Autoimmine Hepatitis +stage 2 liver cirrhosis/fatty liver

Posted by MyKai17 @mydiamondsx8, Apr 10 9:36am

I have AIH +stage 2 liver cirrhosis+fibromyalgia,(diagnosed in Sept 2023) and a nodule on my parathyroid which will be surgically removed in July, and high levels of PTH. I am not on meds at the moment for AIH because Azathioprine & Budesonide make me ill to the point I can barely move and I am in severe pain,Prednisone does not help either. Recently I am experiencing right flank pain from the liver that wraps around to the back, and inflammation on the abdomen to the point I look pregnant, and I can hardly bend down. Anyone experiencing any of these AIH/liver symptoms?

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covidstinks2023 | @covidstinks2023 | Apr 11 8:47am

I battle a fatty liver and the answer for me is keeping extra weight off. If I gain 5-10 lbs., the alkaline Phosphatase is elevated. When I lose weight, it comes back down within normal range. Praying and wishing you the best.

larry68 | @larry68 | Apr 11 8:47am

No but i hope you find a pain reliever that works for YOU!! I have a bit of pain in my neck up to the ear mainly on left side continuously and it bites.

gema98 | @gema98 | Apr 12 7:57am

I was diagnosed NAFLD, PBC and cirrhosis at age 69 after labs, ultrasound and liver biopsy. Doctor said I probably had it for years and I am asymptomatic so no pain back then. I was prescribed Ursodiol for my liver I have sleep issues so tired a lot. You should see a hepatologist if you have not yet, especially with your tummy swollen. We cant cure cirrhosis with a pill but with healthy diet and exercise we can feel better. Take care 💚

slkanowitz | @slkanowitz | Apr 13 4:37pm

I would recommend seeing your doctor, the liver specialist to rule out ascites from the cirrhosis. That’s an accumulation of fluid in the abdominal cavity that makes the belly distended and uncomfortable. An ultrasound can be done to determine the extent of fluid accumulation and it can be drained if excessive. This should be done ASAP. Shortness of breath and swelling in legs/feet need attention if present as they are part of this same process. I’m sorry you are experiencing this and hope you get the help you need. Our immune systems can cause such damage when it turns against our own bodies. It will be great when scientists figure out how to prevent these autoimmune disorders!