are you having trouble with anger and anxiety as you transition meds

@gingerw Hello and thank you! Good to get a response. What is a Volunteer Mentor? Do you welcome new members? I'd like to hear from others, too. I must first say I am not a fan of psychiatry nor the medications, but I have been on them for over 40 years. Yes, I've been hoping to transition slowly, but back in November of last year I needed to get off Clozaril and Topamax that I'd been on since about 1997 and they decided to do it in the hospital. They took me off of it cold turkey in about a week! It was horrible to say the least. I had hallucinogenic nightmares and shut down for which they blamed me! Although I've been in psych units before, this was terrible and I hope I never have to do it again. They put me on what is considered a current antipsychotic Cobenfy, barely tested. Because of coming off the Clozaril/Topamax so quickly I grew somewhat manic and spent a couple thousand dollars, mostly on books. I needed to also be on Olanzapine to quell mania. That caused my blood cells to get too low so I had to be withdrawn from that quickly, which was excruciating. The Cobenfy left me depressed, so my psychiatrist switched me to Vraylar which caused me to overeat as well as me having an eating disorder on top of that. Finally, she switched me to Latuda, but meanwhile I've got a tremor and my tongue is moving in my mouth. I've gone through great anxiety and anger, probably a combination of the medication side effects and opening up emotions. She recently gave me propranolol to help with the anxiety. I do have support, just not people who have "been there," and I'd love that kind of support or other stories besides my own to understand better. Finally, my psychiatrist says that when I hopefully start therapy one of the first things I should do in therapy is learn to accept that I'll be on meds for the rest of my life. While this may be true, I find it defeatist and not in line with my dreams or aspirations. While my psychiatrist has really stuck in there for me and I give her credit, we have different philosophies of how people with mental health challenges should be treated. Meds can I guess be helpful, but right now the side effects have been devastating. My tongue is moving around in my mouth, I have ditties going over and over in my head, my lips are completely dry and I have a noticeable tremor in my hand. The whole thing has been a nightmare, needless to say. Anyone who can relate, I'd love the support and to hear from you!

@gingerw Hello and thank you! Good to get a response. What is a Volunteer Mentor? Do you welcome new members? I'd like to hear from others, too. I must first say I am not a fan of psychiatry nor the medications, but I have been on them for over 40 years. Yes, I've been hoping to transition slowly, but back in November of last year I needed to get off Clozaril and Topamax that I'd been on since about 1997 and they decided to do it in the hospital. They took me off of it cold turkey in about a week! It was horrible to say the least. I had hallucinogenic nightmares and shut down for which they blamed me! Although I've been in psych units before, this was terrible and I hope I never have to do it again. They put me on what is considered a current antipsychotic Cobenfy, barely tested. Because of coming off the Clozaril/Topamax so quickly I grew somewhat manic and spent a couple thousand dollars, mostly on books. I needed to also be on Olanzapine to quell mania. That caused my blood cells to get too low so I had to be withdrawn from that quickly, which was excruciating. The Cobenfy left me depressed, so my psychiatrist switched me to Vraylar which caused me to overeat as well as me having an eating disorder on top of that. Finally, she switched me to Latuda, but meanwhile I've got a tremor and my tongue is moving in my mouth. I've gone through great anxiety and anger, probably a combination of the medication side effects and opening up emotions. She recently gave me propranolol to help with the anxiety. I do have support, just not people who have "been there," and I'd love that kind of support or other stories besides my own to understand better. Finally, my psychiatrist says that when I hopefully start therapy one of the first things I should do in therapy is learn to accept that I'll be on meds for the rest of my life. While this may be true, I find it defeatist and not in line with my dreams or aspirations. While my psychiatrist has really stuck in there for me and I give her credit, we have different philosophies of how people with mental health challenges should be treated. Meds can I guess be helpful, but right now the side effects have been devastating. My tongue is moving around in my mouth, I have ditties going over and over in my head, my lips are completely dry and I have a noticeable tremor in my hand. The whole thing has been a nightmare, needless to say. Anyone who can relate, I'd love the support and to hear from you!

@gingerw Hello and thank you! Good to get a response. What is a Volunteer Mentor? Do you welcome new members? I'd like to hear from others, too. I must first say I am not a fan of psychiatry nor the medications, but I have been on them for over 40 years. Yes, I've been hoping to transition slowly, but back in November of last year I needed to get off Clozaril and Topamax that I'd been on since about 1997 and they decided to do it in the hospital. They took me off of it cold turkey in about a week! It was horrible to say the least. I had hallucinogenic nightmares and shut down for which they blamed me! Although I've been in psych units before, this was terrible and I hope I never have to do it again. They put me on what is considered a current antipsychotic Cobenfy, barely tested. Because of coming off the Clozaril/Topamax so quickly I grew somewhat manic and spent a couple thousand dollars, mostly on books. I needed to also be on Olanzapine to quell mania. That caused my blood cells to get too low so I had to be withdrawn from that quickly, which was excruciating. The Cobenfy left me depressed, so my psychiatrist switched me to Vraylar which caused me to overeat as well as me having an eating disorder on top of that. Finally, she switched me to Latuda, but meanwhile I've got a tremor and my tongue is moving in my mouth. I've gone through great anxiety and anger, probably a combination of the medication side effects and opening up emotions. She recently gave me propranolol to help with the anxiety. I do have support, just not people who have "been there," and I'd love that kind of support or other stories besides my own to understand better. Finally, my psychiatrist says that when I hopefully start therapy one of the first things I should do in therapy is learn to accept that I'll be on meds for the rest of my life. While this may be true, I find it defeatist and not in line with my dreams or aspirations. While my psychiatrist has really stuck in there for me and I give her credit, we have different philosophies of how people with mental health challenges should be treated. Meds can I guess be helpful, but right now the side effects have been devastating. My tongue is moving around in my mouth, I have ditties going over and over in my head, my lips are completely dry and I have a noticeable tremor in my hand. The whole thing has been a nightmare, needless to say. Anyone who can relate, I'd love the support and to hear from you!

@kmilstein I can relate to the SE of my tongue moving on generic latuda. And tunes repeatedly playing in my mind. Also my teeth want to tap each other in rhythm with the song, oy!
My PDoc took me off latuda due to slight tongue thrusting. Now taking generic seroquel and feeling ok but sleep like 14 hours after taking extended release at night. Also more joint and muscle pain, and dizziness plus heavy legs.
It is nice to have my mood feel stable but I now have a low to moderate depression- I'm only 3 months of of a long manic phase. The crash to depression is real!

@kmilstein your experience with side effects just reminded me of a time some years ago when I was prescribed something for anxiety or something - possibly also to help me sleep. After the first dose I woke up the next morning feeling so full of rage I could have punched whoever would have been in front of me (fortunately I was alone!). I had never experienced this kind of anger - for no reason at that - ever before! Needless to say, I refused to take any more of that medication! I wish I could remember the name …

A few weeks ago after a minor laser procedure on my eye I was prescribed Prednisolone eye drops to be taken two or three times a day for a week. After that first dose I experienced dizziness. It was bedtime so I figured it would pass by morning. In the morning I was still dizzy, thought it may be just temporary and decided to take the second dose, but that second dose made me more dizzy, to the point I couldn’t walk without holding on to anything within reach! Called the doctor’s office and left a message I am not taking any more of those drops!

As I have mentioned earlier, each body is different and reacts differently to the same medication. I guess these were my body’s reactions to these meds.