Ashamed: I think about (and plan for) dying. Do you?

Posted by olgamarie @olgamarie, Feb 7, 2021

Hi, did anyone, after there cancer and COPD diagnosis start to think about dying? After almost four years, I still do, all the time. Planning my funeral, how to leave my children, how it will be to be in a coffin. Bizarre, I know.

Interested in more discussions like this? Go to the Lung Cancer Support Group.

@IndianaScott

Hello @tahoerox99 I read your post with interest. Thankfully my wife and I did our final arrangements planning while she was still mentally able. It may not be for everyone, but here’s what we did.

We started with our medical decisions — HIPPA, DNRs, etc. Then we moved on to our basic final arrangement desires, leaving the who, when, etc. to the survivor. So we did things like wanting cremation, a celebration of life (no funeral), etc. She even picked her songs, eulogists, music, where to spread her ashes, etc. without worrying about what company would do it. She then gave several meaningful gifts to family and friends while she was alive and could share their meaning and stories with each recipient. Then we did the legal stuff — wills, marital trust, estate plans, POAs, and durable medical POAs.

It was hard, especially to start, but incredibly valuable to her, me, and our children.

Strength, Courage, & Peace

Jump to this post

@IndianaScott Your last two lines say it all. @tahoerox99 There is a lot of wisdom in Scott's post.

I was involved in probate court proceedings and saw how families can be left with no clear idea what direction to take, what to do. If a person has specifics, having things down in writing will make the grieving process easier. And in my father's case, he had things expressed, in writing, but some were not as detailed as he was wont to do, which left interpretations by family members. Those interpretations were not always the same!

We do not always have the opportunity to pick our "expiration date", but we do have the choice to be prepared.
Ginger

REPLY

I have my funeral planned. Pallbearers, servers, reader, musician , soloist, songs, and readings. Took me weeks but love everything I picked out. My mother had her’s planned for us and really made it easy. Siblings are happy as I gave a copy to one. Feel no guilt.

REPLY
@richcolleen

I have my funeral planned. Pallbearers, servers, reader, musician , soloist, songs, and readings. Took me weeks but love everything I picked out. My mother had her’s planned for us and really made it easy. Siblings are happy as I gave a copy to one. Feel no guilt.

Jump to this post

My Mom did the same, even making a list of prized possessions and who would get each one, as well as listing her music, presider, etc for the funeral. The funeral director was in awe - he said he never saw a large family so much in agreement about how everything was handled.

My friend just passed after less than 3 weeks in hospice, but as soon as he made the decision, he and his wife called their kids together and did all the planning the very first weekend. This not only included planning his funeral, but also his final care, at home. He also asked to see his sister, brother-in-law and nieces to say good-bye in person, and a few close friends. Then he went on to address other things he was concerned about - who would get his extensive collection of tools, making sure there was a plan to help his wife continue to spend her winters down South, etc.
These first weeks since his death have been much easier for the family, knowing everything was done "how Dad wants it."

This is a wonderful gift to loved ones.
Sue

REPLY

I don't think it's bizarre at all. I think about it all the time too. I think about what my last days will be like; how will I die? Will I be awake as I suffocate, I live alone so what will happen to me when things get really bad, how do I get rid of my household items. I've just found out I have COPD and I haven't even seen the pulmonologist yet to get info on this disease. This group has been my saving grace of getting through questions I have, listening to people like you that have the same fears I do, bless your heart. I'm scared to death of not knowing what the end will be like. I'm a Christian and I depend on The Lord for everything but I can't seem to let this fear go away. I guess it's because I have no idea what I'm facing and the unknown is always scary for me. But I love reading the comments that others have shared with you. They all give me strength and hope and they are all great ideas. I'm still not clear about being buried or being cremated. I want to be cremated but I'm not sure how The Lord feels about that. I've reached out to the Pastor and tried to find something in The Bible either for or against it and have found nothing. Same with the Pastor. So it's just up to me I guess. But in no way do I see your thoughts as bizarre. To me, they are normal thoughts that anyone would be thinking about in your situation. Thank you for sharing your thoughts and helping me share mine. That's why I love this group.

Grace to you.
Shirley

REPLY
@IndianaScott

Hello @tahoerox99 I read your post with interest. Thankfully my wife and I did our final arrangements planning while she was still mentally able. It may not be for everyone, but here’s what we did.

