Scholar (https://scholar.google.com/) which is great for finding research information. I did a search on your question – Is it beneficial to use turmeric for cirrhosis caused by autoimmune hepatitis? and it returned quite a few links that may be of interest to you.
https://scholar.google.com/scholar?hl=en&q=Is+it+beneficial+to+use+turmeric+for+cirrhosis+caused+by+autoimmune+hepatitis&btnG=&as_sdt=1%2C24&as_sdtp=
Can you share a little information about yourself and what you are doing for treatment now? It might be helpful for other Connect members with similar health concerns.

John

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Hi Lisa (@techi) — that’s a great question but I don’t really know the answer. I did find a reference values for the ANA test and some information on interpretation of the test on the Mayo Clinic website:
https://www.mayomedicallaboratories.com/test-catalog/Clinical+and+Interpretive/9026
John

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I know for liver there is little substitute for Milk Thistle which if you were diagnosis of cirrhosis in Germany or Japan….. the doctors would give you a prescription for ‘Milk Thistle’ …..

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@johnbishop

Hello @luserm1 – Welcome to Mayo Connect. We are glad you found us. Connect is a good place to share your health concerns, ask questions and learn what others are doing for similar health concerns. I have no medical training or background but I do have an autoimmune disease – polymyalgia rheumatica (PMR). I take turmeric supplements to help with the inflammation and think it helps some. When I’m trying to find as much out as I can about a supplement, drug or treatment I will use Google Scholar (https://scholar.google.com/) which is great for finding research information. I did a search on your question – Is it beneficial to use turmeric for cirrhosis caused by autoimmune hepatitis? and it returned quite a few links that may be of interest to you.
https://scholar.google.com/scholar?hl=en&q=Is+it+beneficial+to+use+turmeric+for+cirrhosis+caused+by+autoimmune+hepatitis&btnG=&as_sdt=1%2C24&as_sdtp=
Can you share a little information about yourself and what you are doing for treatment now? It might be helpful for other Connect members with similar health concerns.

John

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I have a question about Prednisone and dosage…. when I arrived at the ER with what they thought was Polymalgia Rheumatica (PMR) They gave me a high dosage shot of Prednisone 100mg I believe, then another 20 about 8 hrs later…. An hour or two after the last pill I stood up on my own 5 times…. I told this to my girlfriend who is an MD she suggested I consider an aggressive attack on this by going high dosage 80mg for three days…. 70 for three on down until I was on only 10mg…. withing 4 days of the regimen I recovered fully enough to stand unaided for the next month…. My question is this…. If I would have stayed at 20 a day instead of the increased dosage, would I be able to stand on my own now or would I have been stuck at not being to stand unaided???? Do or have people plateaued in recovery by staying at a minimum dosage??? Or does this just represent normal and I would have eventually been able to stand/lift my arms over my shoulders??? I have a sense the aggressive use of the steroid over a small period of time it was the right course and if I did not try that….. I would have been stuck at that place waiting for healing to come….

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@johnbishop

Hello @luserm1 – Welcome to Mayo Connect. We are glad you found us. Connect is a good place to share your health concerns, ask questions and learn what others are doing for similar health concerns. I have no medical training or background but I do have an autoimmune disease – polymyalgia rheumatica (PMR). I take turmeric supplements to help with the inflammation and think it helps some. When I’m trying to find as much out as I can about a supplement, drug or treatment I will use Google Scholar (https://scholar.google.com/) which is great for finding research information. I did a search on your question – Is it beneficial to use turmeric for cirrhosis caused by autoimmune hepatitis? and it returned quite a few links that may be of interest to you.
https://scholar.google.com/scholar?hl=en&q=Is+it+beneficial+to+use+turmeric+for+cirrhosis+caused+by+autoimmune+hepatitis&btnG=&as_sdt=1%2C24&as_sdtp=
Can you share a little information about yourself and what you are doing for treatment now? It might be helpful for other Connect members with similar health concerns.

John

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Hi @reagan1mc — I was first diagnosed with PMR back in 2007 and could barely stand up and had to use a walker to get to my appointment with the rheumatologist. He diagnosed the PMR and put me on 20 mg prednisone. I filled the prescription that morning after the appointment and took the first 20 mg dose just before lunch. I had a second appointment that afternoon with the rheumatologist and much to my amazement no longer needed the walker to get around. It took me 3 years to taper off of prednisone, the last 6 months going between 1 mg to 1/2 mg back and forth until I finally was able to be off of the prednisone and still function OK. The PMR stayed in remission for 6 years and came back in 2016. I was put back on 20 mg prednisone and am not down to 2 mg a day hoping to be off of it in another month or two. I think everyone is a little different which is what my rheumatologist told me also. I don’t think you are ever cured of polymyalgia rheumatica. The prednisone just controls the inflammation and hopefully it goes back into remission.

I do think it’s important to keep being as active as possible without overdoing it. Your questions are ones a lot of us have had and I think there are a myriad of answers due to us all being affected a little differently by the disease. I’m have no medical training or experience but it’s my understanding is that the goal is to start at the lowest dosage of the prednisone that controls the pain from the PMR and then tapering down the dosage on a schedule of some sort to see if you can function at a lower dosage until you can finally get off of the prednisone.

Have you met with a rheumatologist? It would be a good set of questions for a rheumatologist.

Hope you find some answers.

John

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@autohepa321

Our daughter was just diagnosed at 17yrs old. We’ve just begun understanding what this is and what it means for her self-care, lifestyle, and long-term treatment. How has this chronic illness impacted you?

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Hello @autohepa321 — Welcome to Connect. Thank you for advocating for your daughter. The best thing you can do is learn as much as you can about her health condition and learn what others with similar symptoms and conditions have experienced. I'm tagging our moderator @ethanmcconkey to see if we can move your post to the following existing discussion on autoimmune hepatitis where it will receive move visibility.

> Groups > Autoimmune Diseases > Autoimmune hepatitis*
https://connect.mayoclinic.org/discussion/autoimmune-hepatitis-1/

I did find an article that may help you learn a little more about autoimmune hepatitis.

Patient education: Autoimmune hepatitis (Beyond the Basics)
https://www.uptodate.com/contents/autoimmune-hepatitis-beyond-the-basics

What is the most difficult part of being diagnosed with autoimmune hepatitis had on your daughter?

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Our daughter was just diagnosed at 17yrs old. We’ve just begun understanding what this is and what it means for her self-care, lifestyle, and long-term treatment. How has this chronic illness impacted you?

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Hi @autohepa321 I wanted to join @johnbishop in welcoming you to Connect. You may have noticed I moved your post to the discussion John suggested, so that you can connect with others who had similar experience. Simply click VIEW & REPLY in your email notification to get to your post.

How have you been doing helping your daughter handle this diagnosis?

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