Thank you, Mayo Clinic!
Interested in more discussions like this? Go to the Transplants Support Group.
@vjase, Welcome to Connect. I am honored to meet you, a pioneer in the world of transplantation. I bet you have seen and experienced many changes and advancements throughout your transplant life.
I would like to say thank you, for your part in being a patient and for blazing the trail for all of us who are able to follow in your footsteps.
vjase, What advice would you offer to a patient who is just beginning their own transplant journey?
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First of all I would like to thank you for your kind words. Like many of my fellow transplant recipients I would like to say its normal to have many fears post transplant (tests, blood work, and trepidation from a random ache or pain). I would also say to try to enjoy the great gift that you received. Always appreciate all that your caregivers have done for you and try to understand what they they went through to help you along your journey.
I have no idea what number I was, but must be fairly close to the 20000 number. Mine was Sept. 12, 2019. They seemed to have gotten pretty good at it with all the practice. 🙂
@seahorstmayo, Congratulations on your recent transplant! I have to agree that Mayo is pretty good! 20,000 is a huge number of individuals.
Here is a Newsfeed post that was put together based on information shared by Connect members: Top Transplant Hacks: Patients Share Their Best Tips and Tricks.
@seahorstmayo Congratulations on your transplant! And welcome to Mayo Connect! May I ask what you received, and how you are doing? Anything tips you would like to share with us?
I got a liver and am doing very well. Be careful after transplant, there's a lot of damage in those guys that have to heal. Don't freak out if you have a rejection, they seem to be easily overcome with the steroids they'll give you.
The Mayo Clinic transplant team is amazing along with the entire Mayo Clinic! My brother donated his kidney to me in May 2018 and we are both doing great. I just joined this site today.
@rrrowbal, I am happy to exend virtual handshake and Welcome you to Connect. I am happy for you and for your brother – donor and recipient – that is pretty special! I would love to hear more about your transplant story because your story / experience would be both supportive and reassuring to those who are just beginning their own transplanrt and living donor journey.
Here is the direct link to the Transplant Discussions. I can meet you there. Or if you need help, let me know.
I am a Mayo Clinic liver transplant. They were incredible. I broke my back January of 2011. Healed at Mayo, could not have surgery because of condition of liver. Spent many weeks laying flat. I went home with a brace. Right after I had the brace removed I fell at my home and fractured the ball of my hip. Back to Mayo. Had to have surgery and physical therapy. Recovered and went home with stitches down my leg. Before the stitches could be removed the call came that a liver had been found. Surgery was successful! After almost 6 months of in and out of Mayo, I went home. Mayo was there for me every step of the way to finally being well and they are there for me now.
Wow @karen51, that is quite the story. You sure were not kind to yourself with all the breaks. You said that Mayo is there for you now. Are you referring to transplant follow-up or are you returning for a new health issue?
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