We started with our medical decisions — HIPPA, DNRs, etc. Then we moved on to our basic final arrangement desires, leaving the who, when, etc. to the survivor. So we did things like wanting cremation, a celebration of life (no funeral), etc. She even picked her songs, eulogists, music, where to spread her ashes, etc. without worrying about what company would do it. She then gave several meaningful gifts to family and friends while she was alive and could share their meaning and stories with each recipient. Then we did the legal stuff — wills, marital trust, estate plans, POAs, and durable medical POAs.

It was hard, especially to start, but incredibly valuable to her, me, and our children.

Strength, Courage, & Peace

Jump to this post

What happens to people like me that have a life insurance policy that wouldn't even pay for the urn? I have no estate, just a 1-bedroom apartment. I have no money to pay for cremation nor does my family. What do people do when they face this problem and where do I start to turn that around now with life insurance, IF, I can even get it now? I have things written down on who gets what but nothing is in a will. I don't even know if my credit cards have insurance on them to be paid should I die. I made some incredibly bad mistakes about my financial situation and now I'm paying for that and don't know how to correct it at this point. Any suggestions would really be appreciated.

Grace be with you,
Shirley

REPLY
@mamawnebel

What happens to people like me that have a life insurance policy that wouldn't even pay for the urn? I have no estate, just a 1-bedroom apartment. I have no money to pay for cremation nor does my family. What do people do when they face this problem and where do I start to turn that around now with life insurance, IF, I can even get it now? I have things written down on who gets what but nothing is in a will. I don't even know if my credit cards have insurance on them to be paid should I die. I made some incredibly bad mistakes about my financial situation and now I'm paying for that and don't know how to correct it at this point. Any suggestions would really be appreciated.

Grace be with you,
Shirley

Jump to this post

Great questions. You’re so wise to think about death and planning in advance. Family members may not wish to talk about because they can’t bear the thought. But when the time comes, it can bring family comfort to know they are fulfilling your wishes within your means and to not be burdened with guilt of paying more than they can afford.

It’s not easy to find unbiased information from sources that aren’t trying to sell you something. Here are a few places you can start:

National Institute on Aging:
- Getting your Affairs in Order https://www.nia.nih.gov/health/getting-your-affairs-order

AARP
- 8 Tips for Funeral Planning https://www.aarp.org/home-family/friends-family/info-2020/funeral-planning-tips.html

Each of these articles have more links for further reading too.

Mamawnebel, I’ll be interested to hear what you found to be useful.

REPLY
@colleenyoung

Great questions. You’re so wise to think about death and planning in advance. Family members may not wish to talk about because they can’t bear the thought. But when the time comes, it can bring family comfort to know they are fulfilling your wishes within your means and to not be burdened with guilt of paying more than they can afford.

It’s not easy to find unbiased information from sources that aren’t trying to sell you something. Here are a few places you can start:

National Institute on Aging:
- Getting your Affairs in Order https://www.nia.nih.gov/health/getting-your-affairs-order

AARP
- 8 Tips for Funeral Planning https://www.aarp.org/home-family/friends-family/info-2020/funeral-planning-tips.html

Each of these articles have more links for further reading too.

Mamawnebel, I’ll be interested to hear what you found to be useful.

Jump to this post

Colleen, you're an angel. Thank you so very much for reaching out to me and sending me the links. I will definitely look at them and hopefully find the information I need and will definitely let you know the outcome. This is just one wonderful reason why I love this group so much. Gracious people like you have answers for people like me and are willing to share it. God bless you so richly. I can now feel better hopefully getting my affairs in order, hopefully without burdening my children. I found it comforting when my Mother asked me to help her with her final wishes. I knew she was scared and didn't know exactly what to do and didn't want to go alone. Thankfully I'm used to making my decisions alone and I don't mind that, however, I do wish my girls would take more interest, especially in the things I want them to have. But it is what it is. I'm a firm believer that The Good Lord will see that things will be taken care of through great people like you to steer me through.

Grace be with you always,
Shirley

REPLY
@zoelife

In dreams I have seen myself being in my glorified body that Jesus will provide me when mortality puts on immortality (because I have chosen Him for my prize now and in the life eternal that is to come later on).

FYI: when one passes away their spirit departs from their body to where they have no awareness of being in a coffin.

