Ascending thoracic aneurysm: What should I do and not do?

Posted by mustangsally67 @mustangsally67, May 6, 2020

Last year I was diagnosed with a dilation, that measured 3.9 had a Thoracic CT on now it is 4.3. The cardiologist said to repeat in one year. Is this ok. I am 71 yrs old. Also what should I not be doing, and also what should I be doing

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@tdan4

New to forum. 71 y o male, 6'4' rated obese. Two weeks ago, my regular doc sent me for echogram which showed aortic root at 4.1 and ascending aorta at 4.7. Sent then to CT which showed ascending at 4.8. Have received a message from my reg. doc that at my next visit (next week) we are going to discuss my results. Have a feeling I'll be seeing a heart doc in the near future. lol. I have a few other health issues and this news of a heart situation was completely unexpected. Have not shown any symptoms of what I would probably imagine. I had been diagnosed with degenerative joint disease for a couple of decades now, and have had both knees totally replaced about 14 years ago. Been under care of a rheumatologist for about 7 years, and currently going for chemo infusions of Rituxan to slow the deterioration timeframe down. Rituxan is notorious for hurting the autoimmune system. I don't smoke or drink. Because of my arthritis situation, my exercise regimen is minimal. With all that info on me, can anyone offer me some advice? I'm a bit concerned about where this is all going to lead me. Thanks. tdan4

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I monitor mine annually. The last 2 years, when it was first found, it went from 4.0 to 4.2. I am on an annual scan schedule at this point. I have a local heart doctor monitor it and I also send my scans to a university hospital out of state where they have a specialist team that does the operations. This way I also have an established plan where to go to have the surgery if/when the time comes for it. My local heart doctor also told me to get hold of him fast if I have sudden and major chest pains because they aneurism might be tearing in which case he would send me to a hospital that is not as far because time is critical. As others have noted 5 cm seems to be the limit where surgery is considered.

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Mine was 4.2 2 years ago, and I found out the other day it is 5.0 now. They are saying I need to have surgery or it might rupture. I don’t know the day of the surgery yet, I’m really scared

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@tdan4

New to forum. 71 y o male, 6'4' rated obese. Two weeks ago, my regular doc sent me for echogram which showed aortic root at 4.1 and ascending aorta at 4.7. Sent then to CT which showed ascending at 4.8. Have received a message from my reg. doc that at my next visit (next week) we are going to discuss my results. Have a feeling I'll be seeing a heart doc in the near future. lol. I have a few other health issues and this news of a heart situation was completely unexpected. Have not shown any symptoms of what I would probably imagine. I had been diagnosed with degenerative joint disease for a couple of decades now, and have had both knees totally replaced about 14 years ago. Been under care of a rheumatologist for about 7 years, and currently going for chemo infusions of Rituxan to slow the deterioration timeframe down. Rituxan is notorious for hurting the autoimmune system. I don't smoke or drink. Because of my arthritis situation, my exercise regimen is minimal. With all that info on me, can anyone offer me some advice? I'm a bit concerned about where this is all going to lead me. Thanks. tdan4

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Hello @tdan4

I can chime in on what I learned after an unexpected diagnosis of a 4.3cm ascending aortic dilation. It showed up as 4.5 cm on a calcium CT and the measurement was refined during a ct coronary angiogram. (Other problems showed up on the calcium CT.)

The routine standard seems to be an operation at 5cm. Body size and growth rate appear to be factors that can change the size for surgery. There are probably other factors as well. I am not a doctor.

When it's less than 5cm, it's monitored according to a prescribed schedule. The first check is in 6 months and yearly afterward if the growth rate is below some threshold. The growth rate seems to vary substantially.

I learned a lot at this link: https://www.ahajournals.org/doi/full/10.1161/CIR.0000000000001106 and from this group.

Hope this helps.

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New to forum. 71 y o male, 6'4' rated obese. Two weeks ago, my regular doc sent me for echogram which showed aortic root at 4.1 and ascending aorta at 4.7. Sent then to CT which showed ascending at 4.8. Have received a message from my reg. doc that at my next visit (next week) we are going to discuss my results. Have a feeling I'll be seeing a heart doc in the near future. lol. I have a few other health issues and this news of a heart situation was completely unexpected. Have not shown any symptoms of what I would probably imagine. I had been diagnosed with degenerative joint disease for a couple of decades now, and have had both knees totally replaced about 14 years ago. Been under care of a rheumatologist for about 7 years, and currently going for chemo infusions of Rituxan to slow the deterioration timeframe down. Rituxan is notorious for hurting the autoimmune system. I don't smoke or drink. Because of my arthritis situation, my exercise regimen is minimal. With all that info on me, can anyone offer me some advice? I'm a bit concerned about where this is all going to lead me. Thanks. tdan4

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@cobweb

i also am 81. Just back from the Cleveland Clinic. Aneurysm measure 4.7 but did not get larger in the past year. Play golf, garden and bike. No heavy lifting. Dr said reaching 90 is possible. What ever, keep going and live life to its fullest.

