Connect
Are any of you Multiple Myeloma patients post kidney transplant?
I am trying to determine how actively I should be pursuing a kidney transplant. I am one year post ASCT and in a complete remission. I had been on dialysis for 9 months following the diagnosis of Multiple Myeloma in January 2024. I am on maintenance drugs of revlimid and Darzalex Faspro 1x a month. In general I feel pretty good. I am anemic and have hyperparathyroidism as well as mild osteoporosis as a result of the disease and kidney damage. My current eGFR is 16 and I have been stable at this level for about 1 year. I am hoping to find someone who has the diagnosis of MM and had a kidney transplant to see how they feel, how they handle the anti-rejection drugs as well as the chemo/immuno drugs. Did the MM come back right away? Are you glad that you had the transplant? If I knew I could remain at my current eGFR and in remission I would be happy, but I know the MM comes back and my kidney function can decline. Should I get a live donor transplant now while I am feeling pretty good and in remission? Thanks!
Like
Helpful
HugInterested in more discussions like this? Go to the Transplants Support Group.
Connect
I do not have MM. I have pkd. I am a kidney transplant recipient. My transplant was 16 years ago. Be aware of the fact immunosuppressants put a transplant recipient at high risk for skin cancer. Best of luck making the right decision for you.
-
Like -
Helpful -
Hug
1 Reaction@lcal12 Welcome to Mayo Clinic Connect. I am a multiple myeloma patient, under treatment since August 2021. I am also an end-stage renal disease patient, on peritoneal dialysis since August 2022. In July 2024 I [once again] looked seriously into trying for a kidney transplant. All 6 transplant centers that were researched, told me after a stem cell transplant and full recovery from the mm, they would consider evaluating me for a kidney transplant. BTW, my kidney issue is not related to the mm. It was determined between my medical team and myself, that going through and recovering from a SCT would be too much for my system, and there were good chances I would not have a positive outcome. I am on "dialysis-for-life", and remain under treatment for the mm, also. For what it is worth, I am 72, and my team determined recovery from a SCT might be 2-3 years, then evaluation process for transplant, and wait for donor kidney.
I will be most supportive of you in your decision. Please check with transplant centers near you to see what their parameters are regarding the status of your multiple myeloma, and if you might qualify for evaluation for a kidney transplant. This will give you a guideline on how to move forward.
Ginger
-
Like -
Helpful -
Hug
2 ReactionsThank you for responding Ginger. I am pursuing a live donor transplant at the Mayo clinic in Arizona. Im on a "prelist" at UCSF. It is difficult to risk my current status for an unknown but research seems to indicate good outcomes for most transplant patients and there are treatments for the Myeloma if it returns.