Do you have life insurance? Whether or not you do, a friendly suggestion is to think about eternal life insurance. If you don’t already have it, Jesus offers it for free (paid in full) but just requires we accept it and Him. 😇

Jump to this post

Dearest Zoelife, oh how I love your outlook. I too am a Christian and believe as you do on our afterlife with my Savior. Even though I worry about the last moments of my life I know that my last breath here will be my first breath with The Lord and that is such a peaceful feeling. You refer to Him as your Prize. I love that and I'll remember that from now on. He's what I look forward to as well. When I can get past the fears of the unknown, there really is peace with Him. Being just diagnosed with COPD, I'm in shock and in fear of not knowing what to expect. I have a ton of questions for my Pulmonologist at my first visit, but this group has been so much help for me. I thank God I found it and found precious people like you to help me and others through the tough times. I pray God richly blesses you for being there for me and others and I pray you continue giving such a beautiful testimony for The Lord. We never know how our words may not only help the anxiety of others but also bring them to The Lord. Never stop lifting up our Savior and keep encouraging us as we all go through our disease process together.

Grace be with you always,
Shirley

REPLY
@mamawnebel

Colleen, you're an angel. Thank you so very much for reaching out to me and sending me the links. I will definitely look at them and hopefully find the information I need and will definitely let you know the outcome. This is just one wonderful reason why I love this group so much. Gracious people like you have answers for people like me and are willing to share it. God bless you so richly. I can now feel better hopefully getting my affairs in order, hopefully without burdening my children. I found it comforting when my Mother asked me to help her with her final wishes. I knew she was scared and didn't know exactly what to do and didn't want to go alone. Thankfully I'm used to making my decisions alone and I don't mind that, however, I do wish my girls would take more interest, especially in the things I want them to have. But it is what it is. I'm a firm believer that The Good Lord will see that things will be taken care of through great people like you to steer me through.

Grace be with you always,
Shirley

Jump to this post

Sometimes it’s the simple things. My mom and I talked about her final days, which given her (our) family genes is still a long ways off although she is in her 80s. It gives me great comfort to know that should she not be able to talk, I can give her comfort by 1) massaging her calves because she has restless leg syndrome and 2) read to her passages from the bible. I’m now equipped with knowing what to do. And on the other hand, my dear friend has let me know that I’m to swabbed her lips with tequila. That is her wish for final days. While I may not have the opportunity to administer to either, it gives me great comfort NOW to know what I should do when the time comes.

I hope your children may be able to embrace the power of such knowledge. Or perhaps a friend.

REPLY
@loribmt

@olgamarie Hi Olgamarie. There is no shame in your feelings! Any time we get a diagnosis of cancer it’s perfectly human to have our first thoughts be of our mortality. That dreaded “C” word sparks fear in the bravest of souls. You said you were diagnosed 4 years ago with cancer and COPD. Have you had treatments for your cancer and follow-up appointments? What does your oncologist say about your recovery and remission? Do you feel ill? Four years is a very long time to have negative thoughts if they aren’t warranted.

Having gone through a very serious cancer journey myself, I admit there is a change in my mindset about having ‘affairs in order’ so that my daughter doesn’t have this Herculean job ahead of her taking care of things I have the ability to do now. It’s ok to preplan a funeral, rid the house of items no longer needed, have banking accounts, paperwork and information about bills and such organized. But it does sound as though you’re focusing more about death than is healthy for your daily happiness and positive outlook.

Do you have any hobbies or like to read, walk, exercise? Activities that create a good diversion would be important to refocus your mindset to a more positive place. Have you talked to your children about how you feel? Obviously this is troubling for you. It might be really beneficial to contact your physician and talk about your situation so that you can get some reassurance about your health. They may recommend a counselor to help you move past this so that you can enjoy your life to the fullest. Wishing you all the best! Lori.

Jump to this post

Lori, OMGosh, I love all of the great suggestions you gave to Olgamarie. Seems like some of the most simplest ideas are the last ones we think about. The hardest thing I've found is getting my children to talk with me about my COPD. They act as though nothing is wrong and I'm not good when it comes to asking for help from them because they have their family to take care of and they work full time jobs. I don't like to impose myself on them. I've tried dropping hints but they don't take hints either. I guess it's like others have said, as long as I'm sitting up and eating whole foods I must be OK. But I do try as much as I can without outside help. I don't want to use up all my "help chips" until the time comes when I can't sit up and do things by myself. But I will definitely be doing the things you suggested like getting rid of things I don't really use or need now. The things I was going to give to my family after i pass I can give to them now. It's gracious people like you why I love this group so much. So many great ideas on how to live with our diseases or just words of encouragement can be so helpful for the soul. God bless you, Lori, and thank you for the advice and suggestions you gave to Lori. They even helped me and I hope they helped others too. Have a great day and be at peace.

Shirley

REPLY
Please sign in or register to post a reply.