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Asking for help as the caregiver (husband 20 yrs with Parkinson's)

Posted by cacrouch1958 @cacrouch1958, Aug 8 10:51pm

For 20 of our 33 years of marriage has been focused on my husband’s slowly progressing Parkinson’s. The last 6-9 months have been increasingly stressful. I’m beyond being overwhelmed. He is falling almost weekly, his voice is softer/more mumbled, little short periods of confusion. We have never fought; disagreed but always compromising to make the other happy. We now are arguing more with many ended often in a fight.

I’m at a lost. Feeling so hopeless and helpless. I’m broken hearted and so sad. I’m not as strong as others see me. My faith in God keeps my mind at comforted but my heart is racing and lacking strength to continue. I lack the strong hugs of reassurance.

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

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cmdw2600 | @cmdw2600 | 2 days ago
In reply to @mira98 "I empathize with you, husband was diagnosed 10 years ago with parkinsons and now has mild..." + (show)
Profile picture for mira98 @mira98

I empathize with you, husband was diagnosed 10 years ago with parkinsons and now has mild dementia, he has anger outbursts with me and most recently this occurred the day after I had surgery. I'm finding the loss of my partner both physically and mentally extremely difficult. We're going to be needing changes here as I can't take it anymore. There's been total breakdown of our 35 year relationship. I am so lost. Wishing you peace.

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@mira98
Like you, I am grieving the gradual loss of my husband. He was also diagnosed almost 10 years ago. Our world has become small. We have a son who is very helpful and lives nearby but the day to day living makes me sad (him too, of course). It’s the first thing I think of when I wake up.

I try meditation, deep breathing, support groups, etc., but there’s only so much that these aids can do. Best wishes to you and all on this forum. Cindy

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plutod | @plutod | 21 hours ago
In reply to @colleenyoung "@coachwock, you will be able to add links to your posts in a few days. There..." + (show)
Profile picture for Colleen Young, Connect Director @colleenyoung

@coachwock, you will be able to add links to your posts in a few days. There is a brief period where new members can't post links. We do this to deter spammers and keep the community safe.

Allow me to post the Helpline information that you were trying to post to kindly help @cacrouch1958. 🙂

Parkinson's Foundation Helpline
1-800-4PD-INFO (1-800-473-4636)
Helpline@Parkinson.org
https://www.parkinson.org/resources-support/helpline

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@colleenyoung

Thank you

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