Autoimmune Diseases and Fatigue

Posted by JohnWBurns @johnwburns, Jul 13, 2016

Fatigue is probably intertwined with the definition of “illness”, almost any illness, but with some conditions fatigue becomes ingrained into the afflicted person’s being and is a feature of their daily life. Such is the case with the highest profile disorders, cancer and cardiovascular disease, but it is just as true with at least some autoimmune diseases. I have a long history of dealing with autoimmunity and the complaint that kept bringing me back to doctors persisting in finding out what was going on was the dogged lack of energy, vitality. I got guess after guess after guess and when I got the “answer” it was basically that fatigue was part of the deal with the autoimmune disease that I have, Sjogren’s, as well as I’m sure many others. So what I’m asking here is if you experience it, fatigue, how has it impacted your life and how do you deal with it? Have you found anything that you are sure mitigates it?

In my case its exercise, rest, and a fairly regulary low dose, around 50 mgs (usual recommended dose 200 mg) of modafinil, which I don’t take for Sjogren’s but rather for “Excessive Daytime Sleepiness” linked to Obstructive Sleep Apnea. I accidentally found out that it mitigated my general weariness. I’ve read some solid studies that found that American Ginseng can help cancer-related fatigue but apparently it doesn’t work for Sjogren’s, for me at least. Since fatigue impacts a person’s total life experience in all domains, any information that might lead to dampening or controlling it would be very helpful to a lot of folks I’m sure.

@lioness

@rivergirl8243 Have you seen your cardiologist? Or Ear Dr My balance was off but no weakness on my side I suggest you have a battery of test by your car diologist with the one side weakness

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Could you share what kind of ear exercises you did? That sounds like a nice option to try. Thanks…

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@lindalm

Could you share what kind of ear exercises you did? That sounds like a nice option to try. Thanks…

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the ENT doctor gave me instructions for the epley maneuver. You can find it online. hope this helps

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@lindalm – Here's a video of the Epley Maneuver.

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@kyjeanne

Fatigue has been a major impact. I had to quit my job last October due to extreme fatigue. I have Sjogrens, Hashimotos, Fibromyalgia and many other illnesses. I’ve found that since I don’t have to force myself to get up for work, I can sleep later and rest some during the day as needed. That has been my life saver. Plus, I have a very supportive husband. I have Restless Leg Syndrome and a lot of aches and pains, which make it difficult to sleep. I use 5 pillows at night, which helps, and take Ropinorole (for RLS) and Trazodone (for sleep). When I do sleep, it seems I dream a lot. Is dreaming a problem with anyone else?

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I am curious, do you have good magnesium and potasium levels? I get restless legs, feet and calves ect if i dont take lots of those two suppliments and STRETCHING REALLY HELPS for me.
Lol, i also sleep with 5 pillows!

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I recently found that you can become low on magnesium if you are taking Nexium, or similar. Besides PT stretches, including those for piriformis, I find that massage for edema really helps as I am lying down for bed. Gentle massage from toes to torso for painful areas on legs; works for arms too. (directions on you tube) I put cbd salve on the most painful areas. ice/moist heat also helps, elevation and a daily walk. I suspect that some of it may be spine or other dislocated joints that the PT stretches really help. Anecdotally, I've heard that pickle juice or tonic water help. I have a posturpedic mattress with a topper – 3 lb density. One pillow, between knees, and sleeping with knees bent seems to be a better position.

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@oobie97

I am curious, do you have good magnesium and potasium levels? I get restless legs, feet and calves ect if i dont take lots of those two suppliments and STRETCHING REALLY HELPS for me.
Lol, i also sleep with 5 pillows!

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Hi @oobie97, Welcome to Mayo Clinic Connect. Thanks for sharing what helps you with restless leg syndrome. There are a couple of other discussions you might be interested in following to learn what others have shared.

– Periodic Limb Movement Disorder: https://connect.mayoclinic.org/discussion/periodic-limb-movement-disorder/
– Peripheral neuropathy, RLS and PLMD: https://connect.mayoclinic.org/discussion/peripheral-neuropathy-rls-and-plmd/

Do you also have fatigue along with restless leg syndrome?

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