Concerns justified about possible epilepsy with simple focal seizures?
First off, 32 yr old male here. No known medical issues other than being overweight and wearing glasses. In fact I have undergone a large number of blood tests lately and all came back great.
Lately I have been dealing with some health issues that my doctor is unsure of. After doing some research, I brought up the idea that I might have epilepsy with simple focal seizures. She (my doctor) seemed skeptical, but open to the idea, and said she would put in for an EEG (I haven’t heard back yet, this was about two weeks ago). I was wondering about hearing any thoughts on if this is a valid idea to look into, or if I am bringing up ideas that can get in the way of finding out what I have been dealing with?
The reasons the idea of focal seizure epilepsy are as follows: For years now I have maybe 2-3 times a day instances of being light headed. It isn’t so much as getting dizzy, but more like I could fall over, man times feeling like I am in a dream and not real life. I would say maybe about 25% of the time I see a small flash of streak of white or red light(s) right as this happens. More often however I see movement out of the corner of my eye, almost like a shadow. To be honest, sometimes they scare me, because its almost human shaped, but many times looks more like a cat zipping out of the way. This happens usually randomly, but commonly at work or at night outside. Usually I can snap out of these light headed spells (wait them out until I come back to normal, or keep thinking to myself “this is real, don’t fall, this is real, don’t fall”, that seem to last 8-10 seconds. But lately I started to pass out.
In the last three weeks I have passed out three times. The first two were at work, the third while I was grocery shopping. First two times I was out for 10-15 seconds (third time I fell into a battery display and was caught by my spouse who shook me and wasn’t out as long), and when I would come to I would be in a fog the rest of the day, and would always wake up feeling like I was going to throw up. I usually couldn’t remember the last 20 seconds or so before that happened. I would also have the worst headache the next day that no matter how much medicine I would take, wouldn’t go away. Visited ER first time (found nothing, then had follow up visit with doctor where she put in a referral to a Cardiologist for end of October). Second time visited walk-in clinic (it was the weekend) at my Dr. office, that doctor took away my drivers license and ordered an MRI. Third time saw no one as it would be redundant and they said don’t come in unless I hit my head (I didn’t).
In doing research, other signs I have notice that could point to focal seizures are my bad sleep walking. But unlike what most sleep walkers deal with, I remember most of what happens when I sleep walk. The people I think I am talking to and our conversations (Why is Justin sitting on the end of my bed talking about work at 2AM!), the horrible creatures I see staring in my window at me that aren’t real but scare me, sleep eating, going for walks around the neighborhood, etc. Sometimes if we are entertaining I have go to bed early as I work early, and I will come out like an hour or two later and interact with them all, and I remember much of it as if it was a dream, but it was what I was really doing. I have read where this is a possible sign of focal seizures in your sleep. This has been a problem since my early teenage years
Since I was maybe 12 or 13ish I have had this stupid problem my family use to make fun of me, where I would feel this wave come up from my left arm, and shoot up to my head that would make me involuntary jerk my head and neck. This still happens, but is never often, maybe once a week or so.
I have a Great Aunt with epilepsy (but hers are absence seizures), and have read where having meningitis can increase your risk for it (I had bacterial meningitis at age 2), but as far as other risk factors I don’t know of any I have.
Some things to make me think this is just me over thinking this issue (besides my doctor not seeming to be too keen on the idea) are:
1) Why would I start passing out only in the last three weeks if I have had these light headed spells for a few years now?
2) The walk-in Dr. I saw said I have a left eye deviation when I have to follow his finger to my nose. Never read anything where that could be a sign. This is something new and had never been mentioned by my eye Dr. before.
3) During these light headed spells, I don’t shake or jerk or anything. I also don’t lose my ability to talk normally either. They also seem too short time wise when they happen.
Anyhow, thank you for reading my long post. I would be thankful for any thoughts you all had if I’m justified in thinking this could be related to epilepsy or if this sounds like an unrelated issue.