Autoimmune Diseases and Fatigue
Fatigue is probably intertwined with the definition of “illness”, almost any illness, but with some conditions fatigue becomes ingrained into the afflicted person’s being and is a feature of their daily life. Such is the case with the highest profile disorders, cancer and cardiovascular disease, but it is just as true with at least some autoimmune diseases. I have a long history of dealing with autoimmunity and the complaint that kept bringing me back to doctors persisting in finding out what was going on was the dogged lack of energy, vitality. I got guess after guess after guess and when I got the “answer” it was basically that fatigue was part of the deal with the autoimmune disease that I have, Sjogren’s, as well as I’m sure many others. So what I’m asking here is if you experience it, fatigue, how has it impacted your life and how do you deal with it? Have you found anything that you are sure mitigates it?
In my case its exercise, rest, and a fairly regulary low dose, around 50 mgs (usual recommended dose 200 mg) of modafinil, which I don’t take for Sjogren’s but rather for “Excessive Daytime Sleepiness” linked to Obstructive Sleep Apnea. I accidentally found out that it mitigated my general weariness. I’ve read some solid studies that found that American Ginseng can help cancer-related fatigue but apparently it doesn’t work for Sjogren’s, for me at least. Since fatigue impacts a person’s total life experience in all domains, any information that might lead to dampening or controlling it would be very helpful to a lot of folks I’m sure.
Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.
Shellfish is so bad for us all & I to became very reactive to it also. Good luck on finding what works best. I will write again if I find anything that works really well for pain.
@ginjax28 Thanks I will tell him
No I have not been tested for EBS I get skin lesions on arms and legs
@soteloli Talk to your Dr about viruses EBV and H S virus this one gives you coldsores and chickenpox
@lioness: It is a blend yes….. smells a bit like wintergreen….I hope it helps
@suecreader Goodmorning Thanks I do use Wintergreen Alcohol but will look for thinks
I have autoimmune deficiency with diabetes, vitaligo and hashimoto's markers. I also have Sleep Apnea and had the sleepinspire device implanted for that. However, even after all of that, I still feel tired almost all of the time.
Hello @rjwilliajx, Welcome to Connect. I also have sleep apnea and have been using a CPAP for a little over a year. I still feel tired most of the time. Many people I've talked with that have sleep apnea and are using a CPAP regularly have told me that it takes about a year or so before you start seeing the benefits. I'm hoping that's the case for me.
How long have you had the Inspire device implanted for your sleep apnea?
There is also another discussion started by @jonjacobjingleheimerschidt where @wgatap21 and other members are looking for members who are using the Inspire device. You may want to share your experience with Inspire here:
> Groups > Sleep Health > Inspire Upper Airway Stimulation
Anyone here diagnosed with autoimmune fatigue and or Chronic Fatigue?
Hello. I am in the middle of dealing with autoimmune issues. The most likely culprit is Sjogren's (because of high SSA & SSB antibodies). I have decided to try a supplement called "Balance of Nature" My husband swears that it has helped with his fatigue and pain and wants me to try it as well. At this point I'm willing to try just about anything. Fatigue and dry eyes/dry mouth as well as abdominal pain are my main complaints. If the Balance of Nature supplements help me I will make a point to let you know. Keep your chin up. I know it's hard sometimes. I've found that forcing myself to stay active even when I don't feel like it is much better in the long run than surrendering to inactivity. Hoping things improve for both of us.