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I am also 81 and my "mildly dilated" ascending aorta was noted in '04 as result of seeing a Cardiologist for PVC's observed during my treadmill stress test. An Echocardiogram showed my AoD to be 4.4 cm. In 2007 a CT w c measured 4.8 cm. Since then, I have had 10 CT's showing the aorta to be anywhere between 4.4 to 5.0 cm. The latest was 4.8 cm. The Echo AoD's have ranged between 4.4 and 3.7 cm with the latest being 3.8 cm. Point being a dilated aorta does not necessarily mean the end is near. One thing I find fascinating is that the CT Program can extract an image of the aorta. Earl the Pearl

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@pete398

Hi Mustang Sally, I am 81 and 13 years ago my aneurysm measured 3.8cm. it is now 4.9cm. Watchful waiting is the best option. There are many things out there that can kill you and me. Don't smoke, get your blood pressure under control, drink moderately or not at all, eat a sensible diet, exercise and enjoy however much of life you have left. See your cardiologist and primary care MD.

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i also am 81. Just back from the Cleveland Clinic. Aneurysm measure 4.7 but did not get larger in the past year. Play golf, garden and bike. No heavy lifting. Dr said reaching 90 is possible. What ever, keep going and live life to its fullest.

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I'm 74 and was diagnosed with an ascending aortic aneurysm 12 years ago after a CT scan after a car accident. Mine has been holding steady at 4.6, I originally had a CT scan done every year, seeing as there has been no changes I get a scan done every 2 years. I don't dwell on the fact that I have an aneurysm, I try and not lift anything too heavy and that's about it. Live life, there's lots of other things that'll kill you too, can't worry about them all.

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@upartist

Thank you Suz1950! I enjoyed reading your excerpt from the Journal of Thoracic and Cardiovascular Surgery! Very very informative, as I heavily consider stats on outcomes in weighing my medical decisions. Quality of LIFE is the biggest element! My recent cardiac visit revealed that my ascending aneurysm is holding steady at 4.2 and my stats have actually improved. So it will be a wait and monitor scenario. Pretty cool! So I plan to approach living today in mindfulness, and appreciation! My other issues are being dissected out and addressed. That to is really nice! As a result of this reassurance, I feel more in control of myself/my body/ my mind. My happiness levels have just been increased ten-fold! I hope the readers of this blog, with the excellent info it provides, can also achieve a higher level of "Happiness".
UPArtist 😊

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This is wonderful news, upartist! So happy for you. It' s amazing how this kind of health news can make such a big difference. Glad you enjoyed the excerpt, too! I hope you and all of us can continue to find more and more ways to enhance our happiness and quality of life 🙂
suz1950

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Thank you Suz1950! I enjoyed reading your excerpt from the Journal of Thoracic and Cardiovascular Surgery! Very very informative, as I heavily consider stats on outcomes in weighing my medical decisions. Quality of LIFE is the biggest element! My recent cardiac visit revealed that my ascending aneurysm is holding steady at 4.2 and my stats have actually improved. So it will be a wait and monitor scenario. Pretty cool! So I plan to approach living today in mindfulness, and appreciation! My other issues are being dissected out and addressed. That to is really nice! As a result of this reassurance, I feel more in control of myself/my body/ my mind. My happiness levels have just been increased ten-fold! I hope the readers of this blog, with the excellent info it provides, can also achieve a higher level of "Happiness".
UPArtist 😊

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@bgillespie

I was just diagnoised with this too 3.8. I see the Dr Monday.

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It's great you are seeing your Dr. on Monday. Coincidentally, I am having a 2 month follow-up after the initial consult. At that time, my cardiologist ordered the CT Cardiac Scan that revealed the 4.8 cm aneurysm. After seeing the results, he doubled the dose of my statin and ordered some lab tests (C-reactive protein, Lipid protein (d), and a lipid panel). This seems to have worked from what I can see about the results, so I am excited to find out if the results are as positive as I think they are. I'm also curious to see if he wants to follow up on doing an echocardiogram as he had mentioned at the first visit.

I'm so glad you found this group, I've found it very helpful and I hope you do too! I've received a lot of great advice and heard people's experiences which help me feel that I am not alone. All the best to you--will be thinking of you on Monday 🙂
suz1